As the others have said, welcome to the forum and best of luck for Monday.
I also wanted to let you know that you have come to the right place if you ever needed to talk to others who had or currently have tongue cancer. We have an extremely active tongue cancer thread (45 pages long!) and they are all lovely people in there. You can look at this thread here and feel free to respond or ask any questions you may have there.
Keep us updated on Monday on how the appointment goes! We are keeping everything crossed for you.
So things have moved on a bit, I have had all the scans and the biopsy.
The result is one large tumer at the back of my toungue, one on each of the Lymph glands.
The good news is they have stayed local and not spread, if they had gone to my chest they would only have offered pallative care. They have decided not to operate, it is a very aggresive cancer so they are going to be aggressive with it( they keep hammering this point home at every meeting two of three times) so two different types of Chemo over four cycles and six weeks of RT.
Everything is a bit rushed now as they are struggling to get all the other stuff done before Chemo starts.
I was told I had to have five teeth out under G A, so getting ready to go down sitting on bed in a gown and they are worried it is so close to Chemo, when in they come and ask for permission to do a Trachy if the have problems, then they come back and say Trachy needs to be done before so they will need to get someone to do it. Next thing in they come and say it is all off as they have looked at the latest scans and E N T say no to all of it as it has grown. So there I am all dressed up and no Ball to go to,
Don't know how they are going to fit my Peg on the 30th.
I feel after getting the news about no surgery that I have got away very lightly as that was my biggest fear and my heart goes out to all those others that have to face it, good luck and keep chatting.
NB. They gave me an injection before the surgery that never happened to stop my saliva, so for the next twelve hours I had an insight into what is about to come once RT starts,(they do not expextmy saliva glands to recover) I have to say it was CRAP!
Sorry to hear about your diagnosis, but you nowknow what you are facing
I'm now 8 months out of throat/ tongue based cancer and there are many of us on here (Guzzle Nicola Simon and Irene) who have all gone through the same treatment you are about to go through.
We each go through this same process differently but the process you are about to enter id a difficult one, but you will get there, I an many others are proff of that.
I wrote an indepth blog about each part of my process which might be of help to you it also talk about the PEG along with many other things ... i hope if you choose to read it that its of help and interest to you
gammaraygary.wordpress.com/abaout/
please feel free to ask anything as preparation education and awareness is half the battle hear the rest is down to a great support network at home and bloody minded strength
I wish you all the very best with your treatment. It will be tough, but lots of people out there are cancer survivors, and you would never guess because they look just like everyone else, and the things other people do.
You will be in my thoughts and prayers. (If you don't like the prayer thing just let me know.)
