mixiod lippo sarcoma

In april 2015 my daughter was diagnosed with mixoid lippo sarcoma in her vastus lateralis on her right thigh

in june she had 30 sessions of radiotherapy then a short break before surgery on october 8th Where they removed

the whole of the vastus lateralis and tumour 11cm x 8cm  she was in hospital for 3days then back home

she attends pyhsio once a week and exersizes eery day and now the infection she got in the wound has healed

she swims every day But is finding it difficult to bend her knee she as gone from ending her leg from 25 deg to 60 deg but still cannot drive or ride her bike she as been told that she will always have the limp Some say her shark bite leg will in time fill out some say it wont  these she is not worried

about What is bothering her is how long did other people with her problem take to rehabilatate

Would be gratefull to hear from any one who has been in this situation and welcome any advice please

  • Hi sandrah

    We have some information on sarcoma here.

    Towards the end you will see a sarcoma organisation list where I hope you will be able to find some of the answers to the questions you are asking on behalf of your daughter.

    Don't forget too that you can call our nurses for information. You can contact the team on: 0808 800 4040 from Monday to Friday, 9am to 5pm.

    Best wishes

    Jane