Mums turn....

Hi there, i'm writing this today before i travel to see my mum (she lives in a different county), she told me on friday that she has lung cancer. We don't know how bad it is yet, she's had a ct scan and she's to go to see the doc on tues, so all is not lost yet, however, it is going to be so hard to stay positive because almost 11 years ago we were all in the same position, as my dad also had lung cancer and we had to watch him go, he died 28 days after being diagnosed. When my dad told me about himself, and then we went to visit them, i knew he wasn't going to get better, before he knew himself, (he looked shocking), and now, i am dreading seeing my mum incase i feel the same again, what if i know? how can i keep smiling? she keeps apologising for losing weight and that i'll be shocked. this sounds so selfish i realise as i'm writing this but i can't help it. my sister was 11 when dad died and now she's 22 and has a 4 year old daughter who dotes on her grandma,(as they live right next door), if it is bad news how the hell do we tell her? i have an 18 month old son, he doesn't see his grandma as often and at his age will not likely remember her so it will be easier for me to deal with in regards to him, but what about my dear sister and niece? i realise how negative this reads and i know it is, but having been here before, i can't snap out of it, i just want my mum to be ok. i am quite a private person, and keep my emotions in check, so i won't upset my mum, stepdad or sister, just wanted to share, because i need some other people to talk to because i can't keep it all to myself. My fiancee has been brilliant as he was there the first time round so knows whats going on, so its not like i don't have support, just want to chat thats all. sorry for the negativity.

  • Hi Terribear

    Thanks for the update and that is good news for your mother-in-law.  Sorry to read about your own Mum but fingers crossed that her treatment plan helps her condition and I am sure having the wedding to look forward to gives you plenty to focus on (its a wonder y ou have time to think!!).  Nine weeks is not so long and so exciting when you have a celebration in the family.

      My hubby is still 'hanging in there' (palliative care plan reviewed next week) though is suffering more discomfort/breakthrough pain in the last couple of weeks but decided he could wait until planned appointment.  Have a feeling he will have new scans which will show spread but dont want to pre-empt findings!!

    We have a wedding reception to go to early August and a new grandchild due in October so plenty of good things for me to focus on.

    Take care and wishing you all the luck in the world for your future married happiness.

    Jules

  • Thank you Jules, sorry to hear about your hubbys pain, and again you that has to watch him suffer, he is very brave, 'toughing it out' til next appointment, I'm sure I couldn't! Thanks for the well wishes, yeah I'm sure my mum will be fine, she's struggling with the news though, but if we keep positive too we'll keep her up I hope. I'm driving over in a bit, staying the night and fetching them over in the morning so me and sis can have our dress fittings so it'll keep her mind off things for a day at least. Mum in law feeling great so that's fab. Thanks again for well wishes and good luck for hubbys appointments and any scans. Take care x

  • Dress fittings - very exciting. Your Mum will really enjoy that.  My daughter's anniversary is on 7th July (6 yrs married) and her dress fittings always filled me with happiness (very emotional too!!).  Sounds like you will all have some 'girly' time.

    Hubby had his check up (no scans this time) and apart from adjusting medications for him to try (they have so many different variations available) for a couple of weeks and arranging for next check up in2 months to see how he is getting on, everything else appears stable (weight, blood/oxygen levels etc).  They picked up on his lack of motivation now that he is unable to  carry out his full work potential (workaholic for 40 yrs is a difficult thing to face!!) as an engineer (never wanted to retire so is very frustrated that he is stuck at home).  Anyway they have managed to get him to agree to see a therapist to try and get the most out of his situation rather than sitting in front of tv all day when he is still able to get about unaided at present.  It would be good if he could find something to enjoy whilst he can.   I am on a week's leave next week and have planned a couple of lunches out and am hoping to watch some Wimbledon and get into the garden weather permitting.

    Have a good weekend.  Jules

  • you need to stay strong and positive for your mom. You seem like a very strong person and I am sure you dad wants you to be ther for you mom  x x x

  • hi jules,

    yeah i'm sure it is very hard for him, going from one extreme to another, i was twiddling my thumbs days into maternity leave so i can only imagine! i suppose he was too busy working to have many if any hobbies, but is there owt hes always fancied having a go at?

    yeah my mum enjoyed herself at our dress fitting, and afterwards when we went shopping for her outfit, she found something as soon as we walked in the shop, it was so easy, but she loved dressing up 'posh' lol .

    well, just waiting for a call for her to go for an ebus, and possible further biopsy on lymph node at preston, and until then we're just still waiting. thats the hardest bit, because shes had no treatment whatsoever yet and yet its spread further and they have confirmed it is cancer and while we're waiting its spreading all the time, so thats whats doing mums head in more than owt really. ive tried to reassure her that its been quite slow spreading because its taken since nov to get across to the other lung and yet my dad was only poorly, diagnosed and died within around ten weeks altogether so hopefully thats given her hope. so just the waiting game still. im sure all will be fine.

    hopefully andy murray will get through so you can watch him win enjoy your week off and take care x

  • hi lauren,

    thanks for the well wishes, yeah i am strong (to a point) and yeah keeping positive, i'm sure itll all work out fine.

    thanks again, take care terri x

  • Hi terribear

    So pleased you had lovely shopping trip. Retail therapy especially for something so special is very rewarding.  Keeping that positivity will mean so much to you all during all the waiting around and you are obviously very closeknit which is just great.  Hope the waiting is soon out of the way and treatment can get under way and am sure that would put your Mum's mind at rest a bit once something is being done.Will keep everything crossed for you and send lots of hugs.

    I did some retail therapy myself this morning and it really cheered me up as I found an outfit for an evening wedding reception we are invited to at beginning of August (old workmate of hubbys).

    The tennis is keeping me on the edge of my seat and still can't call it!!!  Enjoyed my strawberries though and think next year will have to go and see it live!! Last time I went it was in the seventies so about time I did it again. Hubby is going into work tomorrow so I plan a relaxing day and maybe the weather will be brighter so I can put my feet up in the garden rather than on the sofa!!

    Take care of yourself and hopefully will chat again soon.  Jules xxx 

  • hi jules, i'm trying again as i've tried several times to post since before andy won, to no avail! can you believe my mum is still waiting for some results from her ebus, she said it was the worst one shes had done yet, and poss still got to go for a biopsy on her lymph nodes, shes still had no treatment whatsoever, i'm getting a bit alarmed now if i'm honest, but i haven't said that to her, shes worrying enough herself as it is. anyway, not to worry, i'm sure they know what they're doing.

    hows the hubby doing, ok i hope? and you too i hope?

    i'll get off and hope this works this time!

    speak soon, take care  terri x

  • Hi, lovely to hear from you and yes the message has made it.  How frustrating for you all that your poor Mum is still hanging around awaiting results/biopsy - any chance your GP can have a go at 'chivvy' them along.  It would be good to know what the treatment plan is to be and then I am sure you could concentrate more (know it does not leave your mind for long) on the forthcoming wedding celebrations.  Have they given any reason for the delay at all? Perhaps a chat with the nurses on the freephone number on this site could give you some insight into why this might be taking a while.

    As to us, hubby is not doing too bad though the hot weather is making it a bit more uncomfortable for us all!!!  He has managed a couple a days a week at work and has had his pain relief 'cocktail' played with and during the past week says it is working better on the breakthrough pain which is obviously a great help. Talking about his health with me/family is still an issue for him so having 'said my peice' last week I have told him I will not refer to it again unless he starts the conversation.  This has resulted in a much more 'relaxed' wife (so far) and the atmosphere is a lot less strained (laughter can again be heard from time to time and general conversation is improving).  We have several social weekends coming up and this coming weekend we are having our grandson overnight (first time for a while).  As long as I can keep playing snakes & ladders/connect 4 maybe we can keep the garden games to a minimum (he has already had major nosebleed/gippy tummy probably due to the hot spell but try keeping a  4 and a half  year old still is very difficult - he loves to be outside and runs everywhere.

    Hope you keeping well yourself and probably getting excited too.  Wishing you all the best in the coming week.  Hugs to you all. Jules

    P.S  Andy Murray was awesome and we watched the final with our kids/family so created our own 'atmosphere' round the indoor picnic table (grandson very good at playing on his own in the garden - think my daughter had warned him we would be 'off limits' for garden games till the match was over!!!!

  • Aww cool, that sounds like it was a lot of fun   oh I'm glad to hear your hubby is doing so well, even managing some work, bet that lifts him somewhat too, and my dad was the same, he didn't really say much, in fact when he found out it was too far gone, his words to me were ' I'm buggered' ha and that was about the gist of it! That said, we didn't really focus on the negative, just enjoyed whatever time we had left (which turned out to be 17 days but they were relaxed and happy and normal times).

    Yeah I am getting excited now only 4 weeks off! Not so excited about all the cheques/electronic transfers ring made for it though haha my mums results came back, and guess what.... Inconclusive! Can't actually believe it now. Getting so frustrated. She's to go to the hospital on Friday for a consultation because they're sending her to another surgeon for a second opinion. She says if they want to 'open her up' she's not going to do it before the wedding or even at all. She's convinced if they take her lung away which is an option potentially, she won't survive or last long afterwards, so she says she might just take her chances. I'll do whatever I can to help and support her because ultimately its her decision. But we'll wait and see what this new surgeon says and also her own doc who she's also seeing on Friday, he might have made some enquiries I hope. And yeah I'll maybe give the nurses a ring if there's no news on Friday.

    Charlie's just learning to use the potty so I'm up and down with him, he's doing fab, its like a little toilet, but sings and tells you if you've done anything and even has a flushing noise lol and then a sticker for his chart for everytime he uses it. He's a bit obsessed with it, but I suppose that's a good thing!

    Glad to hear all is well, speak soon

    Take care Terri x