I have been diagnosed with this rare disease, at present precancerous and will see surgeon in 2 weeks 

There is little info on line except from USA which I understand is differently treated to UK

how are you and where are you at in your treatment. Best wishes Euni

Hi Euni,

ive just been diagnosed with Paget’s disease of the vulva. It’s quite extensive but all of the biopsies came back as non-invasive.  

im hoping to start the cream in the next months and then take it from there. They don’t want to go straight for surgery due to my age. The options all seem very limited.

howve you been? 

Ive tried researching it too and all seems to be American studies and not much down here.

how is the treatment in the u.s different? The studies I looked at all seemed to be surgical 

Hi Euni,

ive just been diagnosed with Paget’s disease of the vulva. It’s quite extensive but all of the biopsies came back as non-invasive.  

im hoping to start the cream in the next months and then take it from there. They don’t want to go straight for surgery due to my age. The options all seem very limited.

howve you been? 

Ive tried researching it too and all seems to be American studies and not much down here.

how is the treatment in the u.s different? The studies I looked at all seemed to be surgical