Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • Hello PTL2day,

    I just wanted to give you a big welcome to the forum. I hope you will meet many others here who have had or have been affected by Non Hodgkin's Lymphoma.

    And we are glad to hear you have had such a wonderful experience with the NHS. Feel free to start your own separate thread and tell us more about your story!

    Best wishes,

    Lucie, Cancer Chat Moderator

  • I got the right moderaror! Hooray. The tamoxifen is like the curate's egg , good in parts! Antidepressant effect. Brill but you would not think so given what follows. Years of meno pause to now have hot flushes return. My family only get 5 years post diagnoses so was it worth the pain post surgery. Despite pain killers I just want to sit and cry. I may as well have just lived with the pain of the lump and put my end plans in to action. I do not mean Zurich here I come either..just tidying up for my loved ones. Is there hope of these pains, itches, etc., ever going away? 5 years of tamoxifen as well as the radiotherapy when I am unlikely to ever be well again seems horrid to me. Watching grandchildren grow is all I have and that is for them.

  • Hello Hevijeli,

    Thanks for sharing your story and a big welcome to Cancer Chat. Please try not to sit and cry and come here to chat to others who can understand what you are going through when you are feeling a bit down.  You seem to have, despite all your pains, a lot of energy and a great sense of humour and I am sure seeing your grandchildren grow and play helps you cope with all this.

    Why don't you start a new thread and tell us more about you and what you are going through? You will then get lots of replies from others in a similar situation.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • HI my name is Helen I am 49 years of age. I was diagnosed with ovarian cancer stage 3c  in August 2011. My Ca 125 level was 1750 it came down to 41 after 6 cycles of chemo (carboplatin and paclitaxol). I have not had surgery as Doctors feel it is too risky. It has spread only around my abdomen but not to any vital organs at this time.I have been off chemo for 3 months and it has re activated and I start chemo on Friday 29th March with the possibility of having avistan alongside of the chemo. My Ca 125 level is now1850 and I feel distraught by all of this. I thought I was doing well, I look very well and am in no pain. I am a very positive person and will not let this beat me. However, I would like to know if there is anyone out there that hasn't had surgery that is doing well or who has the same as me and can offer any form of support or just tell me how you are doing etc.

    Looking forward to hearing from you

    Helen

  • hi.. im Trina and my mother has lung cancer.. im 42 years old, a Carer so im handy to have around in these circumstances... not happy at present... thats it for now i think.. take care all x x 

  • Hi, I got my bad news 5 months ago, I went in for a pain on my side near the galbalder, I give thanks to the doctor that kept looking to see where the pain was coming from, after scans, MRIs and last a full body scan they found a tumor on my tail bone (soft tissue mass of the sacrum) chordoma.  Well my pain went away and now I have to deal with this, maybe it was a blessing that it was found before it got worst.  Right now I'm in Houston getting Proton Radiation for the next six weeks.  I was given two options surgery or radiation.  Well you all take care I'll pray for in need of help and healing.

    GOD Bless

  • Hi benalv,

    Welcome to Cancer Chat.

    Thanks for sharing your story; I hope someone comes along soon to chat.

    I hope your radiation treatment goes well.

    Best wishes

    Renata

    Cancer Chat Moderator

  • Hi Dudley

    I'm so sorry to hear about your son and as I have a daughter the same age I can only imagine how you must be feeling.

    I'm replying to your post just so it pings back to the top of the pile and I know there are a few folk on here who will understand what you are going through and can maybe help.  I'm sure if one of the moderators pick it up (I think it's Lucie who's on shift at the moment) they will give you details of the other parents' threads.

    Good luck and I will say a wee prayer for you tonight

    S x

  • hi im susan 42 year old married mum with 2 sons one is 19 the other 7 in december 3 days before christmas i was told after months of problems that i have secondary breast cancer that has returned through lymph glands. i had breast cancer in 2008 in both breasts at the same time i had a mastectomy on my left side and lumpectomy on the right i did have radiotherapy and chemo yet still got this dreaded bad news. it will be nice to chat with others that are suffering and worrying because its an awful situation to have to try and deal with and come to terms with.

  • Hi Susan,

    I'm so sorry that you're going through such a terrible and worry time.

    There are some lovely, supportive people on here and I hope someone who can relate will be along soon to chat.

    Best wishes

    Renata

    Cancer Chat Moderator