Thankyou marian for your kind words its nice to get replies ,ive tried on other sites and have never got a reply .I hope you will be ok after your first chemo and it doesn't make you to poorly xxxx

Hi susan

           Thank you for your reply good luck with your reconstruction please let me know how it goes as I will be havin mine in a year good luck and good health for the future

                                                                                                                                                                                                                              karen xx

Hi I dont really know if this is for me but I will give it a go. My name is Sharron and at the age of 42 ive recently been diagnosed with muscle invasive bladder cancer, I feel like im sinking into a big hole thats swallowing me and my children are seeing me cry my eyes out, my greatest fear isnt the chemo or the inevitable op 2 remove my bladder it's not being around 2 see the 3 youngest grow up this scares me more than anything. I feel wronged by my G.P as have had a bad bladder and kidneys for a long time yet over the past yr have been there so often and had blood in my urine and pain so much blood once that the sample just looked like bright red water yet nothing was done until after them upping my painkillers over several wks or more I collapsed and took myself into A+E i was catheterised and given antibiotics but out after 2 days the nxt wk i was in so much pain an ambulance was called and b4 i could even be moved they had 2 dope me up with morphine as i couldnt even stand up they scanned my bladder and said they would need me back 4 a cystocopy this hurt and they said they had found something but would have 2 do another under general and depending on what they found maybe a biopsy would be take, as soon as the biopsy word was used my 1st thought was Cancer. I was told the biopsy would be arranged urgently , and when i asked what that meant i was told 2 to 3 wks this was at end of oct 2011 when i hadnt heard from them after 2 wks give or take a day i phoned the hospital only 2 be told oh yes we are doing that on jan 11th when we remove your kidney stone , which i knew about and knew wasnt until jan 11th i questioned the fact it was meant 2 be urgent and was told if they were worried it would of been !!!  Anyway 2 cut a long story short they did that and i was out after a wk, i went 2 have the bag on my back changed as it was leaking and after that was told by the nurse my doctor there wanted 2 see me back there ( think it was a couple of days later) as he had my biopsy results, when i saw him he proceeded 2 tell me i had grade 3 muscle invasive bladder cancer and kept answering his mobile whilst he was explaining this 2 me . This whole thing is 1 big nightmare that i dont think im going 2 get thru im going crazy, and 2 top it off i met my oncology doctor last wk and he said i was starting my chemo this wk i had a witness there with me that heard this, when i didnt get a call from the chemo suite 2 advise me what time 2 turn up i raang them and was told the doctor or myself must be wrong as they have me down for the following wk, is it this bad 4 everyone or is my life a farse ?? I watched my best friend die of cancer 3 yrs ago and saw how it took her it was awful and now i cant sleep and cry every night when my kids are in bed and i dont feel positive in any way about beating it, is there anyone my age or close on here with this cancer as i know it usually is found in much older people

Hi Sharon

Firstly welcome to this site and I'm sure once you find your way around it you'll find some folk here who may not be going through what you are but are great at listening, giving you advice, grounding you when your head is all over the place, and even making you smile when you feel down, so stick with us.

Right back to you....if it was me I'd make an appointment with your GP and ask him/her to explain the whole thing to you and the treatment dates they have scheduled.  I don't know where you are in the country but my hospital send a letter confirming everything to my GP so it's on record.  Take someone with you as information is sometimes a lot to take in.

I won't go on too much on your first post incase you think it's overload, but please come back even if just to chat and tell us how you're doing.

Take care

S x

Hi there Sharon

Sounds like youre having a really tough time at the moment. Also sounds like you could do with someone to maybe go to the doctor with you when you ask all the questions that it sounds like you might need to ask ? A member of your family or maybe a good friend ? 4 ears are better than 2 ? I think we're all the same when we go to the doctors, its can be a nerve wrecking time and we dont always hear what we're being told.  In my experience, Sharon I was in totoal shock at first and felt like you, there was no or very little future. But when I knew that there was a plan and I started to feel much more positive and with time it got better and better. I really think once you get all those answers you want you'll start to feel better too. I wish you all the very best,

Come back anytime , let us know how youre feeling and how you're getting on ,

You've landed on a brillaint site and there will be lots of help for you here,

Lovve Marian x

Hi Sharon

There was someone posting called simplykate who was under 50 and had bladder cancer. You could try posting on her thread, which you can find here.

You have come to the right place. Not everyone here will have exactly the same experience as you, but they will know what you are going through and will be able to offer you support. Feel free to start your own discussion and give it a clear title so that anyone with the same cancer as you who may be around the same age can get in contact. Susan and Marian have given you wise advice. Come back anytime you feel the need to talk and let us know how you are getting on.

I see you've also posted on the nurses Q&A thread and they will be answering your post this afternoon from 2pm to 3pm.

Welcome to Cancer Chat.

Best wishes

Jane

thank you all 3 of you ive nosed around on here before but didnt know what 2 say was at the end of a reall crap day where id been crying and in pain so came back on here i will try that thred and i will definately come back after treatment starts nxt wk thank you all again x

You're more than welcome Sharon, come back anytime, wishing you well ,

Love Marian x 

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