Partner has incurable prostate cancer

My partner was diagnosed with advanced prostate cancer last week. We have a 2 and a half year old son and are trying to keep things as normal as possible for him. 

We started seeking help from the GP just over a year ago and felt lucky that he had medical insurance with his work as he was referred to a private urologist. After much delay & a lot of trying to find out what was going on my partner finally had TURP about 2 months ago. The consultant referred my partner back to the NHS for the procedure and we were glad as he seemed so incompetent. After the procedure there was some improvement and our future was finally starting to look positive. We thought prostate cancer had been ruled out. My partner went to see the NHS consultant who had operated and was told he had prostate cancer. It was like a bolt from the blue. We were not expecting that at all. Given that my partner has been suffering terrible pain in his hip & back also we realised that the cancer had probably spread. Tests have confirmed that the cancer is in the pelvic bones but not the organs. He is doing an amazing job of being positive and says he wants to get on with life and needs me to be strong but I am struggling with so many emotions & so many things I can't talk to him about because I'm trying to 'stay strong' for him. I'm so angry that these tests weren't done before - I keep hearing about how important it is to talk to your GP if you think something is wrong as early detection can help improve your chances of survival. Why didn't the experts help quicker? 

  • Hi Zumbtherapy,

    Thanks for sharing your story with us on this friendly forum. As someone who had had and recovered from prostate cancer I am in full agreement about early diagnosis. It was my wife who pushed me into going to my GP and luckily he was on the ball. Mine was caught early and I have made a good recovery.

    They may have told you that your partners cancer is not curable, but most cancers are treatable these days.By that I mean they may be able to treat it to stop it getting any worse.

    I can understand you struggling to talk to him as over the nearly four years Ive been on this forum I have seen this happen so many times. I would just like to say, the nuses on this site are fantastic so if you have any questions, please do give them a ring. We are also here for you any time you want to talk or even rant.

    Please keep in contact and let us know how both of you are getting on.

    Sending kind thoughts and best wishes your way, Brian.

  • Thank you Brian.

    His brother had prostate cancer too but it was caught in time and after having his prostate removed 10 years ago he is still with us.

    My partner has been told that he has 3 treatments available to him which each should give him up to 18 months so the conservative estimate is 3 years life expectancy. I'm fearful of qhat his quality of life will be over the duration. At the moment he is able to continue to go to work but does not sleep well with frequent peeing and some pain. We sleep in seperate rooms because of the disruption and his snoring and he is no longer able to get an erection. He has never been very good at showing affection in any other way so the deteriation in our sex life is depressing, not because of the sex so much as the intimacy. This makes me feel selfish but I'm hoping that given time I will be able to adjust.

    There is a large age gap between us and he has 3 grown up children from his previous marriage and we have 1 toddler together. A lot of my friends are talking about having more children and it makes me sad that this doesn't seem like an option for us. I worry about how we would cope if his health deteriorates and how I would manage in the long term as a single parent. I recently bit the bullet and asked if he had considered asking about freezing sperm - he doubts that it is possible for him but at least he sounded open to asking about it. Although it might be best not to have a second child at least the door to that choice would not be sealed for good.

    Katie

  • Hi Katie,

    Thanks for the reply. You say you dont know how you would cope but I feel sure you would. If he is having hormone therapy,that could well be the reason why he is unable to get an erection as 97 % of men on hormone therapy suffer fron this. . I myself suffer from this as I was also diagnosed with diabetes which also causes the same problem. I can understand you feeling a little isolated if he cant show affection so please dont feel selfish. Cancer doesnt just affect the patient; it's side effects hit the whole family but especially those closest to us.

    Take care of yourself, best wishes, Brian

  • Zumbatherapy,

     

    I know what you are going through, I am so sorry, stay strong for your husband xxxxxxx

  • Hi.

    i have just had early warning signs. Have studied for hours each day.

    after two months was getting me down because no solid answers. What I did find I didn't like and don't like.

    read about the Gerson therapy which is diet. Read about mr max Gerson.

    if you somehow can get an email to me I will try forwarding anything I read on to you.

    ken

  • Ken here gain. We bought a good quality juicer that squashes the juice out of the fruit and veg. This way the juice doesn't get heated up.

    we juice everyday. Now I am going to juice more regularly as I had my gene test back today.

    thegerson therapy has you drinking 13 , 8oz glasses of a juice a day. On the hour.

    no water is drunk.

    the whole idea is to rid your body of toxins and allow your body to break down the cancer cells.

    these end up in the large colon and are flushed out regularly throughout the day with a coffee enema.

  • Thanks so much for your reply Ken. I will let my partner know about this and he can have a look at on the internet.

    Katie.

     

  • Thank you. I have great friends who will be invaluable support and this chat forum is helping me to process everything and get my frustrations out of my system.

  • Thanks Brian,

    I feel better for just having typed what was on my mind. It's good to have found a place to talk about these things. I can talk to friends and family but they won't have the same kind of insight into this whole awful thing.

    You take care too.

    Katie.