found lump,trying to control fear of recurrence.any advice?

hi, just found this forum and not entirely sure how this works.  up till now ive been pretty resistant to talking about things or looking for help.  i was diagnosed with stage three breast cancer when i was 25-  6 months chemo, 12 months herceptin, mastectomy, reconstruction, radiotherapy, tamoxiphen and 4 other ops later im well and outwardly pretty normal.  i managed to cover most of the treatment and work through most of it, started a relationship and generally felt like a badass.  now im 'over it' ive had a few false alarms (pain and bumps) and cant seem to get over feeling like i should be bracing myself for the next round.  i try not to think about it and dont dwell on the past but for the first time in my life im scared about my future. ive found another lump on my healthy side and am trying to concentrate on the facts-im healthy, false alarms the last 4 times, tamoxiphen is doing what it should and this is probably my body is just reacting from all the wierdness its been through.  trouble is i cant tell anyone because i cant worry them or be a source of sadness again but squishing this vague sense of panic is beginning to make me miserable.i dont want to be ungrateful at a time when i should be remembering how lucky i am and i want to help show other younger patients that you can be pleased with surgical results and lead a good life after something like this but im coming a bit short so far. any advice?  do others feel like this too?  bit lonely, thankyou for any response...

  • feeling anxious about whats in store.hoping someone can chat.  feeling lonelyx

  • Hi,

    Really sorry you are feeling like this, but  think I can understand.  I had breast cancer with lymp nodes affected a few years ago.  Life after treatment can be unsettling, you panic with every lump. bump and pain you have, but I think most people feel like this.  I have recently had some other illness, and my doctor looked at me and said don't worry this is not connected with breast cancer - I think he understood that I would think this.  Have you talked to the breast care nurse about how you feel, as they can offer help.  I am sure that they have experienced women feeling like this before.  It is a lonely place to be, but please try and talk to people about this. 

    Please keep posting on this site, it can help you, and there are a lot of very supportive people on here.

    Take care

     

  • thankyou pebbles.  really appreciate any reassurance although im sorry youve had to contend with other health problems.  i dont have a breast care nurse.  i was in a test group and then underwent a new kind of reconstruction so im closer to my surgeon than any one else and all my care was handed to him.hes incredible and i have every confidence in him and his skill but i dont really have anyone to talk to. one of the others on the trial was in contact but she passed away and i used to wonder about discussing things with my uncle but his cancer has returned and is very sick.  i think i need to hear some good stories.  do feel silly because i should be happy and counting my blessings but i find my self in fight or flight mode regularly.  thankyou for replying, its really good to hear from someone and i hope that this finds you happy and well.  youre a little further down the track by the sounds of things.  do you mind me asking whether you find yourself less proccupied about reccurence as time goes on? x

  • It has been over two and a half years since diagnosis, and yes it has got better.  I am now back at work full-time working with young people with complex needs.  My life is very busy now, with four grandchildren and a full time job. I found I was very positive during treatment, but after treatment it took me a bit to adjust.  It is strange really, that during treatment I needed little support, but after treatment I felt I had to acknowledge what I had been through.  This is where this site has helped.  Dont you think it is true that time is a great healer?

    I have several friends who have gone through the same as me, but are a few years further on, and they say that it does get easier.  I am sure it does.

    Take care

  • thats exactly what i needed.  and i think we've shared the same experience in terms of mentality. i worked throughout chemo and radiotherapy and felt positive throughout partly because i was lucky enough to be surrounded by friends my own age who have no idea about the details and so didn't ever get depressed.  its only been after treatment that ive felt frightened and although hospital's a total time and stimulation vaccum, i was reassured that whatever was happening internally i was being proactive in sorting it out and closely monitored.  maybe ive lost my stabilising wheels.  anyway its lovely to hear about people like yourself and it does make me feel better so thankyou.  be well and im sure ill see you pop up on this againx