PROSTATE CANCER - ANYONE BEEN THERE & DONE THAT?

Hi, I have just been told by my Consultant that I have Prostate Cancer.

I am aged 58 years old and married and live a relatively fit & healthy lifestyle and have been healthy for all of my life (except having my appendix removed years ago!) so it has come as a bit of a shock to the system.

I had 3 x sets of biopsies and cancer was found in the 3rd set with a Gleason Score of 4:4, a total of 8, which is quite high.

I have just has an MRI & Bone Scan and am awaiting the results before going back to see my Consultant where we will discuss the severity of the cancer, whether it has spread outside my Prostate, my overall prognosis and the way ahead with whatever treatment(s) may be suitable.

I am staying upbeat and optimistic and I really just want to know what it is that I have and how I can try to make it better.

There is a LOT of stuff out there to read on Prostate Cancer and some of it is very scarey indeed and I appreciate that I need to know the full picture before I start to worry about "what and if", so I don't worry - yet!

I wondered if there are any gents out there who have already been through a similar experience and if so, if you have any advice or pearls of wisdom to pass onto me?

Many thanks.

  • Hi KayW73

    i know this is a very stressful time for you all and you have to be positive the important thing is consider each option available and which ever you guys decide on you must give it 100% commitment.

    I opted for the robotic surgery which I had 4 weeks ago and I really feel fine now.

    As for the “performing” aspect I have been assured by my doctor that this is treatable and if you read some of the older posts on this site a lot of the guys have comments re this.

     

     

     

  • Hi Kayw 

    I think you'll find it's more emotional rather than physical but sometimes physical can pop up when (performing) my gleason is 8 psa 1581 stage 4, non curable that was Feb 2016 you can live with it just sometimes things don't work right if you get what I mean we've got usto it,, it depends on what specialist thinks is best treatment good luck with your future,.. Billy

    P.s I'm on permanent hormone therapy, and cemo when neaded 

  • Hi Ashworth,

    Surgery over with - so we’ve passed another hurdle. 3rd day post op & doing ok so far - the consultant was pleased with how his surgery went- already counting down to catheter removal on the 14th day bless him. I guess the wait for the results in 6 weeks is another big hurdle.Hubby determined to be on that holiday early November - one day at a time but glad he’s remaining positive.

    Showbiz

  • Hi KayW

    My husband & I are both in our mid 50’s -his Gleason was 7 & he had an open radical prostatectomy 3 days ago.Initially the consultant recommended robotic removal but that option changed due to his irregular heart beat.With our journey so far I feel although the consultant can help you come to a treatment option we were very much given lots of literature to read & ultimately left to decide which treatment to go for. I am very fortunate to have a great friend working as a senior nurse in our local urology department. Read up on all the options & write down lots of questions.You will be well supported by your own named urology specialist nurse - we left answer phone messages on several occasions & were always contacted.

    I have been far more emotional than my husband - the weekend before his surgery I was constantly in tears - worrying that our sex life may be over & we would grow apart/ miss out on the closeness etc.A week later I feel this journey had brought us closer than we have ever been & we are both determined to get through this together.

    My urology friend has reassured me no end regarding sexual changes & the help that is available.

    Good luck with everything 

    Showbiz

  • Hi

    I am delighted that all went well and you have something nice to look forward to. Stay positive and take all the advice the medical people give and you guys will be fine in a few weeks. 

    Ashworth 

  • to Prostate@58.

    I was diagnosed at 62 in 2011, gleason 4:3 and cancer was locally advanced to right seminal vesicle, so surgery was not an option. Hormone treatment began followed by high dose brachytherapy and  then 3 weeks of external beam radiotherapy then more hormones. PSA now described as under control (0.26). Need an annual visit to GP for PSA test and that's it. Do not be alarmed, you can both get through this as the professionals do know what they're doing. And there ar thousands of us here to prove it. Good luck, Paul.

  • Hi Guys

    i had my surgery over 9 weeks ago and apart from the ED I am totally fine.

    regarding the ED what sort of timescale is involved for this to recover as I have been taking the viagra and Cilias but to no avail 

    Ashworth 

     

  • Hi Ashworth.

    I am week 19 after RALP. 50mg Viagra nothing. 100mg Viagra something. Lazy Lob style. I now have a Soma Pump via NHS. Good physiotherapy. I suggest you do the same to encourage the chap. I had Nerve sparing on one side. I reckon it could take up to a year. Also when they say "Erection", I reckon in most cases they actually mean "Improvement". I am going to start a thread on the PC Website to discuss this as I don't think we really knew this before our decision to have surgery

  • Hi Prosixty

    I agree with everything you say as this seems to be the concensus from other websites I have looked at.

     

    I assumed from what the consultant told me that the medication would do the job or in the worst case I would need a pump. I am due back with the consultant in December to discuss this

    As in your case I also had RALP with nerve sparing on one side.

    Ashworth

     

     

     

  • Me too don't really no what to do. Iam 62 . Bone scan results monday. Don't feel unwell just feel poo with anxiety and so worried . Still go for a pint with my frriends which breaks up the  walking the floor time in the house. To all you guys out there .What a bummer , but believe me you are definitely not on you own