So she found a lump...

She asks me if i can feel it... Hardly, i say, but it's there... The gp agreed. Hospital appt arranged for a week's time. Mammogram performed, biopsy done. Hmm... Not much to see - whatever it us it is probably benign. Another doctor will look at it.. Letter comes - another hospital appt a week later. Mammograms again, four biopsies, and an appt made for the following week to look at results and "discuss options". Initial finding of the lump had brought terror and a flood of worst-case scenarios that, despite being too awful to contemplate, were just to big to force down out of mind. The "discuss options" appt (yesterday) was attended with an air of resigned expectancy. Her mum had a mastectomy, her grandmother lost her life to it - there was no chance the news was going to be good. The lump was very small though, so perhaps not too much to be concerned about. The consultant showed us the mammogram image on the screen. He pointed out the initial lump. That was benign, he said, with a sad face, but here is what else we found... They were very small - barely detectable and wouldn't have been discovered for some years if she hadn't found the other, benign, lump - but they were there, a couple of inches apart and, (I'm afraid it is bad news...) "Here is the report...they are definitely tumours. They are small enough to be excised but the chances are there will be more. I recommend a mastectomy"...

"Okay. Can i have a double mastectomy please?"

The psychologist will want to speak to you...

"This is not unexpected - i have read extensively over the last week. It is what i want"

so the appointment with the scalpel has been set for April 1st.

we walk back to car park.

"I saw tears in your eyes," she says... " Why was that?"

" am so proud of you," i say truthfully - " If you hadn't found that lump and got it seen to, things could have been much worse..."

but she is frightened of the operation. The thought of the pain scares her very much. The financial impact worries her. How will our son get to school in the morning. As usual she thinks of others first...

we don't really know what to expect after the op ( and immediate reconstruction using expanders) how long will she be sore for? Will the pain be severe? How long before she can drive? How long before i can hold her in my arms and crush her to my chest the way she likes so much..

how should we feel - really?

  • Surgery today. She'll be going down about now. Day started off with a huge row - "You're not taking me to hospital - I'll get the bus. Don't bother coming to see me..."

    I thought it might be like this. She has been great but you're bound to get a bit scared and stressy when D-Day arrives. Couldn't get parked for ages ... too many sick people in Dorset!

    Hopefully she'll be out of recovery by about 6 tonight.

    Her surgeon is very highly thought of. He said he's booked the OR for the whole afternoon so no time constraints or rushing around, which is good.

    She made sure our son had all his stuff ready for the week

    I'm not worried, or concerned. I know she'll be fine, but I left her there.

    I have a list of people to call to tell them everything is okay.

    Now I just have to wait.

  • Hi

    I've read your posts and I just wanted you to know I'm thinking of you and all your loved ones and I fear I know what your going through.

    I know you'll be fine.

    I, myself am due a manor op on 28th April and my devoted husband knows what to expect as I know I'll be so moody once the day gets nearer.

    In my opinion he is suffering more than I am most days. I think that's how we work as humans. 

    So don't feel alone, I wish you all the very best and your all in my prayers. Xx

  • Thanks Doreen.

    There was no point in getting all aerated this morning. I knew what was going on. Anything said or done would have been a reason for fault to be picked.

    She didn't get out of recovery until an hour after I thought she would... just as visiting hour was over she came past me on the bed. She is uncomfortable and in some pain, expanders are in and not comfortable...

    They let me stay which was nice, but had to come home and make our son's dinner...

    Tomorrow should be better.

    Parents have been contacted, sisters too...

    Lymph node away to be sliced up, but all indications are that it was normal - but then, that's what they said at first mammogram, so we will see...

    Anyway, been a long day...

  • Hi love

    Thank god she is ok.

    I was thinking of you both.

    Let's hope she is over the worst and has a bright and happy future.

    God bless Dor xx

  • Much brighter this evening - very upbeat.

    What a star.

  • Hi Jack

    Pleased to hear that surgery is over.  One hurdle overcome and I would think it is to be expected that that she will be uncomfortable at alest for a short time as she has undergone surgery.  Glad to hear that the lymph nodes look normal and will keep fingers crossed that that this is confirmed.

    Best wishes.

    Gill

  • That is fantastic news. You must be relieved. I'm not very food at this sort of thing, but I know it helps to talk, and it certainly helps to know that people care.

    Thinking of you both

    Dor x

  • Drains are out, so she is a wee bit more comfortable. Having to carry those about in a bag in front of her for a week was a pain in the neck but if that's as bad as it gets then we'll be grateful. I'm back at work now - be glad of the rest to be honest!

    Next Thursday is results day. Trying not to think too much about it. The closer it gets the more I am dreading it. Started off very positive and have no reason to be anything else, but the closer it gets the more I am worrying.

    All my life my attitude has been that if I cannot change the outcome of a situation then I should not worry about it. This one is a wee bit different but we'll see what happens...

  • Hi Jack

    Glad to hear the good news and fingers crossed for Thursday.  It is always difficult in the waiting process as your mind tends to go into overdrive.  Whatever you do do not google it as you will only hear horror stories as no-one seems to post good news.

    For my part chemo has been fine and was told yesterday that although I started off with Stage 4 Lymphoma the only evidence of the disease is now one enlarged lymph node which according to the consultant is remarkble after only four rounds of chemo.  Had round 5 yesterday and feel fine (better than I have previously this soon after chemo).  only one more to go with two infusions of immuno rather than chemo therapy and I will be done.

    Although your wife's cancer is very different from mine I always helps to know that others can beat cancer - even a Stage 4 diagnosis.

    Very best wishes and let us know how you get on tomorrow.

    Gill

  • Results day is 17th, so still got 7 days. Trying not to think of it at all, but the experiences of those who have come through the other side is very heartening.

    It is a very dark place that imagination takes us when this diagnosis is first made, so it is encouraging to see that others have made it.

    If I'm honest I think I'm in a bit of denial really - I mean, it wasn't really breast cancer was it? I've had toothache for longer than she had breast cancer... still, the evidence is there - or not there, as the case may be.

    Dressings off tomorrow. She's still pretty swollen everywhere - she feels like she has put on a stone.

    Life is going on as normal apart from the restrictions she is currently under - and of course the pain that she is in. She wants to come shopping on Saturday - my opinion was that it is too risky - if anyone knocks against her it will hurt her so badly, but she says she wants to - that she feels better and that a bit of normality will be good. We'll see how that goes...

    As for the cosmetic side of things - I don't she is too fussed at the moment and I certainly couldn't care less. I said it wouldn't bother me - I was pretty sure it wouldn't, but all the same I'm glad that it doesn't. As long as she is still here.

    Our son is taking it all pretty well too - he is nearly 15 and quite a sensitive soul at the best of times but we've tried not to make too big a deal out of it and he has been great.

    I wish you all the best with your treatment Gill, and fervently hope it goes easy for you. You and those like you are an inspiration to those like me who, somewhere deep inside, are absolutely and utterly terrified out of their wits by this thing, and can only cope by forcing it down into a place where it can't be seen