New to the forum

Hi. My name is Jane and I'm 43 years old. Earlier this year I was diagnosed with cancer in my mouth. I went through a 12 hour operation, 2 weeks in hospital and then 6 weeks of daily radiotherapy. I am due my follow up appointment next week and hopefully everything will be fine. My family and friends have been fantastic at supporting me through the last 4 months but I still find myself sitting alone and bursting into to tears. I thought I was over the worst but I don't feel I am. 

  • Hi Jane

    Welcome to the forum!

    Don't be harsh on yourself, you've been through an exteremly hard and traumatic time. It takes a while to get over this treatment, think months to a year or more rather than weeks. Cry, scream, shout, if it helps you. There's lots to look forward to, just go one step at a time. Things like starting to drink and eat again, then being able to taste food, and not be in pain are all milestones. Come back and post here to let us know how your recovery progresses and to ask any questions you may have about how others coped with any problems you encounter. Kim

  • HI Jane, I've just gone back to work in the last 5 weeks after being on the sick 8 months due to breast cancer.  I thought I was fine as everything was done and dusted but found myself bursting into tears at work for no reason.  I think when people say that's it you've completed your treatment it's hard to get back to "normal" as normal was before you got diagnosed and now you're still thinking things like will it come back, am I okay etc. But we always seem to think that we should just get on with it and be fine but it is a traumatic event and it would appear it takes more time to get over than I realised.  Karen

     

  • Thanks Kim for your kind words. The biggest problem I have is not being able to eat anything other than soup, it's driving me insane. I know things take time just thought I'd be ok by now. I'm too impatient and want to get back to work 

  • Thanks Karen, I know where you're coming from. 

  • I keep getting recurring mouth ulcers which is making my attempt to eat even worse. Does anyone have any advice how I can stop them or is it just a side effect of treatment? 

  • Hi jane

    im two years post treatment for the same thing

    dont it suck?

    that treatment takes a lot out of us ans even though I am two years on .... Some of me is lost, I have most of me back .... Most most of all I'm here

    ok I can't taste everything to the extent I did last time but you and I know what cardboard food tastes like ... And I can taste enough to enjoy food.

    ok I'm tired and my life does catch up with me, but I'm sensible with it now and my god when my head hits the pillow ....I'm out

    It's flipping hard Jane but it gets better ... It just does

    you have survived one of the most brutal of treatments for cancer .... You are are super human survivor.

    try not to be so hard on yourself and enjoy those who love you dearly

    vatch

     

  • Hi vatch. It does suck and it's what's getting me down the most I think. I only finished radiotherapy in September so I think I'm expecting too much too soon. Thanks so much for your reply. It helps to know I'm not alone, which I know I'm not, but it's hard on family to have to listen to my constant moaning , 

  • Hi Jane, my niece is a dentist and she recommended Actimel to me, when I was going through chemotherapy, to help protect your gums. It may be worth a try
  • Jane

    you have been through a lot and you have earnt the right to moan

    i finished mine mid August so similar sort of time line

    i have sent you a copy of my blog for my Christmas dinner

    at the stage you are now I had to still sleep for 3 hours in the afternoon

    it gets better but remember you are only human....something I used to forget

    gammaraygary.wordpress.com/.../

    i hope it helps 

    have you still got your peg and Duraphat for your teeth

    vatch

     

  • Sorry Jane I forgot to add my blog about mouth ulcers

    i know where you are with this, mine were so bad that I had to have a biopsy on them as they thought something was going on....that just made them more painful ... It was all clear

    try these remedies though

    you do have to keep up the regime, oral health is of the utmost importance now

    i hope it helps

    gammaraygary.wordpress.com/.../

    vatch