HELP!!

I had tonsil cancer two years ago - removed tonsils and then a lump appeared in my neck and it was cancer again then they surgically removed it in November last year and then after swelling went down another new cancer lump slightly down from the previous one - now I read that it goes to my lungs and Ill be dead in 9 months!!!!!!


They have not done the pet scan yet to se if it is in my lungs but they say more often than not it does go there!


I am going on chemo followed by radiation and possible neck disection again to remove it if its shrinks - any help would be welcome!!!!


Im stage 3 T2 N2 M0

  • I got results today and I have mets in my lungs and now I read this - you survived 6 years!

    My doctor said I have 6-9 months if it spread to my lungs and now I red people surving many years with mets to lungs!

  • I have several mets to my lungs got results today - Im scared they gave me 6-9 months to live but read many stories of people having it spread to lungs and still alive after many years!!

  • Really sorry you got a that diagnosis Kevin

    But yes people do defy the odds 

    One reason is that sadly a lot of people go about their daily lives and suddenly collapse only to go to A&E to be told that they have terminal cancer and die weeks or even days later - you hear thes stories often on the forum. These cases are included in a the statistics and push them down. Your age and fitness plays a part too.

    Are they going to treat you with radiotherapy or chemotherapy? A lot will probably depend on how well you respond to that.

    My wife did over a year more than her expectations and you've already met people doing even better.

    I wouldn't be throwing away those Christmas cards just yet!

  • Im sorry about your wife - how long did they give her and how long did she actually last?

  • Well the cancer she had 50% make 2 years from diagnosis but 25% make 5

    She made a bit over 3 - it was a genetic cancer and her mother died from the same thing almost exactly 30 years earlier she made 4

    Mel really wanted to beat that but I think she was lucky she was able to live a pretty normal life for all but the last 2-3 weeks when it finally got her and I think her mother's last year was more difficult and she'd have hated that.

    It's quality as much as quantity

     

    About a month ago we got the results back that my daughter does *not* have the gene - the cycle is broken!!!

    I wish Mel could have known that but my daughter wisely said imagine what she'd have felt if it had been positive!!

    I guess perhaps the only thing worse than having terminal cancer would be knowing you've passed it on to your kids!

    It really can be a wicked disease

  • I am so pleased your daughter tested negative! :)

  • Kevin,

    Try not to give in, hearing that news can be devastating. I'm now way past the time I was given, the estimates doctors give are averages and not very exact. If you have no complications or other illnesses, are physically fit and/or relatively young (the majority of people with cancer are old) you have a good chance of beating the odds.

     

    Good luck

    Dave

  • So sorry to hear your diagnosis! I hope you are one of the lucky ones and wish you lots of luck! There doesn't seem to be any rhyme or reason to who survives or not and for how long - some elderly people seem to beat it whilst young ones are taken.....I have known an equal amount across the board! But I can only say that all the time we are still breathing there is hope....so here's hoping! C.

  • If you go to cancer research uk 'asprin and cancer' I think you will find the information you need. At the moment as i understand it there is more evidence for benefit if you have gastro or bowel cancers....not so much lung or others. I also read that it's based on people taking asprin over many years. I'm sure a good consultant would talk you through all other options as sad to say what miracle cure seems to work for one there are many more it didn't work for. You are in a horrible position so i wish you lots of luck!

  • There are different types of cancer and different body organs tend to generate different types of tumour.

    In metastatic cancer cancerous cells from the primary move about the body and tend to concentrate and cause new tumours where they end. This is called metastasis and the tumors metastatic or mets for short There are certain sites where these mets tend to lodge, lungs, liver, brain tend to be favourites.

    So the cancer cells that form metastaic cancers in the lungs are likely to be different from those that initially form in the lungs as primaries and may respond differently to different treatment, they might behave differently being more or less aggressive etc.

    That's my understanding - the nurses might be able to give you a better explanation

    If you're going to ask me whether that means the mets in your lungs are therefore more or less aggressive than if they were primary lung cancer then I think you'd probably need to add that to your list of questions for when you next see your oncologist.

    Hope that helps a bit