I'm hanging in there. I have had to come off chemo as I developed an infection so my immune system had to be built up, not blasted by chemo. My boyfriend had to inject me daily (I can't inject myself) with a drug to boost bone marrow/white blood cell production. I finished that treatment on Saturday and now wait for new blood tests (today) and I should go back on chemo on Friday. So I have a week of no drugs which is great, my body gets to rest and heal and it's doing some bizarre things but mostly I'm just really tired.

I always ask the ultrasound technician if I can watch their screen. Some are good at explaining what's going on and some, because they are usually technicians and not doctors are cagey and will tell you things that mean nothing, because they would rather interpret the images for the doctor to explain to you. I do know that colour in an ultrasound means movement - blood flow, etc and is usually healthy (for example, there is colour on my good kidney, but my dead one is just a very dark grey with darker blobs - no oxygen in it).

I'm not sure what you mean by having "symptoms of the cup" but the one positive is that if they are taking this long, they're probably not very worried about you and you're not at high risk.

Thank you are so much help. I hope you are feeling better. I might be wrong but doesnt the cup have different symptoms? Than other cancers? I know i might be moving ahead of myself. But thanks for taking the time to reply.

Symptoms of CUP vary greatly by the very nature of the disease - it's unknown! 

I had no symptoms. I was being treated for a liver infection and separately for a frozen shoulder. It was only when liver biopsy results were 95% pointing to infection but with a small question mark over them that further tests were done and it revealed cancer. I knew I was quite ill but cancer never came into my head as a possibility.

Then my shoulder was scanned and it was revealed to be a tumour causing the pain and immobility, not a muscular issue at all.

Symptoms can vary depending on which organs are affected - i.e. Where the cancer has spread to.

I go back on my chemo on Friday following a break to rest my body and rebuild my immune system. I am also going to meet my palliative care team soon who are going to take over my pain management programme so it's been an interesting day today.

I didn't have night sweats or chills. As I have said before I had no symptoms other than pain in my abdomen and shoulder, which I have already mentioned.

On chemo I suffer some of the side effects the drugs can cause but I am strong and don't suffer as badly as some. Even pain - I take a lot less medication than my oncologist thinks I should be on given that my liver is a "mess" (her words).

If you want to read about chemo there is stuff on my blog about it (www.shelleycook.co.uk) but I think you need to relax and not think about your situation too much. You may have a long wait still and you will drive yourself mad if you continue..

Hello was just checking in on you. Did you start you new treatment today? Hope everything went well.

It's four months today since my diagnosis. Amazing to think it's only 4 months, feels like four years. And four days on from chemo I'm hanging in there through the worst of the initial reaction - my body rebelling against the "poison". I get very shaky, but not in a hangover kind of all over shaky way, it's more like every cell inside my body is hyperactive, trying to shake off the chemo poison. As a result I feel like a wobbly jelly. Morphine usually helps settle things down a bit and I was just getting to that stage when my cat ran out into the road and got hit by a car. He's intact outwardly but at the vets for observation and investigation of internal injuries. What a day, an absolutely *** day.

Aww man that sucks. Hows your kitty that sucks even more. Thats how i get when i push myself to much during the day. I feel ugly shaky inside. So i cant even imagine how you feel. Hang in there. 

Hi how you doing? Wishing you the best.

Hello Stage4cup  Was diagnosed last week with bowel and liver cancer. Just waiting for biopsy report to get started with chemo. You sound very brave and have by what you say, been coping with it all. I think I will be better when I get my treatment started as it will give me something to focus on.I feel very confused and out of control ,have you any coping strategies you could pass on?