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Still in shock after ultrasound scan..

kazeddy
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Hi everyone,

Thought I would introduce myself..I am a 35 year old mum of 2 and I have had a lot of health issues over the years,which has resulted in numerous operations.

The worst of which was a Total Abdominal Hysterectomy on 4th July last year,which I suffered a lot of complications from,everything was going ok until about 6 weeks ago when I started getting quite a lot of abdominal pain which started to get worse..after my best friend nagging me to go to the doctor,my GP straight away suspected adhesions to be the problem after she examined me.So she referred me for an Ultrasound scan.

I had my Ultrasound scan last Wednesday and was completely blown away by what the radiographer showed me..it wasn't adhesions causing the problems at all..they found around 7 cysts and one of them was large being about the size of a golf ball.

Well I was in total shock and she said she was going to fastrack my results back to the GP and that I had to ring this morning to make an appointment to discuss what happens next..well after waiting for 5 days with allsorts running through my mind,luckily I have a very supportive partner and family to keep me calm,I wasn't happy when I rang the doctors to be told that my doctor couldn't see me for over a week and the receptionist wouldn't give me an emergency appointment.I was told that i would have to wait another 24 hrs and if the doctor got chance she would ring me tomorrow morning.

Well after getting very upset and wound up,and I have been in bed all day today as the pain is so severe..I called back and asked to be put through to the practice manager,at which point they took me seriously and went to have a word with my doctor who agreed that it's not the sort of conversation to have over the telephone,so she has cancelled some appointments for tomorrow to fit me in face to face.

I am worried sick,and my family are too,but I am trying to stay calm as best I can.I really hope it isn't cancer,but I didn't know where else to turn to so I hope you guys don't mind me getting things off my chest one here.

I would be really grateful of any advice if anyone has been through a similar thing.

Karen xx

  • Offline

    Hiya All,

    I thought I would come on and give a quick update.

    I still haven't had my CA125 results,and when I called the hospital to find out the outcome of the MDT meeting I was really angry to find out it had been cancelled and nobody had even told me.So the meeting was re-scheduled for today..I actually called the hospital to make sure that it hadn't been cancelled again,and was very happy when they told me it went ahead as planned,and I should get my letter either tomorrow or saturday regarding the outcome.

    And on a positive note I spoke to my Practice Nurse yesterday morning who I explained to that the pain was becoming unbearable and the tablets were wearing off too quick..so she said she would get the doctor to call me back lastnight..which he did and he changed my prescription straight away..I have now stopped my co-codamol and tramadol,and they have put me on Morphine tablets full time,so a little bit spaced out but the pain is a bit more tolerable now.

    I will update again when I get my letter from the hospital about my MDT meeting.

    Karen xx

  • Offline in reply to kazeddy

    Hi Karen sorry to hear your still in so much pain, its terrible isnt it. The worst thing about this is the unknown and the waiting game, I must say its hard to understand your health problems when

    your not a doctor, they have to look into so much dont they? Also being a bit dim here but how do they supect ovarian cancer if youve no ovarys? ( didnt you say you'd already had them removed?) I dont get it but I'm no doctor like I said. ( or is it the surounding areas around the ovarys) they cant keep leaving you in this pain, are you able to be at work through this? I do hope this is sorted out soon for you Karen. I'm due another ' vag cam'   in the next few weeks , can't wait for that , not. Oh well it's gotta be done all part and parcel of this big roller coaster.

    Take care Karen speak soon. love Sandra. x

  • Offline in reply to ashbygirly

    Hiya Sandra,

    Thanks for your support as always

    Yes I did have the hystercetomy on 4th July 2011,however they kept my ovaries because they didn't want me to start the menopause at 34..now I really wish they had and I might not be in this situation now,in fact that's even what my GP said.

    In regards to work hun,no I am unable to work..in fact I had only started a new job a couple of weeks before I became so ill..but they were really nice and said my job will be there as soon as I am back to full health again.

    Take care,and good luck at your next appointment.

    Love karen xx

  • Offline in reply to kazeddy

    Hi Karen how are you keeping hun?  Thinking about you. xx Sandra x

  • Offline in reply to ashbygirly

    Hi Sandra,

    Thank for asking..I know I haven't been on for a while..things have been a bit manic lately.

    I saw my consultant on 20th April who was fantastic with me and my mum talking us through everything fully.

    She said that they were going to remove my right ovary and all the cysts/masses that are attached to it,especially the largest which she thinks is now about 11cm.I asked her if she would removed both ovaries as I don't want to go through the same thing again,so she agreed and they are doing a Bilateral Oophorectomy and removing all the masses at the same time..then the masses will be sent off for tests to check if anything was cancerous.

    The downside was I asked her how long the waiting list is at the moment and she said 4-5 months :cry: :cry: but she did say she would do her best to get it done for me asap..so I was very surprised to only have been back from the hospital an hour when I had a call to book me in for my pre-op on Friday 27/04 :happy:

    My consultant really pulled some strings as I then got my letter with my date fur surgery which is Tue 8th May ...so I have now had my pre-op and the days are ticking by very fast now.My hospital bag is all ready to go now at the side of my bed.

    I am one of the first on the list as well because I have to be at the hospital for 7am..I just want it all over and done with now.

    Thanks for asking about me and I will keep you updated.

    Karen xxx

  • Offline in reply to kazeddy

    Hi Karen, Wow thats fantastic news so pleased they are finally getting you sorted out at long last. So you would of had the op yesterday, hope all went well and I look forward to hearing from you when you are well enough. Take care luv. Let me know how you get on love Sandra. xx

  • Offline in reply to kazeddy

    hi im quite new to site im a breast cancer sufferer i read your message , and i do hope your op went to plan and that you are ok. ive had a few ops myself since first getting diagnosed in 2008 and they not nice also i hope yours isnt cancer . take care and i wish you well xxxxxxxxxx

  • Offline in reply to robssue

    Hi everyone..I thought I would come back and update you all.

    Today I am day 5 post surgery..and it was soooo much worse than I was expecting
    I had to be at the hospital for 7am..and due to complications I didn't go down to theatre until 3pm which made me very anxious so that didn't help.
    When I came round on the ward I was very ill..and had a severe reaction to the anaesthetic for the first time in 18 years,and I was really violently sick for around 12 hours..after being pumped with 5 lots of IV anti sickness drugs it finally started to ease.
    The pain was a lot worse than I was expecting it to be,which all became clear when my surgeon came round to see me on day 1 post op..things weren't exactly straight forward as suspected my right ovary was completely diseased and the 8cm cyst had grown to 11.5cm..there were around another 8 cysts which were 2-3cm's..and then she got the shock  The healthy left ovary had become diseased beyond repair and had grown a 13cm cyst in the last 3 weeks..she was absolutely gobsmacked and couldn't believe it..so luckily I had said I wanted both ovaries removed.
    So I ended up with a bilateral salpingo oophorectomy..10 cysts removed and also a load of adhesions from my bowel from my TAH last year..and I have 50 internal disolvable stitches and 25 external staples
    I was sent home from the hospital on day 3 post op..and it does feel fantastic to be back home..but considering I have been having operations for the last 18 years,I can honestly say I have never felt so useless in all my life
    My bruising is horrendous as always because I bruise so easy,and I will be getting my staples removed on day 7..which I am looking forward to so I will feel a bit more comfortable.
    My family and friends are looking after me really well..and now I have to wait a couple of weeks for the results of everything that was removed as it's been sent to histology..but fingers crossed everything will come
    back as normal.
    Karen xx
  • Offline in reply to kazeddy

    hi oh my you have been through the mill life is not fair at times glad its all over for you and i do hope you recover quick take care lots of love xx

  • Offline in reply to kazeddy

    Hi Karen soo pleased it's over for you, get rid of one lot of pain for another eh? I wish you a quick recovery. I know after my op you do feel like you can't possibly feel any worst but slowly every day you do alittle more. Before you know it you'll be back to your normal self. I wish you well hun. Take care. Love Sandra. xx

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