Hi there Di and welcome. I think everyone here can agree that waiting for test results and a definate diagnosis is in a way the hardest part of all this. As you say, once you know all the facts you can start to get on with it but this limbo stage is very difficult, your mind is going 24/7 with the ifs, buts and maybes. I am guessing you may have had an MRI or CT scan and that's what you are waiting for? If you do not already have a results date then I hope it comes through very soon for you and in the meantime, try to distract yourself in any way you can. Go out for walks, for meals or see friends, whatever will help makes the time go a bit quicker for you, much easier said than done I know!  Take care of yourself and do let us know how you get on.  Sue xx

Hi Sue. Thank you for your welcome. My initial diagnosis was confirmed after ultrasound and FNA taken showed cancer cells. A few biopsy's were taken that day too. This was to a lump I had felt in my (R). I went on to have a MRI 2 days later which found nodules and an enlarged lymph node in the same side which have now also had FNA cells taken. I had a stereotatic biopsy to the (L) under mammo guidance for calcifications they saw on the MRI to the (L). Apart from the first days FNA to the "obvious" lump showing cancer cells, I haven't had any more results as yet as been told these will all be discussed together at MDT meeting which here, is a Wednesday. Hoping all my results are through for this Wednesday, if not it will be the week after. The biopsys that were taken in the final tests were only on Wednesday this week past so hoping they do not hold up all the other tests that were taken earlier. 

I have been keeping myself busy with work as normal, cleaning and even weeding lol. I never do weeding! Just desperate to know which type of breast cancer it is, where all it is, if It has spread to lymph node etc. also if it will be surgery first or chemo etc........so many questions! 

New to the site so not sure how this all works but sure if I click on you, I might get a glimpse of your story. Interested in how other breast cancer sufferers are doing and how they are coping with the different treatments. 

Di x:)

Hi Di, fingers crossed for you that they have the answers asap, the waiting really is hell.. Am happy to try and help any way I can, either here or on Private Messaging. Take care and happy weeding!! Sue xx

Hi Di,

Hope you have managed to get more information this week for your treatment and what happens next.  The waiting is certainly the worst part at least when you have all the facts back you know what is coming next.

I am a newbie to the forum too since finding it at 3am last night when I couldn't sleep!  I recently had a mastectomy and reconstruction following three ops to try to save the breast so let me know if I can help!

Charlotte x

Hi Charlotte! I have an appointment tomorrow to discover the results of tests so far! Not sure I will get an idea of my treatment plan as some core biopsys need repeated to my good boob, bad boob is all concluded - they just need to tell me the results. Waiting for results is awful isn't it? 

I am actually hoping for a double mastectomy and full reconstruction asap, just want them both gone! Did you have a double or single? How are you feeling about having it done? What is happening now for you? xx

Hi Di, really hope you get your results tomorrow and more of an idea of what happens next.  It certainly is the worst part waiting I completely understand how you feel!

I was diagnosed in November after an op to have a small but painful lump removed in left boob.  None of my tests/biopsy showed any signs of cancer but my consultant agreed to remove it as it was painful.  After they found the cancer I then had to have second op to get a clear margin around the initial tumour which was 2 cm and have a lymph node biopsy.  Biopsy showed more cancer in the breast (DCIS) and one lymph node was cancerous out of the two removed.  Next op was to have lymph node clearance and another attempt at clear margin.  Results showed no more spread through the lymph nodes (I had 18 removed in all) but still had cancer left in my boob! 

I really didn't want chemo as my body is rubbish at taking any kind of drug and insurance company agreed to do the oncotype dx test which calculates how effective chemo is for you.  Luckily mine came back the chemo would only help by 1% so it wasn't worth having ( I am 39 so the oncologist initially said I would be mad not to have it!)  Having hormone therapy came out with a much higher chance of helping - so will start taking Tamoxifen soon for 10 years.  (This was just my feeling on chemo though I know others who see chemo as a really positive thing.)

My consultantant then recommended I have mastectomy to left boob (my right was clear) and he could do an immediate reconstruction. 

Sorry this info is all so long it has been a serious roller coaster over last three months!!

Now 5 days on from mastectomy and reconstruction - I had an implant with expander and tissue matrix .  Yes it's pretty sore and chest drains driving me crazy (bedtime is worse) but should recover more quickly than if I had the LD flap (this takes muscle from your back).

You are really brave to have the mastectomy straight away (if that is what you need) - my consultant thought it was worth trying to save the breast and I wasn't ready to have the mastectomy then - but it would have saved having all these ops and I would be better recovered by now.  But hey ho I have had fantastic care so can't really complain!!

Please let me know how you get on tomorrow xx

Good luck tomorrow Di, will be thinking of you....  Sue xx

Wow, what a journey Charlotte! So many operations! Crazy iniitally it was to remove a benign lump. Best wishes to you moving forward with the drug treatment xx

Thank you Sue, can't come quick enough....tick tock xx

Hi Di, I will be thinking about you tomorrow. Good luck. Audrey x