Newly diagnosed

Hi I was diagnosed with Non Hodgkins Mantle Cell stage 4 extranodal l have no symptoms and have been placed on watch and wait with 2monthly checks This was a complete shock and was found during a routine examination Would be good to hear others experience of this lymphoma With Thanks 

  • Hello Seaside,

    Welcome to Cancer Chat. It must indeed have been a real shock to you to find out you had Non Hodgkin's Mantle Cell Lymphoma during a routine examination with no symptoms. We have some detailed information on our site on mantle cell lymphoma here which I hope will be useful to you and if you have any question and live in the UK, our team of nurses is also available to talk on this free number 0808 800 4040. You can ring them Monday to Friday from 9am to 5pm.

    We've had several members sharing their experience of this particular type of lymphoma in our forum. [@Kathy2010]‍  posted a few months ago and shared her story here and [@Trev58]‍  also shared his experience of this type of lymphoma here . Do feel free to respond to them and ask any question you may have. I hope you will hear from someone here who has had a similar diagnosis.

    Best wishes,

    Lucie, Cancer Chat Moderator