Hi James

Glad you found the Rehab interesting and sounds like you put your all into it and no doubt will take a few days to recover from the exertion but all for a good cause in the longer term.

We have just had a visit from district nurse to check on hubby (I am on a few days leave,finishing up holiday entitlement before 1st April) and he reported that he 'is fine' and no change needed to meds at the moment.  They are arranging 'just in case' drugs to be delivered for 'future use' by the nurses so that should problems arise they will have stock to hand. Cannot fault the support we are getting and hubby enjoys being seen by  a 'young, blonde nurse' - just a shame the wife was at home too.  We are going out later to pick up a new lawnmower so that I can get going in the garden before it turns into a complete jungle - so much rain and such long grass!! Can see a few hours of weeding ahead but that will get me in the fresh air - fingers crossed the rain stays away - sunny intervals here at the moment.

Hope you and the family coping okay and that your  next Rehab session is a little easier for you.  Virtual hugs. Jules xx

Hi Jules

           Well things are moving along now I have got the date for my pre op which is tomorrow thursday at 14:00 at Heartlands and then I have a date for my op it is the 28th of March so as you can see things are moving along at last, also i am going tp my pulminary rehab twice a week at Hereford and that is helping my chest a little though it is not really altering my mood which i do not seem to be able to shift, well how is hubby better i hope talk later.

huggs and love james xxx

Hi James

Thanks for the update and am pleased for you that the waiting is nearly over as regards your op (wishing you all the best for tomorrow's pre op checks).  Expect you may be feeling a little anxious and no doubt that affects how you feel too. Sounds as though you have been 'managing' the rehab and this must be helping a little for the preparation.  Can I just say that try not to overdo it beforehand, make the most of being in the care of professionals and enjoy some well earned rest/pampering.  Hope there is not too much tension indoors but you know me and the forum are always happy to keep you company during your journey.

Hubby has gone to visit an old friend this afternoon so I have had control of the 'remote'.  His mood does tend to fluctuate and I am trying to 'go with the flow' and its all part of 'understanding' though sometimes its difficult to read him!!  Must say with the improved weather I am able to get into the garden (my therapy corner) but still be close at hand should he want me though currently he manages quite well on his own physically so far.  All being well next week he is going into to help his old employers - they say he can instruct and guide and they will do the physical stuff but I have still suggested that should they need him for consecutive days he would be better booking into local hotel to save him the 2hr (min) round trip each day and he thinks this may be a good idea so we will see how it goes when the time comes.

Sending you good wishes and hugs to see you through the waiting period.  Take care of yourself. Jules xx

Hello Jules

               Well guess what igot to the hospital at 7:00 in the morning on Friday all built up for the operation they checked me in and did all the nessary things so there is me sat in the waiting room in my slippers and a gown and the socks they give you, and i sat and i sat and i sat then half past nine the surgeon came along and said that he was very sorry but due to the lack of high dependance beds then he did not think that he would be able to do my op and said that he would let me know in a letter when he thought that i shpold come back.

   As you can imagine i am devestated and feeling really let down and my mood has hit an all time low as i know that there is this cancer in my chest that is still growing and is not stopped by the lack of beds, the pain in my chest is now getting unberable and i am feeling so alone at this time thank you all for listening how is your hubby jules talk soon.

                                   love and Huggs james xxx

Oh James,  so sorry to read your news that after all the preparation your op had to be postponed.  I am not surprised you feel so let down and low.  Am sure your whole family must feel very cross at how you  have been treated.  You would think they could have realised before you reached the 'ready to go' stage.  Really hope that a letter arrives quickly for the re-schedule.  No doubt you are in increasing pain so do talk to your doc/Macmillan nurse and see if they can apply a bit of pressure in the right places to get things moving along again.  It might be worth looking for a second opinion too (not sure if  you saw what Max has been through this past week) and see if there is another hospital/surgeon who could carry out the procedure for you if the waiting period becomes too extended.

Do keep posting if you feel like chatting as I check in most days (hubby still keeping things to himself for the most part!).  With regards to hubby at present all appears stable, we had consultant appointment last Tuesday and he does not need to go back for another two months.  Managing to keep his weight/pain under control but they would rather he did not do any long driving trips (fatigue is his biggest problem) though he has been into his old work for several brainstorming sessions in the last couple of weeks.  He says he will know when he should not drive!!

Well hope your wife is enjoying Mothering Sunday.  I have just visited myMum and my kids are popping in this afternoon and with such lovely weather here am looking foward to a relaxing afternoon.

Take care and sending hugs..  Jules xx

well hello jules it has been i while

       On Thursday the 10th orf april i was called back to Heartlands at 7:30 in the morning and my operation was done i am now at home again but in horrendious pain when they did the operation they found that it was larger than they first thought so they hade to take away a lot more of my lung and there were five masstisses growing on my rib cage sorry i cant write any more at the moment but i am so sore and  all for now  love and hudds, i hope your  hubby is well love and huggs james xxxx

Oh James, how rotten that you are experiencing increased pain from what sounds like a very big operation.  It must be making you feel very  miserable indeed as this treatment was supposed to help rather than hinder your recovery.  Do hope you are getting lots of caring support at home and hope you will soon be more comfortable.Hopefully they can sort out some better medication for you.

Hubby is relying a little more on the morphine but on the whole we are managing.. Hugs are returned and hope that the next time you are able to chat things will be better for you. Jules xx

Dear James .....  am praying that you make a speedy recovery. Xxxxx

Hello Max

            perhaps this note will make more sence,i just read the other one what it was supposed to say was that i wean into Heartlands hospital on the morning of the 10th early early 7:30 then they did the op findind that it was a lot larger and more agressive than they had thought there were also five growths on my ribs as well, so now i hahe got a large hole in the top part ort ny cheas in four days i have got to have my drain sttchses out then within three weeks i will have an appointment for chemo/radio therapt i feel so low and lost at the moment but i am sure that will get better but my mood is so low, all for now

                                                                         love and huggs james xxxx