Hi all - I am new to this site, not sure if it will be helpful but, prepared to give it a go;
3 years ago I was told that there was a very low count, about 1% in my Prostate. Usual tests were taken and is was monitored for about a year. Suddenly no more contact with the team, endless phone calls got no response. This went on for about 2 years. I ended contacting my local MP, she rallied the local hospital and an investigation was done and reported back that I continously changed my address so to them it was difficult for them to contact me. I asked my MP to protest this as I had lived at this address for 6 years. Another investigation revealed that it was a computer error. Now,because this has not been monitored as it should have been, a recent scan now shows that it has spread, hopefully still localised. They are suggesting now high dosage radiation. This should not have happened. For 3 weeks I have known this. I have gone to hell and back with no one to talk to about it. The 25th September 2015 is the date of the discussion of how they will treat with options.
It is still a very lonely world, not helped by living on your own. No one seems to want to know, they have their own fears, I understand that.
The lack of human contact makes the whole experience worse. I have even considered suicide, this is still my wild-card.
You are told that you will never be alone with cancer - this flippant statement is so wrong, it gives people some hope, I have contacted 2 support organisations but all I get is printed bits of paper, you do not get people to talk to, which is all we need.
As a person, I am strong and will somehow survive this. To the weak, this must be so hard for you
Spercial blessings to you all