Hello Laura, 

I wanted to try and link you up with one of our other community members Carin11 whose husband has GBM4. You can find her thread here and I'll post on her thread letting her know too. 

I know lots of our communtiy members will be able to identify with the feeling of being scared and overwhelmed by everything. Laura please do come here and post if you need to ask questions or offload or have a jolly good rant! That's one of the reasons we're here. 

Sending you our best wishes. 

Jenn
Cancer Chat moderator

Hi LauraT,

I'm so sorry you've found yourself on here and sorry to her about your partners diagnosis. How is he in himself? My husband who is 30 was diagnosed with the same 13 months ago and I think our world actually stopped for a while. My husband had radio and chemo but the tumour still won't stabilise so it's obviously a  massive worry.

I have my 'bad' days where all I can think about is my future without him and how I'm going to manage with my young daughter and I have my 'better' days where thoughts and feelings don't consume me as much, I don't really have 'good' days anymore just more managable. Yes the facts and stats are horrible and terrifying and unless a doctor comes out with some doom n gloom I don't read about it anywhere else anymore but I keep reminding myself that everyone is different and the prognosis depends on  many factors.

As far as coping on a day to day basis I'm not sure I can offer much advise.  I just try and muddle through the best I can and try to keep going that way. I try my hardest not and look too far into the future. I can only seem to plan and organise things within a 3 month timescale ...I think that comes from living scan to scan every 3 months. If you're working I suggest you carry on even when you have some of your darkest times and have hardly slept, I find 'normality' keeps me going a bit more. 

Your post sounds unfortunately to familiar. Life is just so damn unfair x