Hi Guzzle,

Hope the Malta trip goes well. We've never been there but we've always fancied it - let me know how it goes for you.

Simon

Hi Gary

Just been catching up on the posts. 

I managed most of the times with ready meals.  There was nothing worse than preparing a meal and not being able to eat it.  Also there is a pretty good variety.  Might be worth a try.  May not be the healthiest way but if it gets calories in it can't be all bad.

You are doing really well so keep it up.

Gill

hi all how are we all doing this week

Getting ready for some well earned breaks i bet

Guzzlw you must be superhuman, there is no way i could have kept the weight on without my peg ... yuo must be in Malta by now ... hope its going well and would be interested to know how your neck copes with the sun ... factor 50 all the way or just keep it out of the sun I suppose ... it will certainly be roasting out there this time of year

Simon how did you check up go on Thursday, hope it went ok and i bet you are looking forwardto your trip to Spain ... not long now ... would be interested to know how you neck fairs in the sun too

Gill thanks for the tips on the ready meals ... im doing the carbonara one at the mo with the little milk to juice it up a bot and not makeit so stodgey

As for me well i thought i was nearly superhuman then week 5 kicked in

Ulcers have come back and now i have a bit of oral thrush too, but trying to keep this all under control with loads of remedies

I have lost my voice this week, it does not hurt to try and chat ... there is just nothing there

My neck is also now very red and beginning to peel I have moved from E45 to Aquius cream an the hope that it does not break in the final week

yes my final 5 days of treatment and i can't wait to stop travellingto the hospital everyday and get passed the initial two weeks on my own to start my recovery ... i will get there we all do it's just that im impatient now ... i want to taste food

Plegm is not so bad at the moment although ive started to get a weezing sensation in my lungs which i am coughing up some thick mucus, but not a lot ... and coughing really hurts, but i am still able to swallow and eat small amounts so doing ok'ish i suppose comeing into week 5

wishing you all the best now off to update my blog pages

Gary

Vatch, off away Wed. Factor 50, neck buff and a hat! Keep at it with aqeous as much as you can. Mine got worse until about 2 weeks post treatment but was more irritating than painful. Keep at it mate. G.

Hi Gary,

Thursday's checkup went well thanks - all clear again, and that was the 9th (my wife is counting).

I sense that things are getting slightly tougher for you - hold on matey, you're nearly there. I remember the mucus, I used to produce a lump the size of a golf ball every morning (sorry if anyone is eating). Where does all that stuff come from - incredible!

Funny you should mention the sun - I have no appetite for sitting or lying in the sun nowadays. The sun didn't cause me too much of an issue during or after treatment, but then I tended to avoid any prolonged time in direct sunlight. I think I should most likely be okay now though.

Be careful, Gary. At the stage you are at now I was unable to drive, could hardly walk in fact. I was carrying a kitchen roll and bucket pretty much everywhere (vomit and mucus), I was nil by mouth and couldn't talk at all. Apart from that I was fine.....

Good luck, mate - you've nearly broken the back of this.

Remember, this is all preferable to having cancer. The treatment works and so the journey is a worthwhile one.

Simon.

Since n,delighted for you mate

should say Simon!

Just wanted to wish Guzzle a lovely holiday - well deserved and no doubt really needed as an aid to recovery. Keep up the good work.Jules x

Well hi all how are we all doing ... good i hope

I have finished my treatment .....yippee ... now got the two difficult weeks to get through

Its been a week of change for me as everything has just about kicked in

My neck broke down, but we managed to get to the end of my 6 weeks yesterday, now i am rubbling Flamacine on it to reduce the burns ... appears to be working even after a day.

The phlegm has kicked in and i now walk round with a bottle as a self made spittoon ... very dignified I am also using a nebuliser to try and breakdown the phlegm at the back of my throat.

The throat is now very restrictive and difficult to get any food down so i've moved over to my PEG for about 90% of my food now, but i will try and get some food down me soon

Apart from that I am very tired but I am only sleeping 3 hours at a time then i just close my eyes and pretend to be a sleep for two hours before i fall asleep for the next two hours ...i find its the swallowing that eventually wakes me up ... so painful ... and if i cough .... god don't go there

So i am now out of my 6 weeks treatment ... now travelling and hour each way back and forth to the hospital and able to organise my day even if its to do nothing ... it's my choice I know that these two weeks will be hard, I am expecting them to be, but now I only have a few weeks until i flat line and begin my slow recovery

I don't know about you lot but i am finding this hard and i am one of the most positive outlooking persons around, but i will get there and you lot are testement and brilliant evidence for that.

Guzzle i hope you are enjoying your holiday, simon yours will up soon

all the best all