New today Hi I'm Alan

Hi everybody, Im Alan .. I had my kidney removed on the 25th May , 5.5cm tumour fulham grade 3 contained in the kidney ..

but I have 3 small nodules in a lung that I am waiting to have scanned again on the 2cnd september, the waiting this last 3 weeks has caused me so much anxiety and stress, in case the kidney cancer has spread to my lung.

Plus coping with stopping smoking is a stressfull thing on top of everything else, there are mornings that I wake up and by the time I get downstairs im shaking with stress.  I find myself reading articles on the internet and that just makes me even more stressed. I know that I have to wait for the results of the scan, as my surgeon who took my kidney out explained that depending upon the results of the scan, I will have 3 scenarios , 1. no further treatment at present just a 6 months follow up scam.  2. Vats Surgery to remove the nodule or nodules .  or 3 and I guess this would apply if I had the Vats surgery as well

courses of drugs sutent etc , and the prognosis then is a guestimate of 3 to 4 years .

Its been a terrible year, one of my best friends 51 has Melanomas spread to his lung neck and brain, another friend she is about 49 had a tuma removed from her brain earlier this year and is on radiation therapy, but cant have anymore at the moment as her platelets are to low.. My brother just had 4 toes removed due to diabeties... all in all a stress full year.

I go to bed at night thinking thinking thinking and wakeup thinking and stressed...  im taking 2 mg of valium every night to sleep, but that makes me feel so tired when I wake up. it takes an hour or so to get motivated..

Its so difficult to find anyone to talk to, my patner doesnt want to talk about anything until after the scan results... my two friends with their cancers dont like to talk to much about their conditions either.. they are both very very positive people 

and I admire their strength.. 

 

 

 

  • Hi Ness

    I came back home on the 26th september as I couldnt stay in the Uk as the person looking after my dogs had to leave to come back to the UK.  Saw the surgeon before i left, The scan was ok, but he sent it to a lung specialist who i saw before I left, he recommended a pet scan, and possibly a lobectomy if the 11 cm nodule showed any signdof cancer, plus if it didnt he also recommended a biopsy, which scared me to death..  I had the pet scan here in spain on the wednesday 28th September , saw the doctor after and said what are the surgeons like here in spain, she just looked at me and said surgery  , we have medicines that we use prior to any surgery and kind of dismiissed me and walked away.

    Results at 5 pm the next day at 5pm.  arrived with a freind and as I was so nervous I coudnt drive.. 5.30pm still sat in reception, 6 pm still sat in reception, my friend asked whe and was told the specialist was running late as he was going on holiday on the next day.

    6.30 pm called in, shaking from head to toe , the specialist lookked at me sand just said Sit down now i have good news for you, I fell into the chaie literally , still shaking, he said that the nodule had come up at 1.4 on the pet scan, apparently thats good, he said if there was a problem it would show up at 2.75 or higher, the other doctor was also there that I had seen the previous day, they both said that the pet scan was good and I was clear.... they gave me the report and pet scans all in spanish whch i had to translate on google to send to my kidney surgeon in the uk , he cam back and said the results looke promising.... 

    I have another scan in the UK In december and another pet scan in 6 months time, I came out of the hopsital and within 10 yards burst into tears, it was just unreal, as I was expecting a lobectomy and medication to dtart more or less immediatly... I thank God every day , and each day sine then it still has not sunk in, We all know that cancer can come back at anytime, but hopefully it wont.

     

    I know that we shouldnt talk about diet or self medication , because every one is different and I was not on any medication since my kidney eas surgically removed, but I googeled everything for days and days, 

    whther my change of diet helped me I dont know and AGAIN i am not recommending this in any way , I think it may have helped me but maybe thats just in my Mind, plus I spent hours praying to god to help not just me but all of my friends that also have serious cancer .

    I started to eat a whod bulb of garlic every day, plus that black garlic, drank a mixture of tumeric oregani olive oil black pepper and cider vinegar , disgusting I know. Plus every dat i put blue berries strawberries 

    grapes pineapple and and apple in the nutribullet and drank that, Juuced a about a kiol of carrots and ad also Juiced fresh garlic and drank that,  seriously cut down on dairy products , reduced my protien intake of fish and chicken ... eate more puses lentils etc etc, and I eat all of my veg raw .... wgheteher this helped or not I dont know , but im continuing with ot plus walking 3 miles a day now.

    All I can say is there is hope , there is God, and there are massive ammounts of research going on for kidney cancer patients , ... the thing is we must live and enjoy every day , and be positive, I have a scan in december and another pet scan in march, I do my best every day not to think or worry about them, otherwise ill go crazy... 

    Again I stress , because I changed my diet this does not mean that any of you shoud, it coud affect your treatment, But I give you all hope and I hope strength to cope with cancer, One day soon it will be turned  into a chronic disease that we can all live with, and the sooner that day comes then we will all be so gratefull

     

    I wish you all the best

    How are you

    Alan