Terrible sense of guilt over my husband's diagnosis

Hello everyone, I have just found this forum today and had a look around a few topics and threads and I am pleased to have found a place where I can chat with people who are going through similar things, albeit not very nice things :(

My husband is has only just been diagnosed with colon cancer. This is very early diagnosis stage and we are now waiting for further tests to see how far it has spread. It's come out of the blue, after he passed out in town and routine tests at A&E, although if I'm going to be honest I knew something wasn't right as he has lost an awful lot of weight and was very drained of energy and off his food. But he just doesn't "do doctors" and it even was a struggle to convince him to let the ambulance take him to A&E following his collapse.

I am trying to stay positive for the time being, at least until we get more information on his exact condition and at what stage he is. But I feel incredibly guilty and it's litterally eating at me... I know from reading posts on here that many people feel guilty but I actually feel like I've been an awful wife and it's some kind of punishment.

I have been with Andy since 1999 and we married in 2005. He is older than me as I am 38 and he is 62 today (it's his birthday today). While everything was great in 1999, the age different started taking its toll after a few years and in 2010 I left him. He was totally devastated and it broke my heart to see him so hurt. A year later we got back together as I realised how much I loved him but never got over the hurt I caused. Since, like every couple we've had ups and downs but lately I felt like a "prisoner" in our relationship as he wouldn't do anything and he has never been very "social" so we don't have any friends and my family is abroad so I started to think stupid things like "I'd be better off without him" kind of things... Of course his condition can't have helped (he has anaemia caused by the cancer) but I didn't know that then.

And  now, this! I felt this utter terror on Saturday when he collapsed and I am now so worried! What is going to happen, will he be ok? I can't stand the idea of him being worried or suffering. And then I think what would I do without him? Oh, wait, what will "I" do without him? So here I am thinking about myself again, when HE is the one who is poorly? So here I go, more guilt....

I feel terrible for all the hurt I caused him and then start to think did all the stress I caused in 2010 somehow caused some kind of trigger for this?  

Sorry for this very long post, I just needed to say this, let it out. I am sick with worry until we get the full results of how far this has got.

Thanks for listening, best wishes to everyone. 

  • Welcome Froggy and happy birthday Andy - sorry you find yourselves on here

    Look let's start with the obvious unless you've been granted some evil superpower - you didn't cause this - end of story.

    We all have billions of cells in our bodies and they divide on a regular basis to keep renewing our bodies. Thing is they do a pretty poor job of it and very often there are mistakes in the resulting DNA - its what drives the mutations that evolution works on. These mistakes can cause cancers and our bodies have a number of clever ways of detecting and killing cancers. Thing is, they may be clever but they're not perfect and as we get older they aren't as good at it as they once were which is one reason that you're more prone to cancers as you get older.

    Yes there are lots of things that can give you cancer like chemicals and stress can increase your risk a bit but the underlying reason that Andy got this cancer is that he got unlucky and his body wasn't up to dealing with this cancer in time.

    Not your fault

    Yes he could have gone to the doctor earlier but he's a big boy and that's not your fault either - it is also not a given that if he'd gone with the earlier symptoms that they would have spotted the condition either it can be pretty hard to tell between the many aches and pains that people go to their doctors with and spotting the few that are actually early stage cancer.

    Sounds to me that you've had a few challenges in your relationship and you feel guilty about some of those leaving him, probably some cross words more recently - most of us have these. What you're now doing is linking that guilt to the cancer and inflating it

    No No No - you will put yourself in the bed next to him if you go down that route

    I'm not going to tell you you shouldn't feel guilty about anything - I don't know you well enough for that - I will tell you you didn't cause his cancer.

    But you need to be strong now, he's going to need you. There may be chemotherapy (not as bad as it sounds) or surgery or other treatment and he'll need your support for that - and if you're strong and you help him through that to whatever end result it is then I don't think you'll ever have any cause to feel guilty

    One last tip. Often people get very caught up in the what will I do without this person in my life. I know I did for a while but it leads you into grieving before the person has died and that just increases the pain you feel and its obviously hard for them so just try to think a week at a time , a day at a time - if it is bad news you'll have plenty of time for that later and there's not much you can do now to prepare for that.

  • Hello Graham, many thanks for the welcome and for your reply and kind words.

    You are right, I know, and at the moment we are both trying to keep positive until we know more about the extent of his illness, hopefully early February. This waiting game is so hard to cope with! They need to establish if the tumour has spread and if so , how far. The MRI will tell us if it has spread to the liver as the CT scan's image wasn't very clear.

    And you are also right that I guess what was done before is done, and what is important now is to be here for him regardless of what happens and support him as best I can. He is terrified but he is no very good at letting his feelings show and he is keeping it all inside at the moment so we don't worry (his step-dad and me). I will be with him every steps of the way, for sure! 

    Thanks again for your support, it did help a little. I will try not to think too far ahead and concentrate on today instead. 

    All the best.

     

  • Hi Froggy,

    I'm so sorry to hear about your husband's problems and hope the diagnosis is better than you fear when you get the next set of results. I have foundf that waiting for them is about the worst part of this experience.

    Graham is right, unless you did something drastic like slipping some Polonium into his tea, there is absolutely no way any of this could be down to you!

    Cancer is a bit like a terrible lottery and, like a lottery win, nice people have just as much chance of developing cancer as nasty people do. So much of it is down to pure bad luck.

    Good luck with the results!
    Dave

     

  • Hello Dave

    Thank you for your message and for taking the time to reply. 

    It's true that having to wait for more information is difficult.... We have only just started our journey (just over a week since Andy's collapse) and we have to wait another week for his MRI and colonoscopy, then more wait for the results... This weekend hasn't been very good with Andy being very very tired and hardly moving at all :( He was also sick tonight, I can't wait for these tests so we know what we are really dealing with and so that they can start giving him some kind of relief. He is one of these people who suffer in silence and he won't tell me how he really feels even if I can see from his face that he is in pain and very scared.

    We just have to wait though.

    I have read your "about me" page, fingers crossed it continues to go well for you! 

    All the best

    Christelle