You will find a discussion thread here which I hope you will find helpful.
You will see that the nurses have posted some useful links to information and organisations on the thread.
I have moved the discussion you have started here to our Introduce Yourself section.
You have done the right thing in giving it a clear label so anyone else looking to speak to someone with the same condition will be able to find it easily.
A list of all discussions you start or reply to can be found on your profile page, you can get to this by clicking your username outlined in blue to the left of these posts.
