I thought I was having a heart attack

Hi everyone and I look forward to sharing our stories and supporting each other.

My life changing journey started on October 1st when I ended up in A&E thinking I had had a heart attack. After numerous test, nothing was found and it was down to a very caring Doctor who went that extra mile and ordered a CT scan of my chest. It was the results of this scan that revealed a mass behind my sternam. I spent a subsequent 6 days in hospital having numerous test and observation and a very interesting biopsy. I left hospital on the 6th day. After 10 day while results were being analysed I was called back in for consultation. It was then I learned I had a Thymoma tumour about the size of a duck egg behind the sternam. The concern was that it was laying on the heart - the pericardial layer. The thought at this point was a straight forward op and maybe follow up with radiotherapy. A Pet scan followed about a week or so later and the results of this showed a grimmer picture. Half the tumour was on the pericardial layer and the other half had gone through the layer and was seated on the heart itself with some small invasion into the heart. Surgeon suggested start with one or two sessions of chemo to hopefully shrink tumour making op easier. Told it could reduce so only keyhole surgery required or could maybe zap tumour totally. We will see what happens. Anyway, I am currently waiting for appointment with Oncology to discuss chemo.

I feel ok and positive about it all and have wonderful support from family, friends and of course McMillan nurses and hospital staff. Worse time is when I'm alone and at night when those thought gremlins keep trying to put horror stories in my head. At this moment I just want to get on with the treatment and hopefully end up cancer free.

Wow sorry, didn't mean to ramble on so much. Wishing you all the very best, Steve

  • Hi Steve,

    Sorry to hear of your diagnoses. If there is one positive thing is that you went to the A&E when you did and that has led you getting the treatment you need. 

    You seem to have very strong family and friend support which is a blessing, many do not. I'm sure you will find this forum a great source of inspiration and knowledge. 

    I wish you nothing but a full recovery from this and will keep you and your family in my thoughts. Please keep us informed on your journey if you are able.

    God Bless.

  • Thank you Antoni. Yes I am blessed to have the support around me. It must be very lonely for those who do not have love ones to share their thought and get much needed support. I hope we can in some way fill that gap as we progress through our journeys with cancer. I shall be posting my own journey in relevant section in this forum so that it will bring enlightenment of differing procedures to other and hopefully help expell the Unknown - keep those gremlins at bay. Will keep in touch, Steve

  • hi steve1604, im so sorry, gosh that was a shock for you in A & E, you keep up the fight and do all you can,  we had a shock too dad went to A & E, cutting a very long story short he is terminal with a brain tumour,glioblastoma grade 4, hes 69 and fit active and positive, hes been told 2 years max with treatment, hes on the chemo part now, after an opp and radiotherapy, i know what you mean about night time, the brain seems to be good at worrying at night when the world goes quiet and your with your thoughts in your head alone,  im sure like my dad and us,  positive thinking and healthy eating can take you a long way,  all the best for your battle ahead,   and it will be a battle,  you make sure you look in the mirror ech morning and tell your cancer,,    your not going to win,  be strong, never wait around for appointments that should have come, always chase them, your life is literally in your hands, you save yourself...with medical help,  i hope your family are copeing,  it affects all involved, and also sometimes as carers and supporters we forget ourselves too. i will keep up with your journey.. if you ever feel down, put some music on, it really helps..all the best..

  • Thank you so much for sharing your story - my thoughts are with you and yes, keep positive. Will keep in touch.