Mums turn....

Hi there, i'm writing this today before i travel to see my mum (she lives in a different county), she told me on friday that she has lung cancer. We don't know how bad it is yet, she's had a ct scan and she's to go to see the doc on tues, so all is not lost yet, however, it is going to be so hard to stay positive because almost 11 years ago we were all in the same position, as my dad also had lung cancer and we had to watch him go, he died 28 days after being diagnosed. When my dad told me about himself, and then we went to visit them, i knew he wasn't going to get better, before he knew himself, (he looked shocking), and now, i am dreading seeing my mum incase i feel the same again, what if i know? how can i keep smiling? she keeps apologising for losing weight and that i'll be shocked. this sounds so selfish i realise as i'm writing this but i can't help it. my sister was 11 when dad died and now she's 22 and has a 4 year old daughter who dotes on her grandma,(as they live right next door), if it is bad news how the hell do we tell her? i have an 18 month old son, he doesn't see his grandma as often and at his age will not likely remember her so it will be easier for me to deal with in regards to him, but what about my dear sister and niece? i realise how negative this reads and i know it is, but having been here before, i can't snap out of it, i just want my mum to be ok. i am quite a private person, and keep my emotions in check, so i won't upset my mum, stepdad or sister, just wanted to share, because i need some other people to talk to because i can't keep it all to myself. My fiancee has been brilliant as he was there the first time round so knows whats going on, so its not like i don't have support, just want to chat thats all. sorry for the negativity.

  • Hey Jules and mickie, sorry havent been on for a while, my grandad been poorly, so been errand running etc. He's on the mend now so that's good. Mum in law doing really well, defo going to have radiotherapy but unsure about chemo yet, next appointment on 25th march to discuss. Latest with my mum was that they cane back yet again inconclusive so she's having to go under the knife, they're going to take a sample and test it while she's under and remove if t is cancer....so she went to hosp today for pre op tests, ecg, lung capacity test, chest xray etc, and they've told her both her lungs are working at 50% and that she has a little fluid on them, but worst news was that she has emphysema. She wouldn't tell me much over the phone, but doesn't sound good,  I was going over tomorrow anyway for a couple of days so she says she'll tell me all then. That's not a conversation I'm looking forward to. She also has to do a walking test to see if she's even fit enough for the op. Still don't know if she has cancer or not, but it has spread a bit according to the xray, but she won't tell me how much. Lets just hope its the one thing and not both. Emphysema can't be cured but helped out with medication to some extent. Anyway, I will see what she says tomorrow.

    Glad to hear your cousin is doing well mickie, that's fab news.

    And hopefully Jules that's the last of the snow this year!

    Keep smiling buddies

    Terri

  • Hi Terribear

    You have had your hands full, so much going on for you and the familyand still  in the dark re your Mum. Hope when you see her you will find out exactly whats going on and  maybe she will have some sort of treatment plan in place for the emphasema. I have not met anyway with this but believe it really affects the breathing (much like what my huibby's worst side effect is with mesothelioma), so assume it will be medication. Lets hope things will be much clearer when they get the samples done.  V. Good news re your  mother in law and hope the rest of her treatment goes well.   Thank you for updating your thread, always nice to hear how things are going along.  Enjoy the time with your Mum and hope you keeping okay yourself.  Jules

  • Hey Jules,

    Well, found out yesterday mum in law has to have chemo, because the result for one the cancers came back as the aggressive one, starts a week on Tuesday. We're all gutted for her cos she was really looking up, in fact she was asking to have our son back, he looked after him while we work, so she's devastated, mainly because she absolutely dotes on him, so she's going to have him a couple of days this week and get plenty of cuddles in before she starts treatment. She was upset at first but has come round to he idea because we all thought from the start that it was more than likely that she would have to have it.

    And my mum, well, she's got to do his walking test and if she's fit for the op, (which is a big if) then they might have to take away the full lung if it is cancer cos its spread a little bit (ant remember if I've already wrote some of this and can't see it while I'm writing ha) but if they do, its then seeing how she does or doesn't manage with the remaining lung which is only working at 50%, so its just a case of waiting and seeing what happens really. She will probably end up on inhalers and/or oxygen but for now she's doing ok.

    Just seems to be wave after wave of stuff going wrong, can't wait to have a bit of normality! Hopefully by the time of the wedding we should all be back on track, so roll on august! And yeah I'm keeping ok ta I'll manage, cos we do don't we?

    How about you, I'm always just talking about me, very selfish of me. I apologise.

    Terri x

  • Hi Terribear - just saw your last reply and I am sorry I missed it.  I try to check each posting each time on this forum but I must have missed yours.

    Hope everything goes well for your mum-in-law's treatment on Tuesday.  Will you have to arrange alternative arrangements for your son now.  Both my mum and mum-in-law help out but mostly my mum.

    In relation to your own mum hope she is fit enough for the operation and makes a speedy recovery.  I am sure you and your hubby's heads are turned at the minute having to cope with everything but as you say you have to manage don't we.

    Take care and look after yourself too

    Mickied

  • Hey mickied,  yeah we're going to look at getting charlie into a nursery now,friends were helping us out, but for such a long term thing I don't think its fair to expect them to do it, even though they've offered. They'll probably help us out at weekend's. Its just hard because hubby works 7 days and I work for Tesco as a manager so I have no choice but to do weekends, but I've managed to get every Sunday off on this 5 week Rota, so we'll see how many more I can get away with haha

    Yeah we are in a bit of a tizz at the moment, but we'll manage

    How about you? How's things?

    Take care

    Terri

  • Hi Terri - thanks for taking the time to ask about me and with everything else going on in your life at the minute.  It's hard having to work and bring up kids at the same time.

    Don't know how people managed it years ago but they always did - supposed they had to.  I am sure you are glad to get your Sundays off and before you know it you are back to Monday.

    I work full time myself 5 days a week and then 3 days the next week.  It can be exhausting but I would to sit in the house all day at the same time and then something has to pay the bills.

    We are off to a family christening next weekend from Friday to Monday.  I don't drive myself so hubby will have to.  He drives for work too so doesn't really enjoy the thought to a long drive.

    Well it is his sister and as he is doing godfather so he will have to grin and bear it.

    Have a nice weekend and take care

    Mickied

  • Sorry not such good news for your mother in law but at least she has treatment plan in place now. Sooner its done with hopefully it will help. Will keep fingers crossed for you mum too. Always such a worrying time for everyone. The children always manage to bring smiles to their faces though. Have just had visit from our grandson and despite the noise of him dancing to footloose (his favourite at the moment) hubby still managed to doze off for his afternoon nap. Got the connect 4 out and had a few games before we played hide and seek with a toy penguin which he was allowed to bring home for the weekend from nursery for being a good boy. Also has to write about Henry the penguin's weekend for his homework!! As he is only 4 think Mum will be helping with this project!!  My son in law is off work following a fall whilst making a delivery and has to go to hospital for physio as he has snapped tendons in his knee so is hobbling.  Other than all that we are ok. I have my health M.O.T. at GP on Monday (managed to get an appointment during my week off which has helped). Also have to shop for Mother's Day (as my Mum in care think a new cardi might be welcome).

    Stay in touch and we will I am sure chat soon. Jules

  • Hi mickied

    Aww, I don't relish long drives so much either, I feel for your hubby, but it'll be worth it for the christening and seeing everyone in their Sunday best, especially the wee ones and I suppose its a change from the same four walls. Its good that he doesn't have to drive back on the same day though, he can relax a bit knowing that once you all arrive. Just enjoy the day and spend time with family and friends and it'll be dab for you all I'm sure

    Yeah it is hard work, I sometimes don't know where I get my energy to even get up, but I must have some somewhere ha. I'm just concentrating on staying tough and positive and getting through this rough patch and I'm sure there'll be some good at the end of it all :)....even if its just to win a tenner on the lottery haha

    My weekend was good thank you. You enjoy yours

    Terri

  • Hehe footloose, fab!

    Aww sorry to hear about your son in law, bet that's painful! But yeah I agree, the little ones make all the difference, whether its my Charlie telling his grandma 'odins drinking water' (our dog)  or my 4 yr old niece drawing/scribbling letters for grandma to rake with her to hospital on the days she's been for biopsies tv while she's at school, they are just brilliant. They never cease to amaze, as cliche as that is ha

    Yeah mother's day, I'm sure you're mum will be suited with a cardi definitely. My mum will too actually, she's always cold at the moment, probably because ofthe weight loss. Mum in law is having a blu ray player, as she loves films and if she feels to ill to get up, she can watch whatever she likes in comfort.

    She's also bought a wig, she looks amazing with it on, in fact bro in law came in and asked if she'd had her hair done, really boosted her.

    So yeah, all calm at the moment this week unless mum gets her letter for walking test, then next week it starts again. So Sunday, we'll take a deep breath and carry on and get each other through

    I'm glad you had a nice time with the family, and hope you let your grandson win connect 4 hehe

    Speak soon, take care and keep smiling

    Terri

  • Well, after 7 months they've finally confirmed mum has lung cancer. The problem now being its spread to her other lung and also her lymph nodes. They can't operate because of the emphysema and the fact that the better lung has cancer now, so they going to give her chemo and radio, so we'll have to see what happens from there.

    Good news for mum in law in that she has her final chemo next week, she doesn't have to have radio, she just has to have herceptin for up to a year because of the type of cancer she has, so that's looking good. We get married in 9 weeks today and with all this stress I'm excited to have a great day but will also be glad when its done so we can concentrate on the family 100%.

    Hope everyone else is keeping fine xx