Now it's my turn.

So I don't really know what to say.  I'm typing as I think...

I'm so like my dad, and so close to him.  He is a very much man about the house, perfectionist, DIY enthuiast and been married to mum for over 45 years.  They've looked after me from day 1 like no other parents, always looking out for me, had absolute kindness for each other, and I've never seen them argue in the 32 years I've known them.  The four of us, including my brother, were and still are a tightly bonded family.

Where as in the past the thought of losing my dad seemed decades away, as time went on, we've all aged, and more and more, I felt time is running out constantly.  I've stupidly ended up living 75 miles away from them with friends, my job is even further away, and so I have to time share my time with my famliy, when I can visit the odd weekend.  Although I have a good job, I'm independent, I'm secure, I don't feel like I've really done much with my life at all, no kids, and I've not fulfilled my ambitions (which no doubt would've involved my dad).

As time passed, there have been some role reversals, I'm no longer in the back seat of dads car drifting to sleep on the way back from somewhere, as now whenever I'm in car it's always me in the drivers seat (when driving back from a break, everyone else sleeps, it is my job to get people home safely).  I am now a DIY enthuiast myself, have my own suite of tools, I am a perfectionist, I have taken on the things he used to do.  Before he carried the heavy things without a moments thought, but the other weekend there was a moment when a pile of stuff was on the floor between us to be loaded into my car, we both stood up and paused in silence, for a moment I was wondering what he was waiting for.  But then I realised that,things aren't what they used to be, for the first time he stopped himself, as I bent down to pick up the items, hurting inside at how things had changed.  It was now me looking out for him.

Each time I visited, new things started to go wrong, he lost his sense of smell, he became forgetful and last year I had the trauma of waking up one morning to hear him wheezing for breath before collapsing on the floor.  I froze before walking into where he was, he's face was lifeless my insides became cold and vacant and I had the painful expereince of phoning for an amblance, for my own dad!  My voice was breaking all over on the phone, I was shaking.  The image of him collapsed on the floor haunts me always.  He came around in the ambulance, and eventually recovered (kidney stones), but from then on I was forever worried about how long I had lef.

Now to 4-5 weeks ago I found out he was going for a scan.  I thought, no, what is it this time, please.  He had what seemed to be a chest infection, they thought it was asthma creeping in.  The next weekend I visited (3 weeks ago), I asked how the scan went to which my Mum's face changed, saying it's not good, she would tell me later.  She wasn't going to tell me until next day when my brother would also be home.  But as I asked, that evening she sat down and told me they found fluid on his lung, and abnormalities.  He was booked in for a biopsy (2 weeks ago).  For the remainder of the weekend I wasn't able to focus on anything, I just procrastinated and unintentionally occupied my mind with thoughts that time was running out faster than I thought.  Sunday evenin and it was time to go back home, and once in the car I cried almost all the 75 miles back to my home, and for several days after upset myself over the thought that I might be losing my dad, my mentor, who did absolutely anything for me without question.  As the days got lighter I wondered would he be here this summer, how many more visits home would I have before he wouldn't be there, is he going to be here for his birthday? for christmas? or will there be an empty space were he usually sits.  It breaks my heart just thinking of going through christmas without him.  Even one day when my house mate came home with strawberry seeds, a new interest since my parents started growing their own stuff, my face sunk when I thought about the flowers out growing my dad.

On the day of the biopsy I checked my phone every 5 minutes while at work, checked my personal emails.  I couldn't wait any longer, pulled over on the way home from work, and phoned home that evening to check how it went.  The biopsy went absolutely fine.  At least that bit is over, just had to await the results.

Today, I've arrived back home to visit my parents for Mothers day.  His cough even worse, stronger wheezing, barely speaking a few paragraphs before his shortness of breath puts him into a brief coughing fit.  I didn't know if the biopsy results had come through yet, but I couldn't wait any longer.  I knew mum kept a daily diary, and as soon as I could when alone I looked inside, and turned to see on Thursday the entry "[my dad] has lung cancer."

In private I struggle to keep it together, I await mum to tell me in person all evening, but I guess she is waiting to tell both me and my brother when he is here tomorrow.  Even though I already know, I'm dreading to hear the words being spoken.  Today I stayed with mum and dad at the dinner table even longer than usual.  I try to sneak in the odd glance at my dad, I guess to fill up my head with as many images of him in my mind, or make the most of seeing him still alive. What seemed decades now seems months / weeks.  I then look at mum, and see the worry in her face, I can't even imagine how she feels, and what she's going to do without him there.  We talk about alsorts at the table, they're trying to keep a brave face about something deep that they think I don't know about yet, whilst I try to avoid mentioning anything relating to future plans.

I don't know what stage the cancer is, and I hate myself for already thinking the worst, like he has already gone, but I just can't stop the endless thoughts of living a life without him there, and thinking of all the things in the future not knowing if he is going to be there for them.

I feel like there is no more reason to persue my ambitions, there's no point without him to share them.  I really don't know what to do anymore.  I feel like quitting my good job on Monday, giving up on my life, and staying with mum and dad until they've both gone.

People often say cancer was always something that happened to someone else.  Well I guess it's now my turn to be that someone else.

Can't say I feel much better after writing all this, no idea what I've just written, this'll probably be my only post.  But I guess it's kept me occupied from over thinking about the future for at least 15-20 minutes.

I should really be getting some sleep, but know I'm going to be awake for several hours yet, dreading the official announcement tomorrow.  We're a very self aware and proud bunch, always hiding our individual problems with brave faces.  But tomorrow, it's going to be real hard to keep it together.

  • Hi Stevie82

    Sorry about your dad.

    Your post describes very well the ups and downs of caring for a loved one in their final months.

    I hope it helps to write everything down and share your experiences with others.

    Please come here any time you want to chat about starting out on the "the really tough bit".

    You aren't alone and there are many others here who are in a similar situation and trying to come to terms with their grief.

    Best wishes to you and your mum,

    Jane

     

  • Hi Stevie

    Firstly my condolences of the loss of your Dad and I am sure  you feel pretty numb and so upset as you begin the grieving  journey.  How wonderful that  you had that extra ten months with your Dad, to live, as you say, almost normally and you write such a realistic post about the love and care you shared.  You are the same age as my daughter and I can honestly imagine this is how she would have been feeling (I also have a son of  30) when our family was touched in the same way as you are now (Jan 2015).  You have been coping and supporting in equal measure and whilst none of this is easy, in time you and your Mum will find it easier to recall the good memories. Your heart is full of years of what you and your Dad meant to each other and you were able to be close by and show him you cared in those final days.

    There are  no words to make it all feel better just now but let  your emotions run, take strength from your family and friends and ask for any help you feel you need.  As  you know this forum can listen at any time  should you need to share how you feel. Be kind to yourself and take care.  Jules

  • Thanks all of you.  I really do hope things become more manageable.  Throwing it all down 'on paper' often helps me.

    I've spent so much time today simply pacing, then sitting down, pacing, sitting down again, at one point it felt like I was looking for dad for some reason.  Can't budge that feeling or frustration of wanting him back, to fill this empty feeling, to hear his voice or even just a footstep, but knowing it's simply not going to happen.

    By the time the cancer had finished apparently his back was covered in melanoma, mum says she's sure in a certain light you could see a big 'blotch' on his face, which come to think of it rings a bell when I saw his face from a certain angle one day.  Possibly the "infection" was also cancer?, and she has also confessed that before the doctor quickly swiped the brain scan away, she thought she saw more than not just one brain tumour but two or three.  Clearly he was in a lot of trouble than I'd appreciated.

    With that in mind it is not only quite incredible he survived for christmas 9-10 months later but also supports that his departure was for the best and he can truely rest in peace.  I never believe in forcing someone to stay back when it is their time anyway, least of all if they are suffering.

    My worry now is mum, and how she will cope after he has been at her side without exception for almost 50 years.  At the moment she is occupying herself with pension plan arrangements.  Tomorrow morning she will attempt to face what brought her to tears today and strip his bed.  But when all of that is done, what then for her?  Does she stay in a 3-bed on her own? Do I arrange a full time carer?

  • Hi Stevie

    The early days of loss are very raw and even every day tasks often seem to be  done on auto pilot. Everyone has their own way of adopting a coping mechanism and sometimes I felt we were just going through the motions as arrangements had to be made and paperwork put in order.  I know I threw myself into housework as a way to occupy the time and needed music or the TV on most of the time too.  I had support of family and friends and my buddies on the forum to chat things through with which did help. I also found it necessary to spend time on my own just to let things sink in.

     There will be time to discuss how your Mum will manage in the longer term and a lot depends on her own feelings and personal needs. My husband and I had been together for over 42 yrs (married 37) but I am able to manage on my own and yes, still live in the 3 bed home we made together as do not feel it necessary to downsize.  Of course even a year on I am still adjusting and learning a different way of life.

    Like you I did find it  beneficial to write down how I was feeling and in some small way it helped me to understand myself and in time was able to move forward but it was with slow but sure steps and when i felt ready to do so. Nothing needed to be rushed. Take time to be kind to yourself too. Jules

  • It's been almost six months already.  I've already been through a few 'firsts'.

    Easter was probably the first and I didn't waste any time getting gifts so as not to dwell on not getting anything for dad.  My friends had booked a holiday in Spain, including my ticket, unknowingly on Easter sunday, which I always spent with family.  I decided I couldn't not spend Easter with family, and whilst friends went ahead a few days in advance, I booked a flight for the Monday so I could go home that weekend, and join my friends later.  At Easter, by now the seating around the dinner table had changed after I'd mentioned potential difficulties coping at christmas if dad wasn't next to me.  Mum acted early and sat in dads seat the next time we had dinner together since he passed, and having already laid my dinner plate in my new seating position across the table.  It was now my old seat that would remain vacant at dinner times, which felt odd at first, but helped to prevent my mind being tempted to torture itself with memories of how things used to be, with dad always to my right.

    On my birthday at the end of May, I hesitated to open my cards until I was ready later in the day, expectant of reading 'love mum' instead of 'love mum and dad'.  Before I did so I'd already read a card from my uncle who had, at the time of loss, already offered words of things will get easier in time.  His card read 'firsts' are always difficult, try to have a good day.  In a way it had prepared me just a little bit, but I still couldn't hold back the tears seeing 'and dad' missing from the birthday wishes.  At the time it was afternoon and I had kept myself decidedly busy prior to then with gym and going to the hardware store for jobs I need to do.  I continued the day doing those jobs, until I was held in the living room (away from my bedroom) by housemates for dinner and cake.

    By now the rawness had softened quite considerably but I still miss him incredibly, want to talk to him so much, but at least now the pain has eased compared to earlier in the year.  For a while I used to have dreams of living a life with him still alive, we'd be in the garden or the garage.  But then within dream I'd realise I thought dad had died?, didn't we have a funeral?, sometimes in the dream mum/dad would say yes we had the funeral but he's hanging around a bit longer and his death is still to happen at a pre-arranged date in the future.  Of course by now the game is up and I wake up.  I had continued to hold on to the idea of how he could somehow be alive still, is there a way I could bring him back again? and having to force myself to think logically, we cremated him, there is no way to get him back again.  Even now, I don't know if I have fully accepted it, or at least the thought I'll never see him again for the rest of my life.

    Going home I still don't feel like I'm just going to see mum, it still feels like my folks house rather than now being mums.  Once inside the house I am finding less emotional attachment between things around the house and dad, including his side of their bed and his side drawer.  That said the garage and shed, and indeed the attic are still difficult to stay in for long without starting to become a little emotional.  We often went into the attic together to get things down, and into the garage which is both organised and contains a lot of his workmanship and tools, where he taught me alsorts of home skills from sharpening a chisel to welding a yorkshire fitting, or we'd wash the cars from.  Equally it is still hard leaving home without having spoken to or seen dad.  It is also still hard when I want to 'show off' something I've done or ask advice.  I am recluctantly now leader of the pack when it comes to fixing things and giving technical advice, and can only resort to youtube when I'm at a loss for my own problems.  It feels quite lonely sometimes in that respect.  When at home it's tough rummaging through dads tools and doing the jobs he would've done.

    In the end I never did return to work and eventually handed my notice in.  This was a decision I was careful to choose to ensure I wasn't led by with bereavement, but instead a long association of dissatification at the end of each day of work.  In the meantime I'm working on myself, including spending some of the now free working day time in the gym.  I'm still on anti-depressants which will continue for at least a year before stepping off again.  Christmas is the biggest dread for me right now, so I'm not even thinking about returning to a working environment until I've passed that milestone.

    I digress.... my birthday done, it was mum and dads wedding anniversary next, in which mum had planned to bury his ashes.  I knew it would be difficult, and I think I was maybe more 'aware' than the funeral, albeit not as raw.  It still involved a considerable bit of lip holding and frog swallowing.  I waited until I got back home and mum busied herself in the garage before I released an outpouring in the bathroom.  I was hoping that seeing the ashes falling into the ground would provide some closure, but as I looked on, I couldn't associate the dust with him, it wasn't him.  However I'm glad that I now have somewhere to reference him to, and indeed the last time I left home I said 'bye dad' as I drove past the churchyard.  I've yet to return to the site though.

    Next was Fathers day, which was one mum warned me about.  I always found Fathers day and Mothers day a bit gimmicky and didn't take them as serious as their birthdays albeit I'd always wish them well with cards.  So for this 'first' I deliberately avoided any eye contact, or at least avoided maintaining eye contact, with Father's day references, at the supermarket for example.  I did well until the day before when a friend mentioned what they were doing tomorrow (Fathers day), ending the sentence "because it's Fathers day".  At the moment they said those words, there appeared to be an awkward silence with the four of us in the room, and I didn't know how to react, where to look, at what could be a potential 'trigger' to a very emotional state, the more I thought about it the more I became self-aware and thought I mustn't break down.  A conversation soon followed on however and the day carried on without referral back to the awkwardness.  On Fathers day itself I kept busy, conscientious that I couldn't text dad.

    The challenges I now face are the garden flowering and taking shape, going to an airshow (he loved aviation), I'm still finding washing the car tough as he'd often accompany me shammy leather in hand. And right now I'm beginning to think about his birthday in November.  My friends are planning to have a holiday end of October, I need to house sit early November, I also need to shutdown a holiday home, so I need to think now about what days I should be home to honour of his birthday (which is on a weekday not a weekend when we could have dinner).  Of course, as I said, soon after his birthday is what I'm dreading the most, something which always starts way to early, Christmas!  But I hope to hold that off until the Cola Cola ad starts.  I'm also at a loss for the new year as for many years I'd celebrate it with friends, but this time mum will be truly on her own.

    For the moment though, I wondered what others on this forum do when they face the first birthday of their loved and lost without them.  Unlike Fathers day I certainly can't deny it, and wouldn't want to busy myself away.  At the same time however I know it's going to be hard not being able to go out and choose a card, send a text, let alone celebrate with him.  Maybe I'll visit his 'plot'?  It doesn't feel right, as a son, to lay a flower for dad.

  • Hi Stevie

    Time does indeed move on but thankfully the memories are with us wherever we may be (it is now 18 months since my hubby died and our kids will always miss those special 'Dad's days' even though they did not always see him). My daughter and son are different personalities as no doubt you and your elder brother are and therefore deals with day to day life in different ways to.  As to the 'firsts' well we never made particular plans, after all we miss him every day, but dealt with them as they arrived.  For us the first birthday was the day we scattered his ashes (three months after he died) which was emotional for so many reasons, not least of which was taking the grandchildren with us.  It helped the eldest lad (then 6) understand a bit more (youngest was only15 mths) and also brought smiles through the tears when he politely told his own Dad to 'watch his step' afterwards.

    Like you say Fathers' Day was so very sad for them but they chose different paths of rememberance. My daughter visited his resting place (as did I, but at a different time) whereas my son told his girlfriend (now his fiancee) that he wished to spend the day alone and he went by bicycle to the lake where they used to fish together and then sat in the pub with a small beer, no doubt raising a silent toast.  Then he text me to say he did not think he could  go home alone so after a short chat I told him it was okay to call his girlfriend (she was visiting her parents close by) and say he needed that lift back to the home they shared.  It is so good to see them finding that comfort together.  Of course they have now done these twice but the second Father's Day was different for my son as he is now a Dad himself and my new grand-daughter is now 5 weeks old (and beautiful) and I know we all wished that my hubby could have held her the way he did my daughter's two boys.  She will, however, get to know him through our memories and photographs in the years to come.

    So we come to our first Christmas and yes, it was completely different and helped by the presence of the  two grandsons of course. Having said that it's format is changed forever (we used to take turns within the  family with it either being with me or at my sister in laws and with our kids either here or with their in laws).  Last year I went with my daughter and family to her mother in laws for Christmas Day and then everyone came to me on Boxing Day.  My hubby's siblings moved to the Isle of Man a few weeks before his death so we rarely see them now.  No decision yet on this year but I have already told my children we all have to move forward, however slowly that may be and it is okay for them to do what they want for Christmas though I am pretty sure we will be with each other at some point (it's a part of family life and they need to have their own to make it special).

    As a Mum and a widow I am forging a new day to day routine that helps, I still visit the forum in case I can offer support to others as it was so supportive of me.  I still work a couple of day a week and go to the gym (something I began for the first time just six months after my bereavement as I needed new focus) several times a week and I have had work done to update the house which was a dream I would like to have shared with my hubby whose hard work/pension made it possible (I hope he would approve of his legacy to my future).

    It is early days still in your own grieving process and that of  your Mum and brother but you will all find your own ways of coping in the longer term.  Be kind to yourself; you carry your Dad's memory in your heart with every step you take and he  would be proud of how far you have travelled so far. Take care, Jules

  • Hi Stevie,

    I think you are lucky, you had a Dad that loved you and that you loved.

    Embrace your memories of a lovely man.