They say I'm not going crazy

I find it difficult to talk about 'it'.. I can't seem to talk to anyone too deeply just yet. Talk on the surface and it's not really me I'm talking about,  Its like gossiping in the office.. I've had lots of support from nurses and offers to chat, but I just can't bring myself to hit it face on. Ever time I speak I burst into tears, each time feels like I've just been diagnosed again and again .. . This is difficult,  just trying to type this!  But here goes.. I'm 56 and last week had my last radiotherapy session out of fifteen. I was diagnosed with breast cancer in August this year.  I have had the cancer successfully removed  but now I've been told I'm HER2positive.  The whole situation just tumbled me so fast, one minute all I worried about was what to have for dinner and now I'm in another life!  Side effects of radiotherapy and tablets are so aggressive which isnt helping, bringing me to an all time low.. But I hide it well, but my partner knows different and quite often gets the sticky end. I love him so much, he has been my rock and my shield, but unfortunately I sometimes use him as my battering ram.. I should be ashamed......

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    My dear LL ... no no, you shouldnt be ashamed at all - you are a person whose life has been turned upside down in a matter of minutes and had some pretty gruelling treatment and is facing the 'C' word.  I have been doing this for a few years now - like you I have HER2 - and I too cope by talking about it like it is all happening to my imaginary twin sister!  Its how I cope, and looks like its how you are coping too!

    Now that you know what type of cancer you have, I suspect you will be given Herceptin as part of your treatment. I have been on it for about 44 months now and it gives me no side-effects so please dont panic about it.  It works well!

    You have a lot of things to come to terms with just now and I think if you can reassure your partner of how much you love and need him and apologise for taking your fears out on him, things will get easier. Remember that he will be feeling the same and pretty useless to know how on earth to help you.  Talking is a MUST and its often very difficult to do.  Please just be open and honest with him and ask him to be the same.

    You are definitely not going crazy - and if you are - then so am I and many others on this site.  Keep in touch x

  • I think we all feel like you do from time to time. Our nearest and dearest often get the brunt of it.

    Don't worry about being HER positive. Ironically, I was disappointed to be told I was HER negative as that meant there was no point in me going onto Herceptin ruling out an inportant and effective treatment.

     

    Best wishes
    Dave

     

  • Thank you Max56. I've always been the kind of person to be in control, but this., at the moment, has beaten me. I love you're strength and outlook. Is paranoia a symptom too ?  So many feelings going on here ! No Herceptin, can not have without chemotherapy, apparently, but on Letrozole. Was on Tamoxifen, but I've come out in an itchy rash all over and have terrible stiffness in my back.  Thank you for your kind support x

  • Hello Dave, thank you for taking the time to ease my mind. No Herceptin for me either as I didn't have chemotherapy. Sorry you missed out on this treatment as well. I am an ' inbetweeny' and chemo wouldn't have been a benefit to me. I'm still struggling to understand it all !  Best wishes and I hope you keep that strength I long for x