So upset

 

I cannot believe this is happening. My dad was first seen in November after urgent referral by GP.

He was told it was lung cancer. So one test at a time week after week. He was told on the 2nd Jan it was officially lung cancer. Each time we speak to someone it's a different prognosis. We are up and down every other day. He went for surgery Friday but was told he had a heart attackand m Get not cope without a lung  nothing was mentioned in his pre op  now they want to look at lung to see how far it's spread. Well they cancelled it and sent him home to return in 2 weeks  this whole process has been disgusting  he received a letter staying 30% max he will hit 5 years but this supposed surgery should be curative  we are so confused! We are so scared all this time will lead to it spreading more and I want to know who I can contact as I want to know who is responsible if it's spread due to their delay

 

 

 

 

  • Hi Emily, 

    so sorry to hear about your dad's diagnosis. I know it can sometimes be frustrating when you cannot get a straight answer from the doctors and you leave more confused than when you turned up. My partner's Mum had lots of visits to and from different doctors and hospitals in the early stages of her diagnosis. The main thing to remember is, even though you are angry, you shouldn't be focusing on who may be responsible if things have gotten worse. Doctors and Nurses do try their hardest to give the best care but unfortunately are very short staffed a lot of the time. The main thing I would suggest is for you, your father and anyone else who has concerns to write them all down to bring up on his next appointment. Then make sure you also take notes on what information they give you so you can all go home and read through it together. It's sometimes a good idea for someone else to go to the appointment, someone that isn't family but someone you can all trust as they will be less emotional and may pick up on things that you haven't. The more ears, the better. 
    I know it's easy to be angry but just be there for your Dad and make sure you are all prepped for his next appointment and make it known that the whole process has been very confusing for you all. They will do their very best to make things clearer for you. 

    All the best to you and your family x