Hi Urostar

He was in REME.  He was in the army for 27 years.

Thank you for your kind message, he is special (although I have to remind him now and then that I am not one of his Squaddies!) 

Hi Gardenlady

Thank you so much for your message, really kind of you to write.

You are right in that the waiting is the most stressful.  His MRI is not until 23rd and then we wait another week for results.  It's like torture, really.   I kind of thought that once he was diagnosed they would move a bit faster.

He is sleeping a lot, most of the day.  He seems better in the evening for a few hours and plays on his Xbox with his mates, this seems to take his mind off things a bit.  We have gone into a strange twilight zone, sleeping and eating when we feel like it.  I am knitting him a cardigan and sit beside him while he sleeps.  He has been better than I thought, I think I took the news worse than him.  

Thanks again, it means a lot to hear from people who have got through this.  Hope you are both well and happy for a long time to come x

Dear Clare

Thank you so much for your message.  Really glad to hear that your husband has passed another hurdle and I hope it all works out well for him.

The children are in their early twenties, two of them have exams soon so we are going to wait until after those and until we know the result of the MRI.  It's going to be about three weeks before that is done and the results are in.

He is sleeping so much, I never knew him to sleep in the day.  I like napping and he used to get cross about it    I am sitting beside him and knitting while he sleeps, he seems to like me being there when he wakes up.

Thanks again for writing,  I hope your husband continues to make good progress.

Best wishes, Jackie x

Hi Anne

So sorry to hear that your husband's score was so high.   I hope the treatment helps him to have a lot more time with you.

I am terrified I am going to lose him.  Is it normal to be absolutely convinced I am?  Not showing it, but really frightened.  Long wait for the MRI and the results of that doesn't help, my mind keeps trying to run away with me.

He is more worried about the loss of sex life than I am, I couldn't care less as long as he is still around.

Thanks for writing, it means a lot to me.

Best wishes to you and your husband

Jackie x

Hi Annabel

Sorry I didn't get round to replying sooner.  It has been a very strange week, to say the least.  Feels a bit like suspended animation, we are sleeping and eating when we feel like it and just being quiet at home.  He sleeps a lot.  It's a bit of a wait now for the MRI and results of that, then things will be clearer.  It's the waiting we are finding difficult.

Thanks for writing to me, it means a lot to hear from you.

Hope thing are good with you and your husband.

Best wishes, Jackie x

Hi Jackie,

      I found the first week very strange, with nobody else knowing , and your right it feels a bit unreal like suspended animation. i think all the tongue biting was incredible. I met people I hadn't seen for a year and they would tell me how incredibly well I looked. I was wanting to shout but I've been given the C diagnosis. So many ironies in life.  Everyone it seems finds the waiting hard. I have had my operations last Thursday and am now at home and yes waiting again whilst they dissect my womb. This wait might be up to a fortnight!!!. Once you know results of scans etc you have something to focus on and the next stage to try to understand/ anticipate.

My husband has been brilliant and even though he is now telling me off a lot ( because I am not the sort to sit and do nothing) . There are a lot of don't lift that, don't touch that, leave that alone, going on in our house and I wasn't even aloud to walk the dog this morning in case I slipped in the snow. Frustrations coming in. I have to say though I am going back to bed at some point in the day as I am needing to pace myself.

I really hope your husbands results are good and you get the care you need, including support. If there is anything I can help with, do ask, even if it's just chatting. Wishing you both all the best,

Annabel.

Hi jackiec,  Just wondering how you both are and if you should need more information after the MRI  results we found the 'toolkit' available on www.prostatecanceruk.org   helped us to understand  the medical terms the doctors and results threw at us, helped us a lot.

Good luck with the results, keeping everything crossed for you, take care, gardenlady.

Message was edited by: gardenlady

Hello Woodworms, If the Cancer has spread outside of the Prostrate into the Lymph Nodes, is that bad then?

Hi jcjac59. Welcome to the forum.

I am not a doctor. However I did have surgery for prostate cancer back in 2010. I did a lot of research at that time and I've tried to keep reasonably up to date, but of course my understanding is necessarily limited. 

Prostate cancer is easiest to cure when it is still contained within the prostate. These are stage 1 and 2 cancers (T1 and T2).  With these early cancers, there are many treatment options and they are nearly always curative. In other words, the cancer is eradicated and doesn't usually return. The most common treatment option is surgery, but it's not the only option. 

When the cancer begins to spread to the lymph nodes (stage 3 or T3), it is still often possible to cure it. A common approach is hormone therapy, then surgery to remove the prostate and all the affected lymph nodes, followed by a course of radiotherapy and possibly more hormone therapy.  This is often successful in effecting a cure, but treatment and cure depend on many factors. It's best to talk to one's own consultant about treatment options and expected outcomes. 

Cancer that has spread away from the prostate (stage 4 or T4) usually can't be cured, but there are still effective treatments that can control it for a long time, with a lot of research being done to develop new drugs. 

Hi jc if C has spread you can still have a good life (look at me) mine gone from prostate to the lymph nodes then pelvis, spine & ribs, its been with me for over 3 years now I'm still feeling OK, like telemando says it depends on results of tests.. By the way I've still got my prostate. It's waste of time to operate if it's spread to much,

Billy