Prostate - Introduction :0)

Hi, Only just come accross this forum via FB... Read some of the posts and found them really diverse and interesting, so I signed up :0) I was diagnosed on 6 Dec 2014 with prostate cancer; G9, T2b. On 2 Jan 2015 I went to see a surgeon with a view to having a prostectamy. It was at this point he told me that me he couldn't carry out the prostectamy as I was actually a T3a and there was no clear margin. The only real option was hormone therapy (which I started there and then), followed by Brachy (which I will hopefully be having in 2-3 weeks) then a course of radio therapy. I would be very interested in hearing from anyone who has had a similar experience Atwhich point he told me that he
  • I saw the consultant on 8th June.PSA is down to 0.2 which going in theright direction. He has pt me on some additional meds to help (Cyproterone) to help, this has also helped with the hot flushes.

  • Hi Mike,

    Thanks for the update. Glad the psa is down further and hope the new meds help with the hot flushes. When I was first told I might get them as a result of zoladex, I though this could help in the cold weather. But it didnt work out that way as they only seemed to arrive when I wasnt cold and without any warning.

    Best wishes, Brian.

  • Sorry to hear you sound a bit like me. Hormone therapy now over three years then radiotherapy after three months, so March April time. What side effects have you had?

    John

     

  • The worst side effects I have had are from the hormone therapy, rather than the Brachy and Radio therapy. The side effect common the all therapies is the fatigue. The side effects of the hormone treatment is extreme fatigue, bone, joint and muscle pain just to name a few. To make matters worse tumours have now been found in my bladder; and they are pretty certain that they are cancerous. I will be having surgery and local chemo of 11th Feb.

  • Hi Mike,

    Sorry to hear you are suffering from tiredness and joint pains. I never did have much problem from either. I did suffer a little tireness when having the radiotherapy but it was only short term.

    I wish you well with the surgery, sending best wishes your way, Brian.

  • Surgery went well and biopsy results were good, showed tumours in bladder were cancerous but very low-grade and early stages; so hopefully the local chemo will make sure nothing comes back. However at the last appointment with my oncologist I asked him why I sometimes get evasive responses which are qualified with the words 'normally we can but unfortunately with your diagnosis'. His response was pretty much what I expected but still came as a shock he said 'your cancer is extremely aggressive and very difficult to treat '. I've been doing some research and people with my diagnosis do have a better life expectancy with trials.. Does anyone have any experience of this.

     

  • Hi Mike56,

    I was diagnosed with Prostate Cancer six years ago, I had three months of radio therapy at Addenbrooks every day, so if they catch it early enough the treatments do work, the option of a Prostectamy is not always the best option as it can have a few side affects after the operation.  The surgeons decided that my tumor was to near the nodes at the top of the Prostate and could not be sure of removing all the tumor, so radio therapy was the only option for me.  I am happy to say that I was discharged by Addenbrooks in January this year as being cured. So keep your chin up and I am sure your treatment will go well. ATB