Impact of chemoradiation for anal cancer

My treatment finished several months ago and I got the all-clear. So treatment has been a success. I haven't however, felt prepared for the after-effects and feel that very little is said about how the delicate organs/tissue in the pelvic area are affected. Does anyone here know of good sources of information and support, or have personal experience? All the information i find is very general. There's also a tendency for information sites to make light of the physical and psychological impact. I understand that its important not to scare people, but an unintended consequence can be that people like me feel isolated and angry about the lack of acknowledgement. I won't go into detail here, but i find the changes shocking and upsetting. Pain continues, too. My life is back to reasonable normal in very many ways (I go to the gym and am gradually building up some strength and fitness again), so there is much to feel very positive about, but I do feel a lack of connection with anyone who really understands of cares.  How long does sudden tiredness/fatigue go on for? Does fecal incontinence persist long-term. Can anything be done to improve urgency (to wee/poo). (I'd like to hear from someone who's lived it and improved there health and wellbeing over time, and to hear how.  Thanks for listening!

 

  • Hi midlifemama

    Sorry that you are feeling isolated and angry about some of the treatment side effects.

    We have some information here which you might find helpful.

    I hope our friendly members will be along to introduce themselves shortly, as I'm sure what you are saying here will resonate with many.

    Also don't forget that you can call our nurses for advice. You can contact them on freephone: 0808 800 4040 from Monday to Friday, 9am to 5pm.

    Well done for getting back to the gym to build up your fitness again.

    Best wishes

    Jane