Hi all, I today receievd an unexpected (Well I was hoping it wasn't) diagnosis of Vulvar Squamous Cell Carcincoma Stage 1B. I am numb at the moment (wine is helping :0)) and am trying to prepare myself for the road ahead. I am 40 years old, married with 3 kids aged 21, 16 and 7 and although I am trying to be positive I can't help thinking that the road ahead is going to be rocky. I am seeing an Onc Gyn tomorrow and I understand further tests and surgery will follow. I presented with what was suspected as HPV warty lesions and removed surgically 5 weeks ago. Histology of biposy received today shows good margin around area removed hower my Gyns advice is remove a wider area. He cannot confirm that it has not spread beyond. Advice is to have further surgery to remove a wider area and to check lymp nodes. I am quite surprised at how little information or support is available for this type of cancer so I would love to hear from anyone who has been in my boat. I of course would love to offer support to anyone going through any type of cancer, I am a little tearful but I am determined to do what I have to to beat this, educate people, especially my daughters(and son!) and i truly believe that knowledge is power and with the right positive support we can all learn, support each other, educate others and achieve something regardless of our long term prognosis.
My mind at the minute is very much with how to tell my elderly Mom, family and friends and decided to wait until after my appointment tomorrow before making this decision. This is a toughy!! Any advice?
Thanks for reading
