Introduce yourself on Cancer Chat

Hello everyone

Today marks a year since we launched the new Cancer Chat, how time flies! In the last 12 months we've shared our stories, laughed and cried and become a real community so I thought it was about time that  we introduced ourselves to you properly.

I'm Sarah and I'm the Cancer Chat manager. I have managed other online communities before coming to Cancer Research UK and am a cancer survivor myself. I went through my treatment in 2009, and so I know how helpful and supportive Cancer Chat can be from personal experience.

There are three moderators who work with me, Renata, Jane and Lucie. All three moderators juggle their Cancer Chat duties with their roles as busy mums and work different shifts throughout the week to ensure that Cancer Chat is appropriately moderated. They help direct members to appropriate information on our main Cancer Research UK website and liaise closely with the specialist nurse team to help answer questions or offer support. Above all, they ensure that Cancer Chat is a safe, secure and welcoming place where anyone affected by cancer can come and ask questions, share experiences and meet people who are also affected by cancer.

We thought it would be fun to tell you a few interesting facts and also share our new avatars which you'll be seeing whenever we are online.

Sarah - is a 70s music addict

Renata - is a mad George Michael fan

Jane -  is a journalist

Lucie - is French

Now it's your turn! We'd love to know more about you, so we've set up this new topic area where you can introduce yourselves and say hello to new members. Don't forget everything is public so don't disclose anything too personal!!

Best Wishes

Sarah

  • Hi am not sure why i signed up but i do need to hear that am not alone because that is just how i feel very alone. My dad died 6 year ago after a long illness and my mum and i coped just, because we had each other, she died last may after having what we thought was indigestion. After going for tests we found out on the Wednesday she had bowel cancer she died the following Tuesday. No one seems to be able to tell me why it was so quick why she didnt have any treatment. Did we miss something? So many questions and noone to answere them. Its funny all thep eople that are around for you when something like this happens and jet were are they now am still in so much pain but am the one who everyone looks to and as being brave and strong am not am sad every day and lonely and would do anything to ease this incredible pain i have.

    thanks for reading

    j

  • Hi Sweetie

    So sorry that you seam to be having such a time of it at the moment.  Your mum seems to have passed away really quickly probably leaving you with a lot of unanswered questions.  Do you have a family member you could talk to, or how about your GP, they might be able to give you some answers as to your mums condition.

    Then I think you have to focus on yourself and try adn get on with your life....Time is a great healer and things will get easier for you.

    I'm sure someone else will be along soon to offer you more advice, there's usually somebody around most of the day and night, not usually me at this time of the morning I have to say, but can't sleep tonight

    Take care

    S x

  • Hi, I think we all need more information about what is available to us, and need to be treated as #co-decisionmakers' in our treatment and care.  Our track record on bowel cancer is pretty abysmal, and the Government has just launched a campaign around it, for people over 50.  Best thing to do is go to www.haveigotbowelcancer.com or www.bowelcancer.tv.  They are in easy to understand language and there are even videos of people undergoing colonoscopies and talking about flexi sigmloidectomies (much cheaper and less intrusive than colonoscopies).

  • Hi miiu

    Sorry to read about your mum and dad. I was reading your post and I thought what you were saying about your mum and how you are feeling was similar to what was being discussed here. Why not take a look and post a message if you feel you want to?  Nobody will mind if you get involved in a discussion that has already started.

    If you don't feel this discussion is for you, there are others involving those who have lost loved ones and they will understand what you are going through. Many of these discussions can be found in the Dying with Cancer section. You could also start your own discussion if you like.

    Welcome to Cancer Chat.

    Best wishes

    Jane

  • Hi Thankyou for reading,

    I have spoken to a doctor but they just believe they did not catch it quick enough but thats the bit i dont understand she had been for so many blood tests before hand. My family look to me to be the strong one and although most of the time i wont to scream its hard when i know they need me.

    Thank you again for replying

    M

  • Thank you Jane, It is a huge step for me and am gratefull for any suport !! m

  • Hi

    My brother in law has recently been diagnosed with cancer of undiagnosed primary with secondary cancer in the lungs,liver and bone. The whole family are devastated and struggling to come to terms with thevdiagnosis/prognosis. Hoping that you can support us with information and advice.

    Xx

  • Hi Hope2012,

    I'm so sorry to read about your brother-in-law's diagnosis. There are some lovely supportive people on here and I hope some will be along soon to share their experiences with you.

    Best wishes to you and your family,

    Renata

    Cancer Chat Moderator

  • Hi Hope,


    Sorry to hear about your brother in law, mine was a different cancer (breast) but happy to chat to you or offer any kind of support/information that I can.

    It's a difficult time for you at the moment but once the news sinks in you will find it easier to ask all the questions

    Keep in touch


    S x

  • Hi everyone,  I'm a newbie too.  My husband was rushed in on 22nd January with severe stomach pains which were thought to be related to an ulcer problem he had last year.  It turned out to be a ruptured bowel and a carcinoid neuroendocrine tumour on the bowel with 'hot spots' on the liver.  He had to have immediate surgery and 50cm of his bowel removed and an ileostomy performed to give him a stoma.  To say this was a shock is putting it mildly as he has always been so fit and healthy.  Since then he has remained in hospital as he became so dehydrated that they have been giving him nutrition and fluids through tubes.  His stoma was also pouring liquid and he was vomiting green bile and feeling nauseous all the time.  The medications he was given to thicken his stoma output kept making him sick and he lost 9kg in a couple of weeks and was fading away before my eyes.  He is gradually improving and looks much better now.  He has also had high potassium so they have been giving him ECGs to check his heart function and scans to check the spread of the cancer.  They hope to be able to give him radiofrequency ablation to burn off the hot spots on his liver.  I was initially terrified at the thought of losing him so suddenly but his prospects are looking a bit better now.  We should hear on Friday what the next step is in his treatment.  Thankfully the stoma has decreased its output and started to thicken a little.  The stoma nurse said the stoma has not been sited very well due to the emergency surgery but hopefully we will learn to manage it.  Looking through this website I have been very impressed with the support available, it's nice to unload all the worry without upsetting close family.  Hopefully, I will be able to report on his progress as time goes on.