Hi Pete!

i had a chordoma and have been treated for it, my treatment finished about a month ago.

having had 3 major surgeries to try remove the tumor my surgeon couldn't do it and I finally was referred to another surgeon and he took all of it out in one go.

 Before I was referred again and again to protons but they wouldn't accept me simply because my surgeon wouldn't remove it.

but in the time these surgeries happened and me finding a new surgeon. The proton beam centre in Manchester opened and once I had my finally surgery with a new surgeon. I was off to Manchester to protons otherwise I would be going to Florida like you.

hope everything's going well, the 5 year caution zone has probably ended for you now with scans.

would love to know your story as it's pretty rare that we see people with chordoma.

as I say, we are one in a million, and that's on science

best wishes x