lung cancer

Hi, im new to this forum.

Its 3.25 and as usual i cant sleep.

The sde effects from my radiaion treatment i finished a week ago are really kicking in now.

In august 2015 i was sent for a routine scan on my chest, my Rheumatoilagist wanted to up my meds, never heard anything for 2 months, then out of the blue got a phone call from my doctors surgery asking me to come up, after i asked a few questions realized they had found something on the scan, i had no symptons and did not feel ill. I went up immediately and was told i had a small 1.4cm mass or inflamation on my chest and i would be referred to a local  respatory consultant. To cut a long story short what with being sent to varies different hospitals for test  i waited over 6 months before finally been sent to mount vernon where by the time i had to go through all the test again, have been told its spread tp four places in the chest area and is now incureable, i cant have chemo for other medical reasons so my only hope is the radiation i have finished just over a week ago. I cant help feelng angry about my delay in treament  and in my opinion this delay will cost me my life

  • Hi there, that is just ridiculous the waiting time when I was diagnosed with liver cancer they had me on treatment not even 2 weeks after the diagnosis and the cancer wasn't even that fast growing there was no rush as it was slow growing. If I was in your situation I would of probably went absolutely nuts. I'm so sorry its incurable if they had done it within weeks you could possibly of went into remission but that's horrible makes me a bit angry like your self your quality of life could of been another 20-30 years  it wasn't for these unhelpful people.. I hope your feeling okay in a few days as I know how treatment can knock you down -Diane x             

  • Hi Diane1946 thanks for your reply and I am glad you are doing well.

    Feeling quite tried at the moment from recent radiotherapy and the meds  my oncologist as put me on,  seems strange writing this, this time lady year this would have been the last thing only mind.

    Yes still utterly fuming from the way I have been treated but it's the NHS you don't stand a chance against them if I thought I had a case against them then I would follow it up, but they all stick together never tell you anything, and they don't like it when you ask.

    Take care

  • If you think you have a case  - take it to court,  I suspect that nearly everyone here is here because of the investment of money and expertise and care of the free NHS which we are so privileged to be the receivers of.  Please - if you need more help, where are you going to go to?  NHS,  Please be supported with grace by the NHS and give appreciation rather than than anger.  If you believe you have experienced a true injustice - address it with the authorities - not with people who are struggling to deal with the nitty gritties of dying,  Sian

  • I have worked all my life and paid into this NHS so called FREE  system, therefore yes I do expect treatment NOT to have to beg for it and I certainly do NOT appreciate delays in treatment, inadequate test results which means I have to wait for another appointment  and indure more pain and undergo another op.

    Also I am probably not the only person on this site who is here today Because of delay, misdiagnosed, wrong inadequate treatment by the NHS.

    So yes I am angry.... and this site is here to air your anger, fears, emotions etc. So don't tell me to go elsewhere. 

    Also my heart goes out to the wonderful souls on this site who are bearing and fighting this evil disease. 

    If you don't like my tread DON'T read it and certainly do not reply negatively  when you know absolutely nothing about me or my situation or what I or my family are going through.

  • Thank you for your kind words Sue, I think once I have overcome my anger although in all honesty I do feel justified I will be able to post more about myself, my family my condition how I feel, without someone leaving negative replies x

  • WOW! Sian strikes again! I've seen another post where she was very rude to somebody. So uncalled for. You have every right to be angry. Take care

  • Just read Michelle totally agree so uncalled for and leave the negativity at the front door or don't come on at all hate People like that. Sian you should be ashamed of your self were a community, a community that helps one another when people have been knocked down we help them back up we do not knock them further down with rudeness  -Diane x

  • Hi ecw

    You are right that many cancer sufferers are in life threatening situations because of excessive delays in their diagnosis and subsequent treatment. I too am in this category, from a simple curable operation costing the NHS perhaps £700 to a not very good outlook and so far costing in the £10s of thousands. A stitch in time comes to mind. I dont intend to sue the NHS, it would only increase their insurance premiums, but I have been in correspondence with the hospital trying to give input from a patients point of view on how they could make improvements and save money. The delays seem to be wholly down to lack of funding. The NHS trusts also have to meet some very low waiting time standards set by government, a lot of damage can be caused in 62 days.

    If you do feel the need to sue your NHS trust most solicitors will give you an initial free 30 minute consultation in which they can advise you if your case is likely to be successful. 

    As to sian, cancer makes everyone cranky in different ways, so be forgiving. Kim

  • Kim agree 100% about the NHS. Sian is just being straight up rude and I'm sure she knows she is you can't be rude and ignorant by accident. Yes cancer makes people cranky but they come on here and be nice as there's others in that situation !!-Diane x

  • Hi thanks for your reply.

    No I don't intend to sue the NHS I'm just a small pebble in an already over crowded, under funded, over worked system.

    I'm sorry to hear of your predicament, does sound similar to mine.

    Mine is T2 N3 M0 Adenocarcinoma of the lung.

    Intent palliative symptom control, not for cure.

    As mentioned when they first diagnosed I had one tumor, found out just before I started radiotherapy I had four and was told by my oncologist it is not curable, also it is inoperable because of the position, I can't have chemo because after 20 years of taking meds for progressive deforming rheumatoid arthritis I found out my kidneys have been damaged and I would not be able to get rid of the chemo out of my body.

    Trying to stay positive for my families sake but deep down I am scared stiff.

    Thank you all for your positive comments and support.

    Take care xx