Results day on Wednesday - gulp

Hi all. I was diagnosed with DCIS Sept 2016. Intermediate grade. Had surgery 18 October 2016 and now awaiting results on Wednesday. Am expecting radiotherapy.  Havent been too bad the last 2 weeks of waiting but am now finding myself on edge and hoping  for clear margins and no surprises. To be honest Wednesady cannot come quick enough just so that i know what I'm facing next on this journey we share.
I have found DCIS to be a 'strange old thing' as it seems to fall between many things breast cancer, whilst still having the same feelings, fears and emotions.
I'd love to hear from anyone in particular with DCIS - help facing this thing together as i'm guessing its easier than alone x

  • Hi Dotty, 

    Waiting for results can be so tough as many of our members know and I'm sure members who have also been diagnosed with DCIS will post soon to offer their support and share their experiences with you. I see you mentioned that you get your results today. I'm not sure what time your appointment is find out your results but I just wanted to wish you good luck.

    Do come back and let us know how it goes Dotty. We're thinking of you.

    Best Wishes, 

    Steph, Cancer Chat Moderator

  • Thank you. Yesterday came and went in a bit of blur really.  Nerves calmed a little once at the hospital and the 'process was underway'.  All in all I suppose it was good news. They took much more than they had originally thought (which Id obvisously guessed after surgery) and although the majority was DCIS there was a small piece of invasive. All things considered they decided no further surgery at this time to investigate /remove lymph nodes which I understand would be the normal course of action. Instead I will have rads (as already predictied) and start on Tamoxifen (slight shock!).  The surgeon kept asking if I was ok with that.  Reflection has made me doubt if this is the right course of action as she kept asking for my approval?.  She was very reassuring and said it was unanimous in their meeting this was the best action as the piece was so small. My initial tthoughts were initally eurphoric as no more surgery but as the day went on my heart and optimism changed.  I have been reading from the other ladies here the SE of Tamoxifen. it is ER+ if that is the correct term and so I now need to arrange alternative contraception. Is it normal to leave the lymph nodes? They were scanned early on in the porocess and nothing found. I hate this having to make decisions (which I feel this is).  I want the professionals just to tell me the best course of action.  I went through terrible anguish when asked to go on a trial for DCIS surgery v watch and see.

    Sorry if this is not the place to vent this - and truly I am grateful as I appreciate the other options it could've been, Thanks for listening :)