l am looking to talk to anyone that has or is going through pagets disease of the vulva
l am looking to talk to anyone that has or is going through pagets disease of the vulva
Hi I looked it up on google, tells you all about it d you could probably go to images and a look at examples. Those pics are always a bit scary!
i saw the radiographer this afternoon and am going to go ahead and have the treatment. Not much choice really as it will just keep returning and with luck this therapy will put a stop to it
5 daily visits for 3 weeks, each session taking around 10 mins. It will take over an hour each way so shall be tired just through the driving let alone the reactions. I was told the peak will come 2 weeks after the 15 sessions and will probably be given morphine. Watch this space! Euni
she didnt suggest it but i'm not sure i'd be comfortable doing it over camera lol & tbh its something she would need to feel as opposed to see.
I hadn't hear of it either until the night i found the lump & basically googled "lump on labia" & it came up. Apparently its a blocked duct or something that secretes sexual lubrication fluid ... don't ask me how it becomes blocked lol. But apparently its more common in sexually active people or if you might have an STI. I don't fall into either of those catagories hence my concerns/not being convinced that it's that.
Thanks Shars. He didn't pull any punches about what to expect either, but forewarned is fore armed. It won't be pleasant and will be very painful and unpleasant. My cancer nurse was there and I told her about your treatment, she offered her sympathies and said it must be extremely painful and very difficult to live with, especially keeping everywhere as dry as possible.
something I found which might help you and others was a way of getting dry after washing. I used an old large cotton handkerchief. After drying all over with the towel including into the groin I opened my legs wide and gently put the handkie between the "lips", no rubbing more just holding it there. This has worked well for me and might help you and others, hope so
sleep well Euni
Let's hope it goes as she said, but you could always ask again in a few weeks time. Do you have nurse Practioners? We do and it was her who got me sorted and arranged biopsies etc
good luck E
This sounds very promising! Fingers crossed it does the trick : )
Let me know how it goes.
I'm also here if it gets a bit painful - Being in pain especially down there can be really exhuasting
x
I'll try the hanky thing - it's true it's really hard keeping it dry and trying to minimise friction
x
It's amazing the things you discover when goggling! I've learnt something new! ; )
Fingers crossed it resolves itself like your GP said. It's so worrying to find anything tht shouldnt be there.
x
Hi it has suddenly come to me the name of the cream was Eurax and can be bought in Boots. If you Google it you can see it might help you. It did me but a word of warning when you first put it on there is a warm burning feeling, not too unpleasant, then the itching stops. It's £3.50
Euni
Hello Shars. I wonder how you are progressing. I had my 15 sessions of radiotherapy which finished in July. I'm glad they didn't pull any punches about what to expect because it was as painful as they said and no pain relief covered it. That's all in the past and I'm up and kicking. I've not been checked out as I should have been, I suspect all this COVID has put them under considerable stress. I will contact them next week as I don't want to fall out of their radar.
I'm not in pain, which is wonderful but it's not as it was. Having had all that area "burnt" it's now all new skin, smooth and pink!! I was given a set of vaginal dilators- I call them my sex toys, which makes all my friends laugh. They come in lots of sizes and I have to use them at least twice a week for at least 2 years. It's to stop an lesions forming which would make any examination in the future impossible. All I have now is a discharge which is "normal" as the radiotherapy can affect internal parts as well - from erethra, vagina and back passage. It did affect my bladder a lot but I'm more or less over that.
enough about me, how are you? I do hope your cream is working and your pain is bearable
best wishes Euni
Hello Shars. I hope this reaches you as the first time I sent it, it came back to me!
I wonder how you are progressing. I had my 15 sessions of radiotherapy which finished in July. I'm glad they didn't pull any punches about what to expect because it was as painful as they said and no pain relief covered it. That's all in the past and I'm up and kicking. I've not been checked out as I should have been, I suspect all this COVID has put them under considerable stress. I will contactthem next week as I don't want to fall out of their radar.
I'm not in pain, which is wonderful but it's not as it was. Having had all that area "burnt" it's now all new skin, smooth and pink!! I was given a set of vaginal dilators- I call them my sex toys, which makes all my friends laugh. They come in lots of sizes and I have to use them at least twice a week for at least 2 years. It's to stop an lesions forming which would make any examination in the future impossible. All I have now is a discharge which is "normal" as the radiotherapy can affect internal parts as well - from erethra, vagina and back passage. It did affect my bladder a lot but I'm more or less over that.
enough about me, how are you? I do hope your cream is working and your pain is bearable
best wishes Euni