High grade dyskaryosis?

Hello,

 

i had had a letter saying I have abnormal cells, followed with a letter saying that it is high grade dyskaryosis... Colposcopy a week today and also biopsy? I'm absolutely bricking it! I should have had my first smear 4 years ago so really panicking that it's been like this a while (whilst also kicking myself!)

has anyone else been through the same? X

  • Hi I had the same results and my colposcopy is tomorrow morning. Also bricking it! (Mainly the results rather than the hosptial bit) I have 3 kids aged 6 and under and should of had my smear 2 years ago.

    I've had sharpish pains in my cervix area for ages now and sex has been uncomfortable for well over a year so I've convinced myself I have cancer (I have anxiety though so my mind works over time.)

    Although reading a previous high grade dyskarosis chat on here has eased some of my worries. One part that's keeping me positive said this "Something that made me feel better was the nurse telling me that one third of abnormal cells treat themselves and turn back normal again one third turn cancerous (this takes average of ten years) and one third stay as they are never causing harm. In other words the odds are hugely in your favour!"

    Hope this helps :-) x

  • Thanks for your reply :) 

    the forums and stuff I've read seem to say that it will be fine, but like you I've had cramps for a while now, my periods have also changed over the last year, going from heavy for a week to light for a couple of days.. Also my partner and I haven't used contraception for 2 years and I've not fallen pregnant - we both have children with other people though.

     

    'my daughter is 4 and not allowed contact with her dad other than letters (court ordered) so if I have I don't know what will happen with her as I have no family close by etc. Also convinced I'm going to have bad news, not worried about procedure, just the outcome! So angry with myself for not having the smear sooner :'(

  • I am also annoyed with myself. When I turned 25 I recieved the letter and just put it to one side thinking I'll get round to it. In reality I was worried about the smear as I've heard it's worse than a sweep (which it wasn't,  I would say they're about the same!) and I was also worried if I do have something wrong...which is really stupid when you think about it - I put off a test to see if anything's wrong but in reality it doesn't make the abnormalities go away, just heightens the risk of anything bad happening! 

    Also I had my last baby 11 months ago - I couldn't have the test whilst pregnant/for a few months after. I don't know if having "abnormalities" can affect your fertility? Are you actively trying ie. Do you check your ovulation times?

    If I live a merry long life I'll be frog marching my daughter down to the doctors at 25 to make sure she doesn't have to feel stupid and worry like me! :-p maybe the tests will be nicer and less daunting in 20 years time (I'm imagining a futuristic body scanner which MOT'S your body once a year :-D maybe I should patent that!)

    My husband has already said he wouldn't be able to cope with 3 children on his own (I know he would) but we shouldn't be thinking that far ahead just yet! Let's get the first colposcopy out of the way first and then panic (easier said than done!) x

  • I do know when I ovulate but to be honest it's rare that we don't get fruity lol Only when it's that time of the month that we don't really.. I might look into it a bit more and see if it ha an effect, or maybe not. Depends on how much I want to scare myself this evening!

    yep I'll take my daughter kicking and screaming if I have to x

  • Well I've been! But I'm a bit sad. From how she (the nurse) was acting it hasn't helped my anxiety/thoughts that I have cancer! You could see in her eyes she knew something she didn't want to say.

    They were prepared to do the treatment today which I wasn't expecting from reading other people's posts. Apparently I have a high growth level of cells up there that need burning off. They knew this from just my smear results. She said she was going to take a biopsy but when she looked up there she said she needed 2. Biopsy wasn't as bad as I thought, felt it but it was over in 2 seconds.

    She was having trouble opening the neck of the vagina with the plastic thingy. (I think maybe my vaginal wall has collapsed or something - maybe that's why sex is uncomfy?! I'm going to the doctors Monday to ask about it) She kept changing to other ones in the hope they would work but because I was a bit uncomfortable but because of this and because my cervix is near the vaginal wall she said I will now have to come back to be put under general anesthetic so they can to yoink about in there and get to the cervix easier. (it wasn't too bad, on uncomfortable level 1-10 it was only about a 3 but I think she wants me put under so they can go to town down there! Which I don't know whether to be more or less worried about...)

    So all in all today was fine apart from my worry that I have cancer has gone from 80% to 95%

    Also petrified of not waking up after being put under general (did I mention I have anxiety? :-p Haha)

    4 week wait for the biopsy and appointment for the "treatment" now *sigh*

    I'm sure your colposcopy will go a lot better than mine, I knew something wasnt right from the sharp pains I've been having. 

  • Ah I'm really sorry yours wasn't as straight forward as it could have been! Although the pains and stuff you've had could just be because of the collapsed wall or something? You never know ️ Try and stay positive, I've got 3 days waiting left to do, but I'll deffo be in touch once it's out the way. Here if u need to vent/chat etc x

  • Oh and being put under - I have been once and I proper flapped it lol but it wasn't all that bad, one min ur being told they're putting you to sleep,," the next u wake up in recovery with oxygen tubes up ur nose (only tiny tubes!) it's literally like u blinked so don't panic x I always say the more worried etc you are the more likely it is that things will go wrong x

  • Had my colposcopy this morning, not as bad as expected but definitely not the most pleasant experience. The doctor said pretty much my whole cervix was CIN3 and she removed 1cm deep of the areas...now just a 4 week wait for the results! 

  • I had my smear 18/04/16 and only just received a letter today dated 24/05/16 stating I have high grade dyskaryosis... I am absolutely cacking my pants and have a feeling the appointment is going to be a while off seen as a letter took them over a month.

    I am absolutely rubbish at remaining calm and obviously have alsorts running through my head, thinking back now I have pain ALOT and have had for a long time but never looled into it just sort of got on with things like you do when your a single mummy to two with a full time job... Your little niggles take a back seat...

    reading all the posts on here is helping a little but still terrified of the oppointment AND the results

    monday was the 10 year anniversary of my dads passing from asbestosis (a type of lung cancer) so as you can imagine my head was already firmly planted up my backside before the letter arrived!

    fingers crossed for a quick appointment or the credit card is coming out to go private, I just don't think my nerves would last too long!

  • I'm really glad they did it there and then for you :-) I'm still worried about being put to sleep but feel a bit better after your post! 1cm sounds like a lot, did she say whether it is or not?

    See, she didn't even tell me if mine was CIN3 or not which makes me think it's worse. I hate how she didn't give anything away as it makes my mind run wild! If it did look bad I would rather she say as I'm already thinking the worst :-(

    Did she say anything about your cervix affecting your fertility at all?