About 8 weeks ago, my wife had woke up with double vision, a trip to the GP seen us going straight to the local eye hospital, they in turn gave her prisms for one lens to correct the fault whilst we awaited a CT scan.
And wait we did! A week went by with no appointment made, dozens of phone calls to the specialist proved fruitless, and even when I contacted the radiology department directly, there seemed no urgency.
Five weeks later we had the scan, and had an appointment to see the specialist the next day. He said ther was a mass behind the eye, and with her history,
( my wife has had breast cancer 8 years earlier) it didn't look good!
Would we like a quiet room?
We were shel shocked! He was blunt and thoughtless in the way we were told, we were offered no details and didnt know what to ask or do!
He said we would need an MRI scan and he would mark it as urgent. Probably come through in a few days!
A few days passed, and I phoned his secretary, who was less than helpfull, I pleaded with her to ask the doctor to chace up the scan request, another day passed, still nothing, and by the end of the week, my wife was looking and feeling worse, the secretary gave me the direct line to the radiology department.
They told me they had received the request, but were waiting for their specialist to prioritise the scan, could take up to 3 weeks!
In desperation. I took my wife to A&E who were fantastic, although we were shuffled from department to department, after 11 hours, my wife was in a ward, MRI scan booked for the next day, another CT scan, and a bone scan, can't praise them enough!
¿eve been told from the results, she has bone cancer, putting pressure on the pituitary gland, and are waiting to see the top oncologist in a few days.
The Macmillan nurse said they intend to put a rod directly into the affected bone area and blast the radiotherapy directly in!
We're all in shock! Our two kids have been great, and friends and family are rallying round, but to be honest, I'm in pieces! I'm thinking doom and gloom, whilst trying to be positive, be the strong one, whilst all the time I'm breaking down , I cry at the slightest nice gesture anyone makes, I think selfish thoughts about what will I do if she dies? I feel sick , and all sorts of things keep me awake at night, I'm cracking up!
Anyone know what we can expect with the treatment, and how it will affect my wife?
Thankst
Paul
