I have been diagnosed with this rare disease, at present precancerous and will see surgeon in 2 weeks 

There is little info on line except from USA which I understand is differently treated to UK

how are you and where are you at in your treatment. Best wishes Euni

Hi wonderful to hear from someone else. I had some skin removed in April which prioved to have just 2 cells that were cancerous. Mine was towards the front and one side only which is an easier area to do as there is spare skin. I had to keep the area well ventilated ! So no pants and loose skirts, but it was summer time so no problem and in fact I quite liked it. I healed quickly but in September an adjectival area didn't feel right so I had that done and it was a much smaller area and proved to be clear of cancer. I am now awaiting another one at the end of April. Each op is smaller than the last and I get over it quicker. However normal trousers are out as they are too tight and I alternate between skirts and tights and track bottom or leggings. A whole new winter wardrobe. The ops are now totally healed and feel just like they should, not painful and not aware of them

in the UK it seems surgical mainly to remove the skin before it become cancerous. In America they seem to go straight for the cream.  How old are you? I will be 76 next week

keep in tough and let me know how you get on.  I have told so many people and all the ladies have been pleased to know about it and to watch out for themselves .  One is being investigated for it soon  

Meant to get back sooner!

Hope the appointment went well and youre feeling a bit more confident as to what youll do next. They saw you really quickly that's great x

Your GP sounds quite confident this is what it is. 

Can your GP not do the web appointment or send them a picture or film footage of it? You may have already have done this.

I'd not heard of a bartholins cyst - does it just go by itself over time? 

It's so hard to not worry when you haven't been examined properly you can only keep pestering them until they see you. It may be worth them taking a swab.

Shars x

Hi I looked it up on google, tells you all about it d you could probably go to images and a look at examples. Those pics are always a bit scary!

i saw the radiographer this afternoon and am going to go ahead and have the treatment. Not much choice really as it will just keep returning and with luck this therapy will put a stop to it

5 daily visits for 3 weeks, each session taking around 10 mins. It will take over an hour each way so shall be tired just through the driving let alone the reactions.  I was told the peak will come 2 weeks after the  15 sessions and will probably be given morphine. Watch this space! Euni

she didnt suggest it but i'm not sure i'd be comfortable doing it over camera lol & tbh its something she would need to feel as opposed to see. 

I hadn't hear of it either until the night i found the lump & basically googled "lump on labia" & it came up. Apparently its a blocked duct or something that secretes sexual lubrication fluid ... don't ask me how it becomes blocked lol. But apparently its more common in sexually active people or if you might have an STI. I don't fall into either of those catagories hence my concerns/not being convinced that it's that. 

Thanks Shars. He didn't pull any punches about what to expect either, but forewarned is fore armed. It won't be pleasant and will be very painful and unpleasant. My cancer nurse was there and I told her about your treatment, she offered her sympathies and said it must be extremely painful and very difficult to live with, especially keeping everywhere as dry as possible.

something I found which might help you and others was a way of getting dry after washing. I used an old large cotton handkerchief. After drying all over with the towel including into the groin I opened my legs wide and gently put the handkie between the "lips", no rubbing more just holding it there. This has worked well for me and might help you and others, hope so

sleep well Euni 

Let's hope it goes as she said, but you could always ask again in a few weeks time. Do you have nurse Practioners? We do and it was her who got me sorted and arranged biopsies etc

good luck E

This sounds very promising! Fingers crossed it does the trick  :  )

Let me know how it goes. 

I'm also here if it gets a bit painful - Being in pain especially down there can be really exhuasting 

x

I'll try the hanky thing - it's true it's really hard keeping it dry and trying to minimise friction

x

It's amazing the things you discover when goggling! I've learnt something new!  ;  )

Fingers crossed it resolves itself like your GP said.  It's so worrying to find anything tht shouldnt be there.

x

Hi it has suddenly come to me the name of the cream was Eurax and can be bought in Boots. If you Google it you can see it might help you. It did me but a word of warning when you first put it on there is a warm burning feeling, not too unpleasant, then the itching stops. It's £3.50

Euni

Hi it has suddenly come to me the name of the cream was Eurax and can be bought in Boots. If you Google it you can see it might help you. It did me but a word of warning when you first put it on there is a warm burning feeling, not too unpleasant, then the itching stops. It's £3.50

Euni