Prostate Cancer

Hi all - I am new to this site, not sure if it will be helpful but, prepared to give it a go;

3 years ago I was told that there was a very low count, about 1% in my Prostate. Usual tests were taken and is was monitored for about a year. Suddenly no more contact with the team, endless phone calls got no response. This went on for about 2 years. I ended contacting my local MP, she rallied the local hospital and an investigation was done and reported back that I continously changed my address so to them it was difficult for them to contact me. I asked my MP to protest this as I had lived at this address for 6 years. Another investigation revealed that it was a computer error. Now,because this has not been monitored as it should have been, a recent scan now shows that it has spread, hopefully still localised. They are suggesting now high dosage radiation. This should not have happened. For 3 weeks I have known this. I have gone to hell and back with no one to talk to about it. The 25th September 2015 is the date of the discussion of how they will treat with options.

It is still a very lonely world, not helped by living on your own. No one seems to want to know, they have their own fears, I understand that.

The lack of human contact makes the whole experience worse. I have even considered suicide, this is still my wild-card.

You are told that you will never be alone with cancer - this flippant statement is so wrong, it gives people some hope, I have contacted 2 support organisations but all I get is printed bits of paper, you do not get people to talk to, which is all we need.

As a person, I am strong and will somehow survive this. To the weak, this must be so hard for you

 

Spercial blessings to you all

 

  • Hi Paul,

    I am so sorry to read about the lack of service you have recieved which is exactly the opposite to my experiance. I could not fault any single part of the treatment/ service for my prostate cancer six years ago. please dont worry yourself; I know its far easier said than done but I hope you can take heart from my story.

    I was diagnosed with a psa of 70 which is quite high and a gleeson score of 3+3=6. Luckily for me the cancer was still contained within the prostate capsule. So I was put on hormone therapy for two years and in the first few months my psa came right down. When I started my 37 radiotherapy treatments it was only 3.18 and a few weeks after finshing my radiotherapy, it was only 0.01, the lowest they can measure. I finished all my treatment about four years ago and my psa is still only 0.87. For someone of my age it should be between 3.5 to 4.5 so it is still very low.

    Sure I have had one or two side effects mainly from the hormone therapy like hot flushes but I regard it as a small price to pay for treatment that has probably saved my life. So Paul, my experiance just goes to show there is hope when things look black. If I can help by answering ay questions you have, I will do my best to answer them for you.

    Take care, best wishes, Brian.


  • Hi Paulm,
     
    I’m sorry to hear how difficult the last three weeks, in particular, have been for you. You’ve come to the right place to talk to people going through similar experiences, and to get some good, sound support. Many of our members will be all too familiar with the emotions that you describe, and it can really help to know you’re not alone in this.
     
    I can see woodworm has already responded, and hopefully others will be along soon to say hello, too. In the meantime, if you’d also like to talk to someone on the phone, please don’t hesitate to ring our nurses on this free number: 0808 800 4040. They’re here from 9am to 5pm, Monday to Friday.
     
    Please do feel free to continue to post here; we’re very glad to welcome you aboard.
     
    Take care,

    Jane