Hi my name is Lynne I am new to this forum. So I don't know if I'm getting it right. I have been diagnosed with lymphoma. It's such a confusing cancer. I have had radiotherapy on one area but the rest of the areas are being left. It's the watch and wait plan.
Sorry to read your diagnosis. My CT scan showed the same diagnosis. Had my biopsy & think I will get the results today. Delayed last week due to backlog at pathology. I hope that your radiotherapy prooves effective and the other areas which are under the "wait & see" umbrella remain just that.
Hi I'm new to this forum but not to cancer this is the third time I've had non Hodgkin's lymphoma, I had it 2004 2013 and just found out last week it's back again. Just got my hair back to normal. Anyway it's just nice to know there is someone out there who knows what I'm going through, I'm sure I'll need to chat again once my chemo starts
I was sorry to read that your NHL has returned for a 3rd time. More of a case of 3rd time unlucky. This is my 1st time on the cancer roundabout and I am trying to stay positive with the odd wobbly day day thrown into the mix. Wonder what The Great British Bake Off would make of my ingredients. I am still awaiting my phone call from my consultant to confirm the type of lymphoma I have. No amount of staring at the phone seems to make it ring and I just want to get started on my treatment and kick this cancer into touch something the Scottish Rugby team seem to be having huge difficulty with at the moment. Apologies for my humour but it is what seems to be helping me through this......
Hi Dunx. It's having a sense of humour that gets me through too. My first thought when I was diagnosed was that I would have to have chemotherapy. I would lose my hair, and I had just had my highlights done. On a more serious note. This is the thing that gets me down, I've been told there's no cure. I have been made to feel that I'm a hypochondriac. I have lumps all over my body that I can see, and all the organs that are affected. How can I be a hypochondriac! !! I am getting on with my busy life. Sometimes I forget I've got it. Please let me know when you get your results. I hope you get good news.
Received the news last week. Test inconclusive so was devastated. Now going into hospital next Monday when they are hoping to remove the lymph node from my armpit. The following day they are planning to put a camera down into my right lung. It is the waiting which is doing my napper in. Not too mention the wasting of time which is so valuable as you will know. I am just wanting confirmation of my lymphoma and my treatment to commence. How are you responding to the radiotherapy? I am hoping you are keeping well.
Hi Dunx.
That's dreadful. It's the time wasting that drives you nuts. There are so many different types that you just can't get your head round what you have going on in your body. I do hope you get this sorted sooner than later. I've just been speaking to a dr friend who has told me I need to have some tests. I've made the appointment for next week. I told my dr friend that I felt that the hospital made me feel like a hypochondriac. She confirmed that things would be going on inside. I'm not making it up. I don't even think about it most of the time. What's the point, there's no cure. The radiotherapy seems to have worked. I now have frizzy hair growing back. Goodness knows what it's done inside my head! !! - please let me know how you get on. Do you have a family that you can talk too? Speak soon. Regards Lynne
My name is Vera and I've just joined the chat group. I was diagnosed with NHL diffuse large B cell in March 2013. I went through chemotherapy (R CHOP) and took part in the Model B clinical trial. I had a really rough time and was ill from start to finish and spent more time in hospital than home during this. I then had radiotherapy for 30 consecutive days to my neck and chest area. This was quite painful and I couldn't eat any solids for about 3 months. I have been in remission now for a year and am doing well. Then 4 weeks ago my husband was diagnosed with Peripheral T cell Lymphoma. You can imagine our shock. He has the same consultant that I have and has started chemotherapy. It's just so hard to get my head around it all and sometimes I wonder if and how we're going to get through this.
Thanks for getting back to me and I am pleased that the radiotherapy seems to have worked. Well Monday is looming and to be honest, it can't come quick enough. Have struggled the past few days with the pain across my back. Constantly tired and tasks like making a cup of coffee leave me exhausted. Still I am sure there are people worse off than me. I hope that it won't be long once they have done the biopsy that they get me started on treatment. Have a good weekend Lynne
