Non Hodgkin's lymphoma

I had a high grade lymphoma & low grade lymphoma in 2013 , they are in remission, but the doctor said that I could have two or eieight years , I worry all the time I can not sleep , I have tinnitus & peripheral neuropathy  as side affects of chemo treatment, I all so had hyperacusis before the cancer. & now I have to go in ever two weeks to have blood taken from me because I have iron over load , I would just like to talk to people in the same boat as me because I feel so alone & some times I think I am going crazy , family don't understand & think that I am doing so much better, Wendy 56 

  • Hi Wendy

    Cor - I understand the feeling of going mad through worry - but I do not understand the complexity/complexities of your condition.  I think that there might be a key here as I got so frustrated that people didn't understand what having half a lung removed meant - I got angry and resentful and insular and sad.  Eventually, I learnt that others didn't need to know how bad it was/is for me - just appreciate the contact with the people whom I chose to share time/phone calls/mail with.  I carry my own fears and I deal with my own pain - cannot expect anyone else to understand exactly how it feels - do you agree?  How do you think you can connect with your loved ones so they can give you the support and love which you want?  Or do you see a different path which can get you to a place where you want to be?