Hi Jane  (janeyhay)

I remeber your post in Feb and thinking of you as your situation was very similat to mine. It can be a scary place to be and a very big shock .

I was told in Leeds, my local hospital that it wasnt possible to have surgery when the ESS returnhed. My 1st CT Scan after my hysterectomy confimed there was no spread, great reief, Then the 2nd scan showe3d it had returned. I took myself off to the Royal Marsden specialist sarcoma unit in London and here I am now bk home,  thankfully successful surgery with a brilliant surgeon and a completed course of 6 weeks, every day, radiotheraphy treatment.  Although I feel quite drained and tired during the day I am feeling extremely well.

This web site and the chat furum iis certainly a life line with so much support from others. It certainly helps to feel you are not alone.and this site is full of caring people.

Ive just returned to the site and its sogood t read positive messages.

Please keep in touch and I hope all is going really well with you.

Sending huge hugs and lots of love

Susan X  (mumthumb)

I note that you are in the UK.  My question is about scans.  I have been told that I will not have regular scans, only have them if I show symptoms.  I am from Plymouth.  I have Intermediate Grade Endometrial Stromal Sarcoma and am ER and PR negative, Stage 1b with the tumour in the upper uterus and no involvement of the cervix and pelvic washes clear.  Seems a bit of a weird diagnosis - I am 64, active and not overweight.  I have never been on HRT or taken Tamoxin.  Only possible cause could be radiation exposure as spent a lot of time in orphanages in Belarus close to Chernobyl between 2004 and 2010.  I have my first 3 month follow up in December after a TAH-BSO in September.  How many scans / xrays do you have and do you have to fight for them?  Do you think they are any use or wouldvwatching for symptoms plus physical examinations find as much.  How are you doing now?  Hope all is well.

I note that you are in the UK.  My question is about scans.  I have been told that I will not have regular scans, only have them if I show symptoms.  I am from Plymouth.  I have Intermediate Grade Endometrial Stromal Sarcoma and am ER and PR negative, Stage 1b with the tumour in the upper uterus and no involvement of the cervix and pelvic washes clear.  Seems a bit of a weird diagnosis - I am 64, active and not overweight.  I have never been on HRT or taken Tamoxin.  Only possible cause could be radiation exposure as spent a lot of time in orphanages in Belarus close to Chernobyl between 2004 and 2010.  I have my first 3 month follow up in December after a TAH-BSO in September.  How many scans / xrays do you have and do you have to fight for them?  Do you think they are any use or wouldvwatching for symptoms plus physical examinations find as much.  How are you doing now?  Hope all is well.