Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • hi sarah

    i had the same procedure done in oct 2010 and to be honest it was not anywhere near as bad as i was expecting in fact to be honest it was more bother a few days later although that was because it was bothering me when i was driving the car but i`m sure your nurse will be keeping you nice and calm and relaxed throughout the procedure and trying to keep your mind off it so good luck and let us know how things go.

      jeff hugz to you x

  • Hi skycat,

    Good luck for tomorrow. Welcome to Cancer Chat and please come back to tell us how you got on.

    Best wishes

    Jane

  • Hi, hope this is the right place, my son who is 28 has terminal brain tumor ( Glioblastoma Grade 4) he was diagnosed in late 2008 with Grade 3 a Astrocytoma. Has anyone out there had a love one with this type of cancer

  • Hello rarsie,

    I just wanted to welcome you to Cancer Chat. I am sorry to hear about your son's brain tumour. It must be so difficult for you.

    You have definitely come to the right place to chat to others who have a loved one with the same type of brain tumour. I have found an older thread on glioblastoma Grade 4 here and thought in particular of stephshinton whose twin sister is 27, almost the same age as your son, and was also diagnosed with Glioblastoma. Feel free to drop a line on their thread or to start a new thread and tell us more about your son's story.

    Best wishes,

    Lucie, Cancer Chat Moderator

  • What do i say? My best friend, who happens to be married to me, had a year of bowel problems, which exactly matched the symptoms that that my mother (deceased) and mother-in law ( deceased) had experienced before being diagnosed with bowel cancer. The medics believed this was probably diverticulitis and ordered the appropriate tests. They couldn't get past an obstruction in the bowel. They assumed this was compacted faeces. Eventually they performed an emergency operation and removed a fairly large, but discrete, cancerous tumour. My partener now has a stoma bag.

    It was a bit crazy in the post-op meeting with the consultant. "The good news is that you're now cured. The bad news is that you had cancer. ". We met with the McMillan Nurse who was saying "Hi, I'm here to talk to you about cancer and I'm discharching you because you're cured"

    After a while we began to pressurise about the reversal of the stoma operation. When will they re-sect the bowel?

    So here we are, a year on, and blood tests and a scan have some significance. We meet with the consultant and he brings in the McMillan nurse. There is a secondary. (Boo}. It's in the liver. (Hooray?). Lung secondaries are less treatable. This liver secondary can be reduced by chemotherapy and removed by surgery.

    We all  know that if it spreads it has spread. We all know that we can't (accurately) predict where it has spread to.

    Janet lives with a stoma bag and a secondary bowel cancer. She now has to face chemotherapy and a serious operation. I, of course, have to support her.HOW?

  • Hi Newbie,

    So sorry to hear that you are being put through the ringer a bit.  I think the best person to ask how best to support Janet is actually Janet herself. Does she have a date when her treatment will start?

    If it's info you're looking for try checking out the thread by Tonysong, I'm sure he will have some advice that you will associate with.

    Please come back and chat if you need to and tell us how you're both doing.....if you can't find Tony let me know and I'll send him a message to find you


    S x

  • Hi Newbie

    There are some great people on here such as Susan who will be able to help guide you as you support Janet, so feel free to come here whenever you need to talk to those who know what you are going through.

    Welcome to Cancer Chat.

    Jane

  • Hi Jane this is the 1st time ive been on here, I have been on the Macmillan site before but found some comments hard to cope with, not been on for a while. I'm married to Peter with a daughter who's 12 going on 20, as are most these days. I know its a while since Peter was diagnosed but for some reason are finding things a bit tough at the moment, probably money worries same as most people who unfortunately find themselves in the same situation. I look forward to talking to more people in the same situation as myself.

  • Hi lorr

    Welcome to Cancer Chat. Sorry to hear you are finding things hard going but this is a good place to come and talk about the worries that sometimes it is hard to share with your nearest and dearest. If you want, you can start your own discussion. If you give it a clear title then people who are going through a similar situation can find you.

    Please feel free to come and chat any time. There are others supporting their husbands here. A couple of people who spring to mind are elkay and lyn_ho. You can find them here.

    Best wishes

    Jane

  • hi lorr

    and welcome to the forum, sorry it's under such circumstances.

    You've not given much detail about what kind of cancer your hubby has (which is fine if you're not ready to share yet), but like the moderator suggests Elkay and lyn Ho spring to mind as perhaps being in a similar position.

    Please come back if you feel like chatting


    S x