Hi chocchip!!

Oh you poor thing!! I'm sure your not meant to be suffering that much!! Could you phone an emergency doc for advice? Nurses here are very good with medical advice too!!

Failing that I can relate somewhat as had ulcers down below and was excrutiating when I went to the loo. When I was in hosp the doctor gave me a gel which acted as a barrier and was a complete godsend!! It came in a seringe but I can't remeber the name!! I will try to find it for you!! What about Vaseline? For now? Got any handy to act as a barrier?

It sounds as though it's not just barrier cream that you need tho if I read your post correctly! I do hope you get some medical advice and don't suffer unecassarily!! At least checkout if it should be that bad maybe?

Welcome to the site I hope you get some more helpful posts soon!!

Ann

Hi Ann

Thanks for your reply. Oh that would be great if you could find out the name of that cream and I can run it by my nurse to see if its ok. I had the catheter put in today but I'm ok if I'm lying down in bed. It's actually painful when I'm walking around or sitting so ill need to see my nurse tomorrow at the hospital. It's one if those catch 22 situations. If I take the catheter out I'm in agony peeing but it's sore with it in. I wonder if anyone else on the site has had to use one. Be good to get a bit of feed back.

Seems like a good site to be part of. Thanks Ann for replying so quick.

Nice to talk to you. X

Hi chocchip

Well good news Hun I found an old one ( shows how often I clear out my bathroom cupboards!!) it's called Instillagel- it comes as a gel in 6ml syringes ( it may come in other forms) anyway as I say when I was in hosp it was given by doctor for vaginal ulcers which I was crying with when peeing!! I don't think the doc ever experienced a patient so grateful!!! I knew I kept it somewhere so I knew what to ask for if I ever get it again!! Aswell as cancer I have a rare condition called Bechets which comes with ulcers but I had never had them there before!!

I do hope you get releif tomorrow- please let me know!!

Ann

Hi Ann

Oh you are so kind. I will mention it tomorrow. I hope I can use it with my radiotherapy. I've never heard of bechets before. That sounds horrendous. I've not got ulcers. Gee wiz my lady bits never looked so bad I look as if I've had some sort of botched up plastic surgery ha ha. Well hopefully by the time our so called British summer arrives I'll be looking a bit better lol. Thanks again Ann. Away to cuddle up to my new friend the ' night bag'.

Talk to you soon X

No probs Hun

I hope it's usable with ur radiotherapy!! I read it it's a local anesthetic and lubricant. Worth asking I reckon.

Erm let's not talk about state of bits down there!! Don't get me started chocchip!! Desina Vagina for the summer!! Lol

Goodluck Hun!!

Ann

You are my life saver today Ann. Tried to sleep last night. Not a chance. Got to hospital and was in some state. It was like a razor blade over every bump in the damn road. I phoned my nurse earlier on in the morning and she said to come straight in before treatment and she would remove catheter. Ahhhh what a relief.

But it's you I have to thank Ann for I mentioned to her about the instigell. I know I've spelt it wrong. She wanted to keep me in because of the state I was in but I've came home and tried the gel. It nips a little but then it numbs not completely but enough for me not to be scared to pee.

So big mega thanks for that.

Enough about me. How are you today. Are you going through treatment at the moment or in recovery?

So glad I came on here if I hadn't I'd be totally miserable today.

Talk to you soon.... Laura X

Hello chocchip,

I had exactly the same problem (and others) when I had chemo/radiation for anal cancer almost 2 years ago.  Yes, I used the installegell - I found the trick was to put it on 5 mins before going to the loo.  It stung like hell and I used to count backwards from 50 with a pillow stuffed in my mouth but it was worth it.  The other couple of tricks are to lean right forward when sitting on the loo to wee so that the pee shoots out behind without touching your genitals - oh and dousing yourself with water from a water bottle will dilute the urine.  Sorry to be so graphic but having had anal cancer has left me with no sense of modesty.

Good luck with the rest of your treatment.  Do come back on here and scream if you need to.  I should say that in spite of all the pain and trauma the treatment for me was worth it as it (so far) has completely destroyed the cancer which was at stage 3B.

Hugs

Jan x

Hello Ann.

Yippee it's Friday !!!!!

Plan to have a nice long lie tomorrow after my yukky week. Well next week is my last week of treatment. It seemed so long at first but the amazing people /friends I've met over the last couple of months have made it fly by.

Got home today and was sitting down with a coffee when the phone rang. It was my nurse. She just wanted to phone and see how I was after my wee situation yesterday. We had a nice wee chat. I thought it was so nice of her especially as she's run off her feet every day. She really made my day!!!

Wow you've had some difficult decision to make Ann. Everyone can give opinions etc but at the end of the day it's your body and your choice and you wonder sometimes if your doing the right thing.

I'm fortunate in the sense that my diagnosis was fairly straight forward and my treatment seems nothing compared to the some of the posts I've read on here.

But everyone has their own journey eh!! No matter how long or short.

Having cancer isn't nice in fact it's absolutely pants !! But I'm such a different person now to the person I was. I don't worry about silly things anymore

Don't take things for granted. Ha ha I'm not saying I've turned into Wonder Woman. Still the same person a bit daft at times but now I luv my life even more !!

I'm good at talking out loud but not so good at getting my points across on paper. But I think u get my drift.

I'll have a look for sure on the thread you mentioned. I agree it's good to be able to laugh and chat about non cancer stuff too.

Have a nice weekend Ann what ever you do.

For me it's a relaxing duvet day tomorrow.

Talk soon Laura x

Hi Jan,

Thanks for replying. Yeh I totally get that biting into the pillow stage. I could have got a part in one of the Twilight movies. I was literally howling like a wolf lol. It's good to share experiences on here coz it makes you realise that when everyone says " stay strong" it's okay not to be some days. Like I was talking to a friend recently and she was asking about my radiotherapy. Well she did ask so I told her and to be honest I don't think she believed me. She said that her aunt didn't have severe burns. I tried to explain that all burns are severe and because of where I was being treated it was a bit more delicate. The fact that I'd been put on morphine didn't seem to mean anything. I was so frustrated with her attitude I felt like standing up and showing her lol!!!

But I refrained from flashing and spared her from collapsing with shock ha ha.

So coming on here chatting to people who've had all the " experiences" is brilliant. We all know what it's like and it's ok to share without bring judged.

Glad to hear that you own treatment was successful. That's great news. How long did you take to heal Jan?

I know everyone is different. Would be interested in any lotions or potions you used after treatment to help you along. Or just any general advice you could give.

Nice to chat to u Jan

Have a nice weekend!!!

Laura x