Hi James

Really hope there will be some positives out of your forthcoming appointment which will help to both lift your spirits and move you forward in your ongoing battle.Will your wife be accompanying you and if so hope she will be supportive and perhaps be allowed to ask questions herself if she needs answers? (I amlucky in that hubby's consultant soon realised I needed to be well informed at these appointments as otherwise I get left in the dark!!). 

Yesterday was a reasonable one for my other half.  He had a really good night's sleep, only getting up when I woke him at 10.45 (as was worried he was well overdue with medication) and in the afternoon he took our daughter and son in law to pick up their new 'secondhand'family car before managing a fish a chip dinner. He is definitely struggling more with the  cough and cold and its affecting his general mood (low) and how much he is eating. Is sleeping more too which would suggest to me that we will be in for 'heavy' discussions at his next check up so will have to brace myself nearer to the time.  All being okay we have a weekend away almost immediately after his next consultation (if he does not have to get in touch beforehand) and have 'back up' driver if he does not want to take on the 90min journey (though we do plan to stop for lunch on the way which we enable him to rest a little).

Hope you are having a peaceful day today. chat soon  Jules xx

Morning James

Just before I sign out and get ready for work just wanted to wish  you all the best for your appointment today.  In my thoughts and sending virtual hugs to you and your wife. Jules xx

Hello Jules

            Thank you very much for your thoughts as it was There was no need too worry about my throat it seems that what showed up on the scan in my throat was the fact that my vocal cords on the left side of my neck are permenently paralized and showed up in the scan but they did not know what it was, so now they have said that they can get on and treat the Cancer in my lung as a Primary Cancer, will let you know what else goes on

                                        regards        James   XXXXx

Hi James

Thanks for the update and I am sure both you and your wife are much relieved that you can now concentrate on treatment for the primary cancer knowing the throat problems have not returned.  Hope you do not have to wait too long for better pain relief now they know what they are having to deal with.  Iam sure a little bit of your stress must be alleviated now that you have had your appointment/chat with docs.

Take care and have a peaceful day.  Jules xx

Hello Jules And Max

                   Well i thought that i had better keep you in the loop, my moods have not got any better i had the meeting with the E.N.T people and as you can imagine the wife was really pleased to hear that at least the Cancer in my throat has not returned but thanks to the Surgeons and Onc people the left side of my Vocal chord is paralised and the hardened chord was what was showing up ,yes it is good too not have the Cancer back there but it means that they have held up the work on my Lung, but now things have started moving again i have had an E-Mail from the team and on thursday next i have an appointment to have a Lung capasity test on thursday next and then on the results of that they will decide if my lungs are strong enough to take the removal of one the meeting will take take place on the wednesday after , so things are moving but in my mind not fast enough and what will happen if i fail the Lung test then i do not know what will happen as my Lung strength does not feel too good have either of you any ideas it is a Primary Cancer.

                          Love and Huggs James XXX

Morning James

Thanks for the update.How frustrating for you that you have waited this long and now have another wait before the medics can decide how best to treat your 'new' cancer.  With no medical knowledge and never having coming up against your particular primary I really cant help with what they may or may not decide will be the best way forward.  Everyone's treatment plan would appear to have to be tailored to their own needs and I really hope that following the test  you are to undergo the treatment will be able to commence asap.  Perhaps a chat with the nurses on the freephone number on this forum (mon to fri) could shed a little more light on the subject for you.

  In my hubby's  case he was referred from a company medical in October  following a slow toclear chest infection/cough, underwent all sorts of scans/xrays/consultations and was finally fully diagnosed with mesothelioma (cancer oflung membranes) in February (and yes it was a nightmare waiting and then devastating when told it was an incurable condition which can apparently lie dormant for up to 60yrs!!).  He did have a shortened course of chemo (before his body could not take any more) and thankfully this had the small benefit of 'holding' it back.  We continue to cope on a day to day basis as best we can knowing that his cocktail of drugs keeps him 'managed'.  The main advice from his consultant was to 'go and enjoy anything you can do whilst you are still able to' and we had wonderful help fromHASAG, a charity specialising in helping Mesothelioma affected families.  Next month will be 2yrs since diagnosis and currently he has check ups at 3monthly intervals with his consultant and usually monthly GP appointments to keep a watch on his medication needs.  He has been extremely pleased with the NHS service he has received so far.  Next planned check up at the end of January, following which (all being well) we have a weekend away.

Just as a thought our local hospital does run a 'lung support group' session monthly (hubby says not his thing!) so wonder if there may be something similar where you are that may be able to offer you some advice along the way.

Wishing you a peaceful weekend. Hugs   Jules x

Hello Jules

             Well thank you so much for your quick response and taking the time to care I did not expect anyone to really be able to help but to get just what you did give me some one to talk to about my condition as home is a no no for that. I feel that if they are not able to do the operation then i think that it will be turning to a paliative case as i am unable too take Chemo and i think that the area is too close to the place where i had a lot of Radio Therapy before and the skin and muscle is already had as much as it can  take so i think that they will just make me comfortable, but i have a lot of hoops to go through before that is the only option, i am pleased to hear that both you and hubby have had a good period.

                         lots of huggs and love James XXXXX

Afternoon James

This forum is a great place just to get things off your chest and as you know I came on here initially because could not talk to hubby (or rather he does not talk about his illness with me unless absolutely has to!).Anytime I can return the favour by being a listening ear for others helps me too.  Am sure like me a lot of your own frustrations are made harder because you cannot express yourself indoors (for fear of upsetting anyone) and this often leads to you feeling 'lonely' even if you are not alone (if that makes any sense). My hubby has never been much of a conversationalist at the best of times and I feel like I am playing in some sort of game of 'guess the answer'on occasions. Of course, we are also both having to adjust to him being at home 24/7  whereas when he  was employed he often worked away from home (sometimes for weeks at a time) and now he seems surprised that I have housework to do and I am having to get used to having a spectator.

Coping on a day to day basis is the only way to get through the hours though I did go out for some retail therapy this morning.  Hubby gave me spending money for Christmas and I was able to treat myself which was nice.  Also managed to find a few bits and pieces for the grandchildren to play with/read,ready for when they pop over next. The pound store is very useful!!  Also filled up hubby's chocolate storage box for him to dip into when he fancies (have to try and avoid the temptation to join him!!).

AnywayJames, hope you manage a peaceful weekend and the forum always happy to chat when you feel the need.  Take care   Jules x

Hello Jules

Thank you very much for your words of comfort, it really does seem that we both have a similar problem your Hubby wont speak of his illness with you and my Wife wont speak of my illness to me except to say Oh! there is nothing wrong or youll be better tomorrow, and me Knowing that this is not the case get really down at the moment is a point in fact she said yesterday well you had better move about alot more or you won`t pass your test, well i know that and it does not help too be told it when just after i have finished my anti biotic the infection is back and my chest is all clogged again, i know that this test is important but i feel so ill and saying things like that does not help at all except to drive me deeper into my Black Pit which i cant climb out of, Oh! thank you so much for listening Jules I really mean that.

                 Love and Huggs James XXX