looking for support dealing with mum having terminal cancer

Hello, I'm new to this but I am looking for support from people who are going through the same thing and thought I would try posting on here. I am 24 and my mother has terminal cancer with only a few months left to live. My mum was diagnosed in march 2014 with oesophageal cancer stage 4 which has spread into her liver. The doctors told us that it was terminal and chemo and radiotherapy was offered but would only buy her sometime. It came as such a shock and I found it very hard to come to terms with as she was so well in herself when she was diagnosed. She went through 3 rounds of chemo which reduced the cancer slightly but mum was very poorly and seemed to have every side effect possible. The cancer grew back very quickly but mum decided she did not want to go through any more chemo with the hope that this would give her better quality of life for the time she has left, we all supported this decision. Since then she has slowly deteriorated and it has been hard to see my fun outgoing mum change so much. She has also had radiotherapy which again reduced the cancer but it grew back so quickly again. She has also had a stent fitted to help her eat which has worked.

I was wondering if anyone else is going through this also. I feel like we have all been on a rollercoaster of a journey so far and it just gets harder the further along we go. At the moment mum struggled to get out and has hardly any energy she has anxiety attacks also. If the doctors are right then she has around 4 months left, I'm just so worried how things will be in these last months. I'm not sure what to expect and I'm worried I won't be able to stay strong for my mum and dad.

I have been to my doctor for stress and anxiety as I have suffered from panic attacks and get a tight chest and my emotions are all over the place. I am currently on a 10 week waiting list for councils, it would be nice if there is anyone who is going through this or has already lost a loved one to cancer that could share their experience with me. I think knowing that others are going through this and have been through it helps as I have felt alone.

Thanks for taking the time to read this and I hope to hear from anyone who would like to share their experience or talk to thanks  :)

  • So sorry to hear what your mom and family are going through.  You are right - retirement is supposed to be a time when you relax and enjoy life rather than going through such devastating illnesses.  Hospice is a great resource if they have this type of service where you live.  Support from family and friends is priceless.  

  • My mum has terminal lung cancer! Even as I write these words they feel unreal ! She's MY mum !! She was diagnosed on the 13th December 2015. The day after was her " early retirement! ! The day she was suppose to start living ! My mum and dad are the most madly in love couple. I'm so mad! Angry and confused! 

  • Hi lishy

    Welcome to the forum though sad to read the reason why you need to be here.  My husband had a different 'terminal cancer' but your emotions are totally understandable. It is difficult to come to terms with a loved one having to face such a diagnosis and at times I felt utterly all at sea as to what to think say or do.  The forum was a great place to offload and ask any questions as there are many who read and totally understand where you are coming from.  Sadly we cannot change the diagnosis but I hope you can find some help and support here.

    Has your Mum been offered or having any treatment to help with symptoms? My husband never made it to retirement age but once diagnosed he did want everyone around him to get on with their lives and keep day to day living as normal (whatever that is) as possible. He did not wish to 'talk cancer' and we coped day to day and continued to make plans - some we managed some we didn't. It was an emotional rollercoaster. Talk here whenever you need to and perhaps start your own personal thread/discussion and I am sure others will be along to offer support.  Jules54

  • Hi Lishy, my mum who is 49 was diagnosed with terminal lung cancer stage 4 at the beginning of January 2016, it also spread to the brain and lymph nodes. 10 months on after having chemo and radiotherapy she doesn't seem like the mum/woman she was 10 months ago she was always happy, working, swimming, riding her bike so healthy. She has been through so much, she suffered seizures last month, we didn't know if she would come back round from them. She is back in hospital at the moment as she had uncontrollable pain, thankfully the doctors have got that under control. I dont no what the future holds for me and my family, I can't see me being happy without my mum in my life, before she got ill I would see her near enough everyday, she is my bestfriend. I am 29 with two daughters one who is 9 and absolutely adores my mum, my hearts breaks for the pain she will feel when my mum dies. My other is just 16 months old and Im angry she will never know what a wonderful loving nan she had. I really would love to talk to anyone else who has a loved one going through this devastating thing they call cancer. I'm so sad and angry. How are you and your mum doing at this time. Sending love to anyone going through this. Karlie b xxx

  • Hi Karlie-b/all, I am so very sorry to hear about your mum's diagnosis and the posts of the other people who are watching someone they love endure this dispicable disease. My mum's 60 and has been battling lymphoma for the last 16 months. We found out two weeks ago that it is terminal and she has been referred for palliative care. The doctors have estimated that she has 2 months to live (she doesn't know this as she doesn't want to know timescales). I too feel like I don't want to carry on without my mum (even though she would be devastated if she knew this). Mum, like so many other brave people on this site, has been through so much (including a perforated stomach as a result of chemo and a 6 hour operation to repair) and would do it all over again if it meant she didn't have to leave us. As the family member who always 'takes charge' I have been putting on a brave face and trying to support everyone whilst inside my heart has shattered into a million pieces (I cry in bed every night or when I can grab 5 minutes during the day).  This site has allowed me to feel less alone and I thank everyone for that. I have taken sick leave from work and travelled 300 miles to live with my mum for as long as I can as I just can't bear the thought of her being alone and scared. Mum is devastated, angry and scared and is having frequent panic attacks.  I have no idea how to comfort her and have never felt so useless and terrified in my life. I am so very sorry for the pain that each and every one of you are going through and for the fact that people you love are fighting this vile disease. Thank you for listening xx

  • Hi my mum has recently been diagnosed with stage 4 lung cancer and we are waiting on gene testing biopsy results to determine what treatment she will recieve. I am currently off work as im really struggling to come to terms with it. It feels as though i am being followed aroung by a dark cloud that is full of a million questions. I find myself repeating the same things over and over in my head. They have said mum cant have any surgery as it has spread to other lung. But mum doesnt wish to know aby more than that. I am also looking dor other people in same situation i am an emotional mess at the minute. X thanks for reading laura
  • Hi Liz

    It sounds terrible, I am 17 years old and found out that my dad had cancer in his skin last year, since then it has rapidly spread to his legs, lungs and brain. Doctors have now said that they can not treat the cancer in his brain, as radio therapy chemo therapy are no longer an option. I too am very scared and worried about how it will be when he is gone. All i can say is you have to try and stay strong. I know that it is incredibly hard but you need to be strong for the people around you. An idea i got told to try and keep you happy and positive is to write a good thing that happens each day into a book, and then if you are having a bad day you can look back in your happy book and it will cheer you up and make you feel better. Hope that in some way cheers you up.... here if you need to talk, as am going through a similar thing.

  • Hi Lourezyac, and a very warm welcome to Cancer Chat. I'm really sorry to hear about your mum's stage 4 cancer diagnosis; it must be such a tough time for you right now. 

    I wanted to stop by to say hi as I noticed you've replied on quite an old conversation and, as a result, people might not have spotted your message. There are a few people on this forum who are going through similar experiences to you at the moment, and I'm sure would be happy to chat.

    If you'd like to join in with other conversations, you can search the forum by typing words (such as 'lung cancer') into the search box in the blue bar near the top of the page. You can also have a look at recent posts in topics like Caring for someone with cancer. And I'd recommend starting your own new 'thread' by posting in Introduce Yourself - hopefully, a friendly forum member will spot your post and stop by to talk! 

    If you have any questions about your mum's diagnosis, we also have a team of information nurses who are just on the other end of the line: (freephone): 0808 800 4040 or, if you prefer, you can message them confidentially through their contact form

    Wishing you all the best and hoping you're able to find other people in the same sort of situation for support very soon.

    Best wishes,

    Helen

    Cancer Chat Moderator

  • Hi 

    I'm going through the same situation as you but my mum started with bowel cancer but the doctors misdiagnosed her so it spread she's been to 2 hospitals. Since then she's been on chemo but on Tuesday she saw her consultant and told her that her last lot of chemo didn't work and she only has 6 months to a year to live

  •  

    Hi,

    I am so sorry to hear this latest news about your mum.

    You have a hard road ahead of you, but try to be as positive as you can for your mum's sake. Instead of dwelling on her prognosis try to make memories together, talk to one another and, don't leave anything left unsaid. I have been through a similar situation with my mum. Sadly, we lost her 21 years ago and, I still miss her every day.

    Since then I have had 2 bouts of breast cancer and, cannot believe the advances in treatments. How has your mum reacted to this news?

    Please keep us updated on her progress and, remember that we are always here for you.

    Kind regards,

    Jolamine xx