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emps89
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Hi my name is Emma and I am 25 years old.

A bit about me

5 years ago I was diagnosed with a benign meningioma behind the left eye! Which over the last few years I have slowly lost the vision in my left eye but have just got on not letting it stop me.

In July I went for a regular check up which was when I was told the tumour was showing signs of moving to my right eye. I was shocked ... I was told as the operation 2years ago had made no difference to the left eye that the only treatment was radiotherapy which again shocked me and made me feel so scared about everything. My consultant referred me to see a radiotherapist at St thomas' which I had the appointment for on Thurs 3rd Sept. 

The radiotherapist made me feel a little clearer 

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    Hi, Emma,  and welcome.  I am so sorry that you are having such awful problems with your eyes.  Have they decided on a treatment plan for you or given you a prognosis?    Once you know what is happening I think you begin to feel a little better.  Have they given you a date to start radiotherapy?  Please, do get back to us and let us know how you are.  With my very best wishes to you, Emma.

  • Offline in reply to Pauline4

    The radiotherapist, my eye consultant and the surgeon who did the op 2years ago are going to be having a talk and between them decide whether it's OK to leave a little longer and monitor or it needs to be done asap as it's all about timing because the radiotherapy can only be used once to treat the area.

    The radiotherapist did say it had a high success rate but also due to the sight I have lost its unlikely i will get any back. It's a 6 week course of

  • Offline in reply to emps89

    Emma, I think I would write down any questions you can think of before your next appointment.  We all think we will remember what to ask but when the time comes our mind is empty.  You will need to understand what it is you feel will be best for you.  Let us know the outcome of your meeting, and I hope all goes well.

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