Hi all, just like to know if there anyone on here that had pheochromacytoma and paraganglioma. as my 14 yr old son had a large pheochromacytoma removed on 22th april. and just a few days ago we found out he has another 5 tumours.
hi, i was reading about what it means to have both. My husband only has paraganglioma which technically means his aren't cancerous but it does have kind of the same treatments. and since his are hereditary i have to worry about my children having them as well. If you wanted to, maybe you can explain what it means to you for your son to have it? My husband had two tumors removed from his neck april 8th of this year. were only 3 months into recovery and have 4 more tumors ahead of us. where are your sons tumors? if you dont mind me asking.? i know they are still different in many ways but anyone who knows even a portion of what you have to go through is almost better than not having anyone have any idea what its like. that is why i found this site
My partner is diagnosed with paraganglioma vesscular tumor in her inner ear. It's quite big and she has lost hearing from one side. It is connected with nerve vessel aswell. Any information about? Thnx
