New to the forum

.Hi. I am 57 years of age and have spent most of my adult life worrying about cancer. I lost my Mother to breast cancer at the age of 21 and then lost my sister to breast cancer when I was 24. I have always feared the word cancer and would walk away if anyone would talk about it. Now The word cancer although not a nice word I'm not scared of anymore. I was diagnosed with ovarian cancer when I was 53 and yet was always looking out for breast cancer. I had  seven chemotherapy treatments and a full hysterectomy. While I was being treated I was also checked for the Braca gene to see if it was hereditary. I was found to be positive for the gene and had an 85% chance of having breast cancer. I made the decision to have an elected double mastectomy . My daughters have both been tested and they also carry the Braca gene. They will in time have their ovaries and breasts removed. My daughters and I feel lucky to have had the chance to find out about this gene early enough to put an end to this horrible disease. New research shows that both the girls will have there eggs removed and only the good eggs not affected will be put back therefore the disease will be gone for any future family they will have. 

 

  • Hello "help" - I can't call you that!

    My familly has been a little more fortunate and a little unfortunate - I wondered about telling you our story but I think I have to.

    My wife also carried the BRCA1 gene - she lost he mother 30 years ago to it and lost 3 cousins - whilst it's not definately known to affect men her brother had cancer twice and was a carrier and another male cousin carrier died from it - so I'm not quite convinced there's enough research yet.

    Anyway because of this she had a full hysterectomy about 10 or so years ago, she decided against the masectomy opting for enhanced monitoring

    Then three and a half years ago she turned up with all the symptoms of ovarian cancer with massive amounts of ascites (fluid on the abdomen) which was malignant - all the symptoms of ovarian cancer but no ovaries.

    I did my homework on this and we went to the oncologist and came to the conclusion that she had primary peritoneal cancer.

    She responded quite well to Chemo but it was always a losing battle and she died of complications last October.

    In January we discovered that my daughter does not have the gene and we're still twisting arms to get my son tested.

    It would have been nice if Mel could have known that our daughter was clear as I'm sure you appreciate better than anyone here but as she wisely said to me "Dad, imagine if it had been positive".

    So I guess the moral of the story is that BRCA is a horrible sneaky gene defect and masectomies and hysterectomies are very wise but they are not a complete prevention there is a small chance of being as unlucky as Mel so you stil need to be vigilent.

    I'm really glad to hear though that there are now techniques for selecting good eggs I think yu have to be affected by this to know how important getting this gene out of the familly feels